Prader-willi California Foundation

Nonprofit profile at a glance

EIN
953480752
IRS 990 coverage
2010–2025
Forms available
Form 990 2025
Location
San Diego, CA, USA
Phone
3103725053
Rating
73
Verdict
SUPPORTED
Rating confidence
Moderate
Sector
Fund Raising and/or Fund Distribution

Official website

Reported finances

Revenue
$241,825
Expenses
$194,584
Assets
$915,935
Liabilities
$1,549

Source: IRS Form 990. Selected filing: tax year 2025. Amounts in USD.

Leadership & pay

4 people listed

Executive titles in this filing

  • Lisa Salazar (President)
  • Vince Godfrey (Vice President)

People named in this filing

  • Lisa Salazar (President)
  • Vince Godfrey (Vice President)
  • Shandra Beer (Secretary)

Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.

Source: IRS Form 990. Selected filing: tax year 2025. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

Individuals with prader-willi syndrome pws should have the opportunity to pursue their hopes and dreams to the full extent of their talents and capabilities. The success of people with pws depends greatly upon the knowledge and support of the community around them. The organization provides individuals with pws, their families, and professionals with a state network of information, advocacy and support services.

What it reported doing in 2025

Support & advocacy programs pwcf provided quarterly support group meetings for parents, and online support meetings for people with pws. Supported three pws clinics throughout the state treating hundreds of children and adults with pws. Pwcf facilitated support groups, wrote letters of advocacy, and accompanied parents and family members to school meetings, regional center meetings, and hearings. Each of these programs served to provide families with networking and support opportunities so they feel less isolated and more connected with other pws families and professionals. Pwcf provided support to families during covid, making sure they were aware of health updates, and vaccination access.pwcf also significantly revamped its website to enhance functionality and provide the most up to date resources to its members and the community.

Operating model

Revenue model
Donor-supported. 68% of the money available for current operations came from contributions and gifts.
Distribution model
Direct operator. The filing allocates 93% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.

The verdict

SUPPORTED - A large share of available resources goes toward mission work and the filed numbers largely add up. The filing does not identify recipients for some grant dollars and program spending has declined or grown slowly.

Rating breakdown

  • Financial Efficiency: 66
  • Transparency & Controls: 77
  • Accountability: 88
  • Sustainability: 70
  • Growth: 40

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 73.6%; rating input score 74
  • Program expense ratio: 75.1%; rating input score 75
  • Fundraising efficiency: Limited

Transparency & Controls

  • Consistency checks: 91.7%; rating input score 92; 20th percentile among comparable filings
  • Pay-setting controls: Limited
  • Foreign activity oversight: Limited
  • Grant itemization coverage: 50.9%; rating input score 51; 45th percentile among comparable filings
  • Major donor itemization: Yes; rating input score 100
  • Related-party transparency: Limited

Accountability

  • Independent voting board: 100%; rating input score 100; 64th percentile among comparable filings
  • Governance controls: 5 of 7 controls in place; rating input score 71
    • Conflict-of-interest policy: Pass
    • Whistleblower policy: Pass
    • Document-retention policy: Pass
    • CEO compensation review process: NotApplicable
    • Other executive compensation review process: NotApplicable
    • Form 990 shared with the board: Pass
    • Board meeting minutes documented: Pass
    • Audit committee oversight: Missing
    • Independent financial-statement audit: Fail

Sustainability

  • Operating margin: 19.5%; rating input score 70; 70th percentile among comparable filings
  • Total-asset coverage ratio: 4.71; rating input score 78; 78th percentile among comparable filings
  • Liabilities to assets ratio: 0; rating input score 49; 49th percentile among comparable filings
  • Officer compensation ratio: 0%; rating input score 67; 67th percentile among comparable filings

Growth

  • Program expense growth: -3.6% per year; rating input score 0; 19th percentile among comparable filings
  • Revenue growth: 0.5% per year; rating input score 100; 22nd percentile among comparable filings
  • Asset growth: -0.7% per year; rating input score 0; 19th percentile among comparable filings

Details

  • Where the money goes: 73.6% of revenue deployed · 75.1% of spending went to programs
  • Governance: 180 of 180 board members independent · 5 of 7 filing controls reported
  • Programs: 3 filed program accomplishments · $146K in reported program spending
  • Leadership: top reported pay $0 · 4 people listed
  • Consistency: 25 of 26 current checks pass · 1 finding to review
  • Schedules: 5 filed schedules · includes major donors and grants
  • Filing history: 15 filing years from 2010 to 2025
  • Contacts: How to reach this organization
  • Money network: 1 filed money-flow record
  • Related organizations: 1 filed related-organization link
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • Review — Transparency & Controls: Grant itemization coverage scored 51/100.
  • High — Growth: Program expense growth scored 0/100.
  • Review — Accountability: Governance controls: Independent financial-statement audit not reported.
  • High — Growth: Asset growth scored 0/100.
  • Review — Transparency & Controls: Domestic grant itemization did not reconcile in the filed values.
  • Moderate — Sustainability: Liabilities to assets ratio scored 49/100.