Our Promise to Nicholas Foundation
Nonprofit profile at a glance
- EIN
- 264605606
- IRS 990-EZ coverage
- 2010–2025
- Forms available
- Form 990-EZ 2025, Form 990-N 2020
- Location
- Bedford, NH, USA
- Phone
- 6036172023
- Rating
- 94
- Verdict
- STRONG
- Rating confidence
- Moderate
- Sector
- Birth Defects and Genetic Diseases
Reported finances
- Revenue
- $40,649
- Expenses
- $81,466
- Assets
- $122,195
- Liabilities
- $70
Source: IRS Form 990-EZ. Selected filing: tax year 2025. Amounts in USD.
Leadership & pay
10 people listed
Executive titles in this filing
- CHRISTOPHER DAINIAK (PRESIDENT)
- HEATHER DAINIAK (CEO)
People named in this filing
- CHRISTOPHER DAINIAK (PRESIDENT)
- HEATHER DAINIAK (CEO)
- AMY NOYES (SECRETARY/TR)
Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.
Source: IRS Form 990-EZ. Selected filing: tax year 2025. Names and roles reflect this filing, not necessarily current officeholders.
Overview
Mission
Funding research to find a cure for battens disease and support conferences that educate families and the medical community about this disease.
What it reported doing in 2025
Funding provided for battens disease research and to support conferences that educate families and the medical community about this disease.
Operating model
- Revenue model
- Donor-supported. 100% of the money available for current operations came from contributions and gifts.
- Distribution model
- Grant intermediary. The nonprofit sent 66% of its reported program spending out as grants.
The verdict
STRONG - A large share of available resources goes toward mission work and the filed numbers largely add up. Expenses are high relative to revenue and assets have declined or grown slowly.
Rating breakdown
- Financial Efficiency: 96
- Transparency & Controls: 100
- Sustainability: 31
- Growth: 80
Detailed rating inputs
Financial Efficiency
- Mission deployment rate: 100%; rating input score 100
- Program expense ratio: 89.8%; rating input score 90
Transparency & Controls
- Consistency checks: 100%; rating input score 100; 51st percentile among comparable filings
- Major donor itemization: Yes; rating input score 100
Sustainability
- Operating margin: -100.4%; rating input score 7; 7th percentile among comparable filings
- Total-asset coverage ratio: 1.5; rating input score 58; 58th percentile among comparable filings
- Liabilities to assets ratio: 0; rating input score 31; 31st percentile among comparable filings
- Officer compensation ratio: 0%; rating input score 56; 56th percentile among comparable filings
Growth
- Program expense growth: 2.4% per year; rating input score 100; 54th percentile among comparable filings
- Revenue growth: 0.7% per year; rating input score 100; 53rd percentile among comparable filings
- Asset growth: -2.9% per year; rating input score 0; 29th percentile among comparable filings
Details
- Where the money goes: 100% of revenue deployed · 89.8% of spending went to programs
- Governance: Filed governance answers
- Accomplishments: 2 filed program accomplishments · $73K in reported program spending
- Leadership: top reported pay $0 · 10 people listed
- Consistency: 9 of 9 current checks pass
- Schedules: 3 filed schedules
- Filing history: 16 filing years from 2010 to 2025
- Contacts: How to reach this organization
- Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
- People: Everyone the filings name, and which of them the filings identify by more than a name.
Key Signals
Signals prioritize questions for review. They are not findings of misconduct.
- High — Sustainability: Operating margin scored 7/100.
- High — Growth: Asset growth scored 0/100.
- Review — Sustainability: Total-asset coverage ratio scored 58/100.
- Moderate — Sustainability: Liabilities to assets ratio scored 31/100.
- Review — Sustainability: Officer compensation ratio scored 56/100.