Pediatric Epilepsy Research Consortium Inc

Nonprofit profile at a glance

EIN
881162919
IRS 990 coverage
2023–2025
Forms available
Form 990 2025, Form 990-N 2022
Location
Chicago, IL, USA
Phone
9703793628
Rating
79
Verdict
SUPPORTED
Rating confidence
Moderate
Sector
Health

Reported finances

Revenue
$731,267
Expenses
$405,857
Assets
$1,005,530
Liabilities
$31,417

Source: IRS Form 990. Selected filing: tax year 2025. Amounts in USD.

Leadership & pay

13 people listed

Executive titles in this filing

  • M SCOTT PERRY MD (PRESIDENT)
  • ROB SEIDEMAN (EXECUTIVE DIRECTOR)
  • JANE M MCCABE ZEENDER (EXECUTIVE DIRECTOR (RESIGNED))

Highest reported compensation

  • JANE M MCCABE ZEENDER (EXECUTIVE DIRECTOR (RESIGNED)): $65,030 total reported compensation
  • ROB SEIDEMAN (EXECUTIVE DIRECTOR): $55,025 total reported compensation

Source: IRS Form 990. Selected filing: tax year 2025. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

To provide the network and infrastructure to facilitate collegial, collaborative, practice-changing research that will provide answers needed to improve the care of children with epilepsy.

What it reported doing in 2025

Mentorship program. This program prepares early-stage pediatric epilepsy health care providers with the knowledge and skills they need for collaborative research. This is an under developed area of focus in traditonal epilepsy training programs.

Operating model

Revenue model
Donor-supported. 96% of the money available for current operations came from contributions and gifts.
Distribution model
Hybrid. The nonprofit split its reported program spending across 42% for direct work, and 58% for grants.
  • Includes noncash contributions: Reported contributions include donated property or goods.

The verdict

SUPPORTED - The filed numbers largely add up and most voting board members are independent. A relatively small share of available resources goes toward mission work and some filed totals do not add up.

Rating breakdown

  • Financial Efficiency: 58
  • Transparency & Controls: 90
  • Accountability: 100
  • Sustainability: 69
  • Growth: 100

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 44.9%; rating input score 45
  • Program expense ratio: 78.3%; rating input score 78
  • Fundraising efficiency: $24.12 raised per $1 spent on fundraising; rating input score 60; 60th percentile among comparable filings

Transparency & Controls

  • Consistency checks: 93.3%; rating input score 93; 24th percentile among comparable filings
  • Pay-setting controls: Limited
  • Foreign activity oversight: Limited
  • Grant itemization coverage: 100%; rating input score 100; 78th percentile among comparable filings
  • Major donor itemization: Yes; rating input score 100
  • Related-party transparency: Limited

Accountability

  • Independent voting board: 100%; rating input score 100; 64th percentile among comparable filings
  • Governance controls: 8 of 8 controls in place; rating input score 100
    • Conflict-of-interest policy: Pass
    • Whistleblower policy: Pass
    • Document-retention policy: Pass
    • CEO compensation review process: Pass
    • Other executive compensation review process: NotApplicable
    • Form 990 shared with the board: Pass
    • Board meeting minutes documented: Pass
    • Audit committee oversight: Pass
    • Independent financial-statement audit: Pass

Sustainability

  • Operating margin: 44.5%; rating input score 89; 89th percentile among comparable filings
  • Total-asset coverage ratio: 2.48; rating input score 70; 70th percentile among comparable filings
  • Liabilities to assets ratio: 0.03; rating input score 48; 48th percentile among comparable filings
  • Officer compensation ratio: 29.6%; rating input score 8; 8th percentile among comparable filings

Growth

  • Program expense growth: 76.7% per year; rating input score 100; 98th percentile among comparable filings
  • Revenue growth: 30.1% per year; rating input score 100; 90th percentile among comparable filings
  • Asset growth: 49.9% per year; rating input score 100; 95th percentile among comparable filings

Details

  • Where the money goes: 44.9% of revenue deployed · 78.3% of spending went to programs
  • Governance: 11 of 11 board members independent · 8 of 8 filing controls reported
  • Programs: 3 filed program accomplishments · $318K in reported program spending
  • Leadership: top reported pay $65K · 13 people listed
  • Consistency: 28 of 29 current checks pass · 1 finding to review
  • Schedules: 5 filed schedules · includes major donors and grants
  • Filing history: 3 filing years from 2023 to 2025
  • Contacts: How to reach this organization
  • Money network: 9 filed money-flow records
  • Related organizations: 7 filed related-organization links
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • Moderate — Financial Efficiency: Mission deployment rate scored 45/100.
  • Moderate — Transparency & Controls: Schedule A contributions reconciliation did not reconcile in the filed values.
  • High — Sustainability: Officer compensation ratio scored 8/100.
  • Moderate — Sustainability: Liabilities to assets ratio scored 48/100.