Patient Advocate Foundation

What it reported doing in 2024

Financial support programssince 2004, paf's co-pay relief program (cpr) has provided financial assistance for co-payments, co-insurance and deductibles required by a patient's insurer for medications prescribed to treat and/or manage the patient's disease.in fy 2024/2025 paf's co-pay relief program expanded its impact through the addition of nine (9) new general funds, assisting patients in two (2) new health equity (he) funds and sixty (60) existing funds including: acromegaly, acute myeloid leukemia, alzheimer's disease he, amyloidosis, asthma, bile duct cancer, bladder cancer, breast cancer, breast cancer he, cancer genetic & genomic testing, cervical cancer, chronic obstructive pulmonary disease, coronary artery disease he, covid-19 & post covid conditions, cystic fibrosis, diabetes, diabetes he, diabetes type 2 he, eosinophilic esophagitis, gaucher disease, gaucher disease he, heart failure he, hemophilia, hemophilia he, hepatitis b, hepatitis c, hepatitis c he, hepatocellular carcinoma, HIV, AIDS & prevention, HIV, AIDS & prevention he, homozygous familial hypercholesterolemia, lupus, lupus he, melanoma, metastatic breast cancer, metastatic colorectal cancer, metastatic colorectal cancer he, metastatic prostate cancer, mucopolysaccharidosis iii, mucopolysaccharidosis vii, mucopolysaccharidosis vii he, multiple myeloma, multiple myeloma he, multiple sclerosis, multiple sclerosis he, myelodysplastic syndromes, narcolepsy, non-small cell lung cancers, non-small cell lung cancer he, osteoporosis, ovarian cancer, ovarian cancer he, pancreatic cancer, parkinson's disease he, periodic paralysis, prostate cancer, prostate cancer he, psoriasis, psoriatic arthritis, pulmonary fibrosis, pulmonary hypertension, rheumatoid arthritis, small cell lung cancer, social needs assessment & intervention fund, soft tissue sarcoma, spinal muscular atrophy, spinal muscular atrophy he, stoke, thyroid eye disease, ulcerative colitis, virology testing he.paf's co-pay relief program established health equity funds in 2022, a type of fund that makes cpr more accessible and beneficial for patients who needed the most help and are not being served adequately by the existing medical and copay infrastructure. Developed using the social vulnerability index (svi) and cdc disease incidence data, these funds serve people living in 226 counties across the united states that have been identified by the svi and cdc incidence data as having the highest social vulnerability scores and are burdened with high rates of chronic diseases. The health equity funds are designed to specifically provide support to eligible patients living in one of the 226 counties covered by the funds, which is verified using the zip code of the patient's home address. All other eligibility requirements, and fund operation, are the same as cpr's general funds. The foundation's co-pay relief program offers a dedicated, secure web-based application for patients and/or their family members to enroll electronically for the co-pay relief program directly from the co-pay relief program website. Also, cpr offers three dedicated, secured websites for medical providers, pharmacy representatives and employees of charitable non-profit organizations to enroll electronically for the co-pay relief program on behalf of the patients they are working with. The foundation also offers telephonic support services to patients who prefer to receive personal assistance from a program specialist.in fy2024/2025, the foundation administered co-payment assistance to 78,035 qualified patients through seventy-one (71) assistance funds available through the co-pay relief program. The program staff fielded 188,385 telephone calls and processed claims totaling over $174,190,832 in support of qualified patients' out of pocket expenses for required co-payments, co-insurance, and deductibles. Since its inception in 2004, the foundation has provided co-payment assistance to over 831,000 individuals, allocating more than $2

Financial Efficiency

• Mission deployment rate: 100%; rating input score 100
• Program expense ratio: 98.1%; rating input score 98
• Fundraising efficiency: $74.95 raised per $1 spent on fundraising; rating input score 81; 81st percentile among comparable filings

Transparency & Controls

• Consistency checks: 100%; rating input score 100; 68th percentile among comparable filings
• Pay-setting controls: 5 of 6 controls in place; rating input score 83
  • Compensation committee: Pass
  • Independent consultant: Missing
  • Other Form 990s reviewed: Pass
  • Written employment contract: Pass
  • Compensation survey or study: Pass
  • Board or committee approval: Pass
• Foreign activity oversight: Limited
• Grant itemization coverage: 100%; rating input score 100; 77th percentile among comparable filings
• Major donor itemization: Yes; rating input score 100
• Related-party transparency: Limited

Accountability

• Independent voting board: 100%; rating input score 100; 77th percentile among comparable filings
• Governance controls: 9 of 9 controls in place; rating input score 100
  • Conflict-of-interest policy: Pass
  • Whistleblower policy: Pass
  • Document-retention policy: Pass
  • CEO compensation review process: Pass
  • Other executive compensation review process: Pass
  • Form 990 shared with the board: Pass
  • Board meeting minutes documented: Pass
  • Audit committee oversight: Pass
  • Independent financial-statement audit: Pass

Sustainability

• Operating margin: -53.9%; rating input score 1; 1st percentile among comparable filings
• Total-asset coverage ratio: 1.14; rating input score 44; 44th percentile among comparable filings
• Liabilities to assets ratio: 0.11; rating input score 81; 81st percentile among comparable filings
• Officer compensation ratio: 1%; rating input score 74; 74th percentile among comparable filings

Growth

• Program expense growth: 10.3% per year; rating input score 100; 75th percentile among comparable filings
• Revenue growth: 9.3% per year; rating input score 100; 74th percentile among comparable filings
• Asset growth: 11.9% per year; rating input score 100; 78th percentile among comparable filings