Parkinson Voice Project Inc

What it reported doing in 2024

Purpose: One in one hundred adults over the age of 60 will be diagnosed with Parkinsons. Of these individuals, 90% are likely to develop difficulty with speech and communication. Left untreated, speech disorders can lead to serious swallowing complications. The inability to effectively speak and safely swallow can lead to isolation, depression, dependence on others, feeding tubes, multiple hospitalizations, and death. Parkinson Voice Project exists to help people with parkinson's and related neurological disorders regain and retain their speech and swallowing. Major Programs & Activities-SPEAK OUT! Therapy ProgramIn 2010, Parkinson Voice Project developed a unique speech therapy program for people with Parkinsons and related disorders. Our SPEAK OUT! Therapy Program combines education, individual and group speech therapy, daily home practice, and continuous follow-ups. Since Parkinsons is a progressive, degenerative disorder, our treatment protocol is meant to be a life-long program. In other words, once a patient enters the program, they remain in it throughout their life. Our Texas Speech Therapy ClinicParkinson Voice Project runs a speech therapy clinic in Richardson, Texas. Its clinical team treats patients in-person and online. All its speech-language pathologists are licensed in Texas, but some also hold licensure in other states. Something unique about Parkinson Voice Projects clinic is that it does not bill Medicare or insurance and has not charged for any of its speech therapy services since 2008. The clinic is funded primarily through donations.As part of its in-person program, Parkinson Voice Project hosts a singing group called The Intentional Singers. Rehearsals are held each week, and the group performs in annual concerts. The concerts are held at Parkinson Voice Project.Our Campaign to Reach AmericaIn 2021, Parkinson Voice Project launched a project called, Our Campaign to Reach America. It is an ambitious project whereby our organization is collaborating with one university speech clinic in every state to make our SPEAK OUT! Therapy Program accessible to people with Parkinsons across our nation. These university clinics follow Parkinson Voice Projects funding model (no-charge therapy) and specialize in online treatment. By not charging and providing online therapy, SPEAK OUT! Therapy is now accessible to the homebound, those who live in rural areas, and those who have insurance or financial limitations. These clinics also train their graduate students in SPEAK OUT! Therapy and are conducting research on the program with the goal of being published in a scientific journal(s) in three to five years. These clinics are called SPEAK OUT! Therapy & Research Centers. Since speech-language pathologists are licensed by state, the goal is to have one clinic in each state across America. Each Center will be able to treat any patient in their state.As of June 2025, Parkinson Voice Project has 29 SPEAK OUT! Therapy & Research Centers (28 plus our clinic in Texas): University of Alabama Birmingham (this clinic is the Center for both Alabama and Mississippi), Arizona State University, Arkansas State University, California State University Los Angeles, Metropolitan State University Denver (this clinic is the Center for both Colorado and Wyoming), Sacred Heart University, University of South Florida, Georgia Southern University, Western Kentucky University, Northeastern University, Andrews University, University of Minnesota Duluth, Saint Louis University, University of Nebraska at Omaha, University of Nevada, Reno, Stockton University, University at Buffalo, Kent State University, Pennsylvania State University, University of South Carolina, University of Utah (this clinic is the Center for Utah, Virginia, and Washington D.C.), Eastern Washington University, Marshall University, University of Wisconsin-River Falls and University of Wisconsin-Eau Claire.Every Center receives SPEAK OUT! Therapy Certification for all their speech

Financial Efficiency

• Mission deployment rate: 92.4%; rating input score 92
• Program expense ratio: 86.9%; rating input score 87
• Fundraising efficiency: $12.31 raised per $1 spent on fundraising; rating input score 44; 44th percentile among comparable filings

Transparency & Controls

• Consistency checks: 93.3%; rating input score 93; 17th percentile among comparable filings
• Pay-setting controls: 5 of 6 controls in place; rating input score 83
  • Compensation committee: Pass
  • Independent consultant: Pass
  • Other Form 990s reviewed: Pass
  • Written employment contract: Missing
  • Compensation survey or study: Pass
  • Board or committee approval: Pass
• Foreign activity oversight: Limited
• Grant itemization coverage: 98.1%; rating input score 98; 34th percentile among comparable filings
• Major donor itemization: Yes; rating input score 100
• Related-party transparency: Limited

Accountability

• Independent voting board: 92.3%; rating input score 92; 23rd percentile among comparable filings
• Governance controls: 9 of 9 controls in place; rating input score 100
  • Conflict-of-interest policy: Pass
  • Whistleblower policy: Pass
  • Document-retention policy: Pass
  • CEO compensation review process: Pass
  • Other executive compensation review process: Pass
  • Form 990 shared with the board: Pass
  • Board meeting minutes documented: Pass
  • Audit committee oversight: Pass
  • Independent financial-statement audit: Pass

Sustainability

• Operating margin: -1.1%; rating input score 29; 29th percentile among comparable filings
• Total-asset coverage ratio: 6.08; rating input score 86; 86th percentile among comparable filings
• Liabilities to assets ratio: 0.12; rating input score 54; 54th percentile among comparable filings
• Officer compensation ratio: 24.4%; rating input score 9; 9th percentile among comparable filings

Growth

• Program expense growth: 9.5% per year; rating input score 100; 62nd percentile among comparable filings
• Revenue growth: 9.7% per year; rating input score 100; 67th percentile among comparable filings
• Asset growth: 21.4% per year; rating input score 100; 86th percentile among comparable filings