Parkinson Association of the Carolinas

Nonprofit profile at a glance

EIN
300064156
IRS 990 coverage
2010–2024
Forms available
Form 990 2024, Form 990-EZ 2016
Location
Charlotte, NC, USA
Phone
7042483722
Rating
78
Verdict
SUPPORTED
Rating confidence
Moderate
Sector
Birth Defects, Genetic Diseases Research

Official website

Reported finances

Revenue
$367,501
Expenses
$531,944
Assets
$2,086,304
Liabilities
$122,339

Source: IRS Form 990. Selected filing: tax year 2024. Amounts in USD.

Leadership & pay

6 people listed

Highest reported compensation

  • Ann Marie Worman (Executive Dir.): $85,642 total reported compensation

Source: IRS Form 990. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

To serve as a resource for individuals and their families affected by Parkinsons disease in the Carolinas, through education, community outreach and direct support. We actively seek opportunities to connect individuals with Parkinsons disease and their families to support groups, professional agencies and other community resources so that will help them maintain or improve their independence and quality of life.

What it reported doing in 2024

Parkinson Association of the Carolinas (PAC) fulfills its mission to serve as a resource for individuals and their families affected by Parkinsons disease in the Carolinas, through education, community outreach, and direct support with its many programs. PAC is a resource center in the Carolinas by providing people by email and phone for information. To initiate a live conversation with a staff member, people can dial a toll-free number for information on Parkinson's Disease (PD) and ways to cope with this progressive neurological disease. Many of the callers are directed to support groups closest to their homes. It is through support groups where people gather the most information and where they can offer and receive support from others who understand firsthand about the challenges they face. PAC's website, social media and monthly newsletter provides movement class listing and support group meeting information including location and time, current topic, and support group leader contact information. The newsletter also features articles about upcoming educational and awareness events and information about PD. PAC maintains a library of reading and audio-visual material available for members and for newly diagnosed patients and family members. The Movement Therapy Program helps people with Parkinsons stay active, improve mobility, and enhance their quality of life. PAC supports approximately 50 classes per month, and through additional grants was able to support an additional 8 week exercise series for Parkinsons and a drumming class which helped participants practice cognitive skills, movement, and music.PACs educational events and resources empower individuals and families to better understand Parkinsons, learn strategies to manage daily life, raise community awareness, and advocate for community needs. PAC continued to offer monthly wellness webinars connecting people and resources from North and South Carolina, hosted its annual Symposium, and held its first Caregiver Summit, providing needed information to loved ones caring for a person with Parkinsons. PAC provides a network where people with Parkinsons and their loved ones can connect, share experiences, and find encouragement through its support programs including a monthly online support group, connecting people to in-person support groups where they live, providing resources to support groups in North and South Carolina, and visiting with support groups for Parkinsons disease.

Operating model

Revenue model
Donor-supported. 62% of the money available for current operations came from contributions and gifts.
Distribution model
Direct operator. The filing allocates 100% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.

The verdict

SUPPORTED - The filed numbers largely add up and a large share of available resources goes toward mission work. A relatively small share of total spending goes to programs and fundraising costs are high for each dollar raised.

Rating breakdown

  • Financial Efficiency: 61
  • Transparency & Controls: 92
  • Accountability: 95
  • Sustainability: 31
  • Growth: 100

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 78.4%; rating input score 78
  • Program expense ratio: 49.1%; rating input score 49
  • Fundraising efficiency: $2.35 raised per $1 spent on fundraising; rating input score 11; 11th percentile among comparable filings

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 64th percentile among comparable filings
  • Pay-setting controls: Limited
  • Foreign activity oversight: Limited
  • Grant itemization coverage: Limited
  • Major donor itemization: Yes; rating input score 100
  • Related-party transparency: Limited

Accountability

  • Independent voting board: 100%; rating input score 100; 63rd percentile among comparable filings
  • Governance controls: 7 of 8 controls in place; rating input score 88
    • Conflict-of-interest policy: Pass
    • Whistleblower policy: Pass
    • Document-retention policy: Pass
    • CEO compensation review process: NotApplicable
    • Other executive compensation review process: Pass
    • Form 990 shared with the board: Fail
    • Board meeting minutes documented: Pass
    • Audit committee oversight: Pass
    • Independent financial-statement audit: Pass

Sustainability

  • Operating margin: -44.7%; rating input score 6; 6th percentile among comparable filings
  • Total-asset coverage ratio: 3.92; rating input score 74; 74th percentile among comparable filings
  • Liabilities to assets ratio: 0.06; rating input score 31; 31st percentile among comparable filings
  • Officer compensation ratio: 16.1%; rating input score 23; 23rd percentile among comparable filings

Growth

  • Program expense growth: 2.4% per year; rating input score 100; 42nd percentile among comparable filings
  • Revenue growth: 7.7% per year; rating input score 100; 65th percentile among comparable filings
  • Asset growth: 11.2% per year; rating input score 100; 69th percentile among comparable filings

Details

  • Where the money goes: 78.4% of revenue deployed · 49.1% of spending went to programs
  • Governance: 5 of 5 board members independent · 7 of 8 filing controls reported
  • Programs: 1 filed program accomplishment · $261K in reported program spending
  • Leadership: top reported pay $86K · 6 people listed
  • Consistency: 25 of 25 current checks pass
  • Schedules: 5 filed schedules · includes major donors
  • Filing history: 13 filing years from 2010 to 2024
  • Contacts: How to reach this organization
  • Money network: 1 filed money-flow record
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • Moderate — Financial Efficiency: Program expense ratio scored 49/100.
  • High — Financial Efficiency: Fundraising efficiency scored 11/100.
  • High — Sustainability: Operating margin scored 6/100.
  • Review — Accountability: Governance controls: Form 990 shared with the board not reported.
  • High — Sustainability: Officer compensation ratio scored 23/100.
  • Moderate — Sustainability: Liabilities to assets ratio scored 31/100.