Patients Rising Inc

Nonprofit profile at a glance

EIN
611860696
IRS 990 coverage
2018–2024
Forms available
Form 990 2024
Location
Reston, VA, USA
Phone
2027501186
Rating
65
Verdict
SUPPORTED
Rating confidence
Moderate
Sector
Alliance/Advocacy Organizations

Official website

Reported finances

Revenue
$2,059,744
Expenses
$1,289,807
Assets
$1,076,796
Liabilities
$1,482,407

Source: IRS Form 990. Selected filing: tax year 2024. Amounts in USD.

Leadership & pay

9 people listed

Highest reported compensation

  • TERESSA WILCOX (CHF EXC/MISS): $230,100 total reported compensation
  • JOSEPH D KEENAN (CHIEF DIGITA): $201,536 total reported compensation
  • ROBERT MACKAY JIMESON (EXECUTIVE DI): $180,233 total reported compensation

Source: IRS Form 990. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

Patients rising is a national 501(c)(4) non-profit organization empowering every patient in america to advocate for reforms placing them, alongside their doctors, in control of their healthcare choices.

What it reported doing in 2024

The patients rising policy center is the driving force behind our mission to champion patient-centered policy and advocacy. As the central hub for policy strategy, this center merges the expertise of our former patient access & affordability project with the government affairs functions of patients rising now, creating a unified platform for patient-inspired policy solutions. At the heart of this initiative is the newly launched patient senate, a body of trained advocates who bring their voices directly into the policymaking process. The patient senate sets priorities based on the needs of patients across the nation, ensuring that legislative agendas reflect real-life healthcare challenges. This group works closely with policy experts to provide insight into pressing healthcare issues, giving patients an active role in shaping solutions that improve access and affordability. Through the policy center, patients rising will identify key areas for analysis and engage in innovative policy development to address healthcare challenges. Supported by corporate members, this center enables us to lead the way in advocating for practical, patient-focused reforms at both state and federal levels. The patients rising policy center not only sets our legislative agenda but also ensures that the patient perspective remains at the core of policy decisions.

Operating model

Revenue model
Mixed. Its operating money came from several sources; no one source provided a clear majority.
Distribution model
Direct operator. The filing allocates 100% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.

The verdict

SUPPORTED - A large share of total spending goes to programs and the filed numbers largely add up. A relatively small share of available resources goes toward mission work and few specific pay-setting methods are documented in the filing; unanswered boxes are not proof of absence.

Rating breakdown

  • Financial Efficiency: 64
  • Transparency & Controls: 65
  • Accountability: 61
  • Sustainability: 51
  • Growth: 100

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 52%; rating input score 52
  • Program expense ratio: 83%; rating input score 83
  • Fundraising efficiency: $25.48 raised per $1 spent on fundraising; rating input score 65; 65th percentile among comparable filings

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 63rd percentile among comparable filings
  • Pay-setting controls: 0 of 6 controls in place; rating input score 0
    • Compensation committee: Missing
    • Independent consultant: Missing
    • Other Form 990s reviewed: Missing
    • Written employment contract: Missing
    • Compensation survey or study: Missing
    • Board or committee approval: Missing
  • Foreign activity oversight: Limited
  • Grant itemization coverage: Limited
  • Major donor itemization: Yes; rating input score 100
  • Related-party transparency: Limited

Accountability

  • Independent voting board: 85.7%; rating input score 86; 17th percentile among comparable filings
  • Governance controls: 2 of 8 controls in place; rating input score 25
    • Conflict-of-interest policy: Pass
    • Whistleblower policy: Fail
    • Document-retention policy: Fail
    • CEO compensation review process: NotApplicable
    • Other executive compensation review process: Fail
    • Form 990 shared with the board: Fail
    • Board meeting minutes documented: Pass
    • Audit committee oversight: Missing
    • Independent financial-statement audit: Fail

Sustainability

  • Operating margin: 37.4%; rating input score 88; 88th percentile among comparable filings
  • Total-asset coverage ratio: 0.83; rating input score 31; 31st percentile among comparable filings
  • Liabilities to assets ratio: 1.38; rating input score 2; 2nd percentile among comparable filings
  • Officer compensation ratio: 32.3%; rating input score 4; 4th percentile among comparable filings

Growth

  • Program expense growth: 19.7% per year; rating input score 100; 85th percentile among comparable filings
  • Revenue growth: 23.3% per year; rating input score 100; 91st percentile among comparable filings
  • Asset growth: 45.4% per year; rating input score 100; 97th percentile among comparable filings

Details

  • Where the money goes: 52% of revenue deployed · 83% of spending went to programs
  • Governance: 6 of 7 board members independent · 2 of 8 filing controls reported
  • Programs: 3 filed program accomplishments · $1.1M in reported program spending
  • Leadership: top reported pay $230K · 9 people listed · 0 of 6 pay-setting controls reported
  • Highest-paid contractors: 2 contractors listed · $350K reported
  • Consistency: 25 of 25 current checks pass
  • Schedules: 6 filed schedules · includes major donors and executive pay
  • Filing history: 7 filing years from 2018 to 2024
  • Contacts: How to reach this organization
  • Money network: 4 filed money-flow records
  • Related organizations: 1 filed related-organization link
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • Review — Financial Efficiency: Mission deployment rate scored 52/100.
  • High — Transparency & Controls: Pay-setting controls scored 0/100.
  • High — Accountability: Governance controls: 5 of 7 not reported.
  • Moderate — Sustainability: Total-asset coverage ratio scored 31/100.
  • High — Sustainability: Liabilities to assets ratio scored 2/100.
  • High — Sustainability: Officer compensation ratio scored 4/100.