Odylia Therapeutics Inc

Nonprofit profile at a glance

EIN
822120760
IRS 990 coverage
2018–2025
Forms available
Form 990 2025, Form 990-N 2017
Location
Atlanta, GA, USA
Phone
4044802994
Rating
77
Verdict
SUPPORTED
Rating confidence
Standard
Sector
Eye Diseases, Blindness & Vision Impairments Research

Reported finances

Revenue
$1,523,364
Expenses
$1,406,969
Assets
$1,741,781
Liabilities
$921,012

Source: IRS Form 990. Selected filing: tax year 2025. Amounts in USD.

Leadership & pay

11 people listed

Executive titles in this filing

  • ASHLEY WINSLOW (CEO/CSO)

Highest reported compensation

  • ASHLEY WINSLOW (CEO/CSO): $230,426 total reported compensation
  • JENNIFER KLEIN (MGR. OF OPERATIONS & PROG. MGMT.): $118,614 total reported compensation
  • KATHRYN POST PHD (DIRECTOR, BRYDGE SOLUTIONS): $105,593 total reported compensation

Source: IRS Form 990. Selected filing: tax year 2025. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

Odylia utilizes a unique, non-profit model to develop and advance therapeutics for people with rare diseases, changing the way treatments are brought from the lab to the clinic.

What it reported doing in 2025

Odylia's two primary initiatives are the odylia pipeline and brydge solutions. The pipeline includes the rpgrip1, ush1c, and nphp1 gene therapy programs. Significant accomplishments included a successful fda pre-ind meeting and preclinical development activities for the rpgrip1 program, clinical candidate selection and delivery optimization for the ush1c program, and initial vector design and testing for the nphp1 program. Brydge solutions accelerates the development of treatments for rare diseases through strategic partnerships with patient advocacy organizations, disease foundations, and rare disease families. In 2025, the program established five new partnerships with save sight now, med13l foundation, upstream genes, dlg4 shine syndrome foundation, and pbd project.

Operating model

Revenue model
Mixed. Its operating money came from several sources; no one source provided a clear majority.
Distribution model
Direct operator. The filing allocates 100% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.

The verdict

SUPPORTED - A large share of available resources goes toward mission work and the filed numbers largely add up. Fundraising costs are high for each dollar raised and revenue has declined or grown slowly.

Rating breakdown

  • Financial Efficiency: 74
  • Transparency & Controls: 79
  • Accountability: 100
  • Sustainability: 41
  • Growth: 40

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 77.2%; rating input score 77
  • Program expense ratio: 85.1%; rating input score 85
  • Fundraising efficiency: $8.74 raised per $1 spent on fundraising; rating input score 30; 30th percentile among comparable filings

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 63rd percentile among comparable filings
  • Pay-setting controls: 2 of 6 controls in place; rating input score 33
    • Compensation committee: Missing
    • Independent consultant: Missing
    • Other Form 990s reviewed: Missing
    • Written employment contract: Missing
    • Compensation survey or study: Pass
    • Board or committee approval: Pass
  • Foreign activity oversight: Limited
  • Grant itemization coverage: Limited
  • Major donor itemization: Yes; rating input score 100
  • Related-party transparency: Limited

Accountability

  • Independent voting board: 100%; rating input score 100; 64th percentile among comparable filings
  • Governance controls: 8 of 8 controls in place; rating input score 100
    • Conflict-of-interest policy: Pass
    • Whistleblower policy: Pass
    • Document-retention policy: Pass
    • CEO compensation review process: Pass
    • Other executive compensation review process: NotApplicable
    • Form 990 shared with the board: Pass
    • Board meeting minutes documented: Pass
    • Audit committee oversight: Pass
    • Independent financial-statement audit: Pass

Sustainability

  • Operating margin: 7.6%; rating input score 51; 51st percentile among comparable filings
  • Total-asset coverage ratio: 1.24; rating input score 50; 50th percentile among comparable filings
  • Liabilities to assets ratio: 0.53; rating input score 11; 11th percentile among comparable filings
  • Officer compensation ratio: 32.3%; rating input score 7; 7th percentile among comparable filings

Growth

  • Program expense growth: 5.4% per year; rating input score 100; 38th percentile among comparable filings
  • Revenue growth: -45.4% per year; rating input score 0; 0th percentile among comparable filings
  • Asset growth: -23% per year; rating input score 0; 1st percentile among comparable filings

Details

  • Where the money goes: 77.2% of revenue deployed · 85.1% of spending went to programs
  • Governance: 8 of 8 board members independent · 8 of 8 filing controls reported
  • Programs: 1 filed program accomplishment · $1.2M in reported program spending
  • Leadership: top reported pay $230K · 11 people listed · 2 of 6 pay-setting controls reported
  • Highest-paid contractors: 2 contractors listed · $655K reported
  • Consistency: 27 of 27 current checks pass
  • Schedules: 5 filed schedules · includes major donors and executive pay
  • Filing history: 7 filing years from 2018 to 2025
  • Contacts: How to reach this organization
  • Money network: 3 filed money-flow records
  • Related organizations: Filed and resolved organization relationships.
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • Moderate — Financial Efficiency: Fundraising efficiency scored 30/100.
  • High — Growth: Revenue growth scored 0/100.
  • Review — Sustainability: Operating margin scored 51/100.
  • High — Growth: Asset growth scored 0/100.
  • Review — Sustainability: Total-asset coverage ratio scored 50/100.
  • High — Sustainability: Officer compensation ratio scored 7/100.
  • High — Sustainability: Liabilities to assets ratio scored 11/100.