Project 8P Foundation
Nonprofit profile at a glance
- EIN
- 832545342
- IRS 990 coverage
- 2019–2024
- Forms available
- Form 990 2024, Form 990-EZ 2018
- Location
- New York, NY, USA
- Phone
- 2122483260
- Rating
- 78
- Verdict
- SUPPORTED
- Rating confidence
- Moderate
- Sector
- Birth Defects and Genetic Diseases
Reported finances
- Revenue
- $1,888,508
- Expenses
- $1,387,442
- Assets
- $2,943,272
- Liabilities
- $86,971
Source: IRS Form 990. Selected filing: tax year 2024. Amounts in USD.
Leadership & pay
6 people listed
Executive titles in this filing
- Lauren Chaby (Executive Director)
Highest reported compensation
- Lauren Chaby (Executive Director): $102,083 total reported compensation
Source: IRS Form 990. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.
Overview
Mission
To empower a unified community for chromosome 8p heroes for a meaningful life today while accelerating treatments for tomorrow. Activities include clinical care, research, AI data-driven platform and biorepository, and education and advocacy.
What it reported doing in 2024
Scientific Programs: Project 8p Foundation partners with top researchers and biopharma to uncover the causes of chromosome 8p disorders and improve the lives of those affected. Our work addresses urgent biological questionssuch as symptom progression, mitochondrial dysfunction, gut-brain interactions, and cellular stressto deliver actionable clinical tools for families today, while accelerating discoveries that can lead to scalable treatments for all communities affected by complex neurodevelopmental and neuromuscular conditions. Were advancing innovative technologies and accelerating therapeutic discovery by harnessing data in new ways. Our proprietary 8p Insights Portal is a growing, patient-centered resource that integrates clinical records, caregiver-reported outcomes, and biospecimen datadriving scientific breakthroughs and delivering meaningful impact for those living with chromosome 8p disorders.
Operating model
- Revenue model
- Donor-supported. 95% of the money available for current operations came from contributions and gifts.
- Distribution model
- Hybrid. The nonprofit split its reported program spending across 58% for direct work, and 42% for grants.
The verdict
SUPPORTED - A large share of available resources goes toward mission work and the filed numbers largely add up. The filing does not identify recipients for some grant dollars and some filing-based governance responses are negative or unanswered.
Rating breakdown
- Financial Efficiency: 72
- Transparency & Controls: 74
- Accountability: 95
- Sustainability: 70
- Growth: 100
Detailed rating inputs
Financial Efficiency
- Mission deployment rate: 63.6%; rating input score 64
- Program expense ratio: 85.1%; rating input score 85
- Fundraising efficiency: $34.84 raised per $1 spent on fundraising; rating input score 71; 71st percentile among comparable filings
Transparency & Controls
- Consistency checks: 87.5%; rating input score 88; 3rd percentile among comparable filings
- Pay-setting controls: Limited
- Foreign activity oversight: Limited
- Grant itemization coverage: 50%; rating input score 50; 29th percentile among comparable filings
- Major donor itemization: Yes; rating input score 100
- Related-party transparency: Limited
Accountability
- Independent voting board: 100%; rating input score 100; 63rd percentile among comparable filings
- Governance controls: 7 of 8 controls in place; rating input score 88
- Conflict-of-interest policy: Pass
- Whistleblower policy: Pass
- Document-retention policy: Pass
- CEO compensation review process: Fail
- Other executive compensation review process: NotApplicable
- Form 990 shared with the board: Pass
- Board meeting minutes documented: Pass
- Audit committee oversight: Pass
- Independent financial-statement audit: Pass
Sustainability
- Operating margin: 26.5%; rating input score 82; 82nd percentile among comparable filings
- Total-asset coverage ratio: 2.12; rating input score 66; 66th percentile among comparable filings
- Liabilities to assets ratio: 0.03; rating input score 58; 58th percentile among comparable filings
- Officer compensation ratio: 7.4%; rating input score 46; 46th percentile among comparable filings
Growth
- Program expense growth: 42.9% per year; rating input score 100; 94th percentile among comparable filings
- Revenue growth: 28.9% per year; rating input score 100; 92nd percentile among comparable filings
- Asset growth: 38.8% per year; rating input score 100; 94th percentile among comparable filings
Details
- Where the money goes: 63.6% of revenue deployed · 85.1% of spending went to programs
- Governance: 4 of 4 board members independent · 7 of 8 filing controls reported
- Programs: 3 filed program accomplishments · $1.2M in reported program spending
- Leadership: top reported pay $102K · 6 people listed
- Consistency: 31 of 33 current checks pass · 2 findings to review
- Schedules: 6 filed schedules · includes major donors and grants
- Filing history: 5 filing years from 2019 to 2024
- Contacts: How to reach this organization
- Money network: 7 filed money-flow records
- Related organizations: 6 filed related-organization links
- Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
- People: Everyone the filings name, and which of them the filings identify by more than a name.
Key Signals
Signals prioritize questions for review. They are not findings of misconduct.
- Review — Transparency & Controls: Grant itemization coverage scored 50/100.
- Review — Accountability: Governance controls: CEO compensation review process not reported.
- Review — Transparency & Controls: Domestic grant itemization did not reconcile in the filed values.
- Review — Transparency & Controls: Foreign grants require schedule f did not reconcile in the filed values.
- Moderate — Sustainability: Officer compensation ratio scored 46/100.
- Review — Sustainability: Liabilities to assets ratio scored 58/100.