Pku Hope Foundation

Nonprofit profile at a glance

EIN
932255729
IRS 990 coverage
2023–2025
Forms available
Form 990 2025
Location
Leesburg, VA, USA
Phone
9134614384
Rating
53
Verdict
MIXED
Rating confidence
Moderate
Sector
Fund Raising and/or Fund Distribution

Reported finances

Revenue
$660,641
Expenses
$310,061
Assets
$1,326,600
Liabilities
$23,050

Source: IRS Form 990. Selected filing: tax year 2025. Amounts in USD.

Leadership & pay

3 people listed

Executive titles in this filing

  • JERRY ELKINS (BOARD PRESIDENT)

People named in this filing

  • JILL ELKINS (EXEC DIRECTOR BOARD VP TREASURER)
  • JERRY ELKINS (BOARD PRESIDENT)
  • SUSAN ANDERSON (BOARD SECRETARY)

Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.

Source: IRS Form 990. Selected filing: tax year 2025. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

The mission of the PKU Hope Foundation is to improve the quality of life for those with PKU by fostering community influencing and supporting research treatment therapies and easing the burden of managing the diet.

What it reported doing in 2025

Influencing and supporting research treatment therapies for the rare disease community is crucial to help accelerate the development of effective treatments and therapies tailored to the specific needs of individuals with pku. By advocating for research the community can attract funding increase awareness among researchers and healthcare professionals and foster collaboration between stakeholders. Additionally it offers hope to patients and their families by providing access to potentially life-improving interventions. Overall advancing research and treatment options improves the quality of life and prognosis for those living with rare diseases.

Operating model

Revenue model
Donor-supported. 100% of the money available for current operations came from contributions and gifts.
Distribution model
Cannot be determined from the filing. The filing does not provide enough consistent spending detail to tell whether the nonprofit works directly or through others.

The verdict

MIXED - The filed numbers largely add up and revenue comfortably covers expenses. A relatively small share of available resources goes toward mission work and a relatively small share of total spending goes to programs.

Rating breakdown

  • Financial Efficiency: 21
  • Transparency & Controls: 96
  • Accountability: 43
  • Sustainability: 83
  • Growth: 60

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 16.4%; rating input score 16
  • Program expense ratio: 35%; rating input score 35
  • Fundraising efficiency: Limited

Transparency & Controls

  • Consistency checks: 92.9%; rating input score 93; 22nd percentile among comparable filings
  • Pay-setting controls: Limited
  • Foreign activity oversight: Limited
  • Grant itemization coverage: 100%; rating input score 100; 78th percentile among comparable filings
  • Major donor itemization: Yes; rating input score 100
  • Related-party transparency: Limited

Accountability

  • Independent voting board: 33.3%; rating input score 33; 13th percentile among comparable filings
  • Governance controls: 4 of 7 controls in place; rating input score 57
    • Conflict-of-interest policy: Pass
    • Whistleblower policy: Pass
    • Document-retention policy: Fail
    • CEO compensation review process: NotApplicable
    • Other executive compensation review process: NotApplicable
    • Form 990 shared with the board: Pass
    • Board meeting minutes documented: Pass
    • Audit committee oversight: Missing
    • Independent financial-statement audit: Fail

Sustainability

  • Operating margin: 53.1%; rating input score 92; 92nd percentile among comparable filings
  • Total-asset coverage ratio: 4.28; rating input score 82; 82nd percentile among comparable filings
  • Liabilities to assets ratio: 0.02; rating input score 55; 55th percentile among comparable filings
  • Officer compensation ratio: 0%; rating input score 78; 78th percentile among comparable filings

Growth

  • Program expense growth: 20.2% per year; rating input score 100; 80th percentile among comparable filings
  • Revenue growth: -10.8% per year; rating input score 0; 2nd percentile among comparable filings
  • Asset growth: 23.8% per year; rating input score 100; 84th percentile among comparable filings

Details

  • Where the money goes: 16.4% of revenue deployed · 35% of spending went to programs
  • Governance: 1 of 3 board members independent · 4 of 7 filing controls reported
  • Programs: 3 filed program accomplishments · $108K in reported program spending
  • Leadership: top reported pay $0 · 3 people listed
  • Consistency: 41 of 44 current checks pass · 3 findings to review
  • Schedules: 6 filed schedules · includes major donors and grants
  • Filing history: 3 filing years from 2023 to 2025
  • Contacts: How to reach this organization
  • Money network: 2 filed money-flow records
  • Related organizations: 2 filed related-organization links
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • High — Financial Efficiency: Mission deployment rate scored 16/100.
  • Moderate — Financial Efficiency: Program expense ratio scored 35/100.
  • Moderate — Accountability: Independent voting board scored 33/100.
  • Review — Accountability: Governance controls: 2 of 6 not reported.
  • High — Growth: Revenue growth scored 0/100.
  • Moderate — Transparency & Controls: Functional expense sum did not reconcile in the filed values.
  • Moderate — Transparency & Controls: Part IX OfficeExpenses column sum did not reconcile in the filed values.
  • Moderate — Transparency & Controls: Part IX Travel column sum did not reconcile in the filed values.
  • Review — Sustainability: Liabilities to assets ratio scored 55/100.