Nus1 Foundation Inc

Nonprofit profile at a glance

EIN
991200443
IRS 990-EZ coverage
2025–2025
Forms available
Form 990-EZ 2025, Form 990-N 2024
Location
Bloomington, IN, USA
Rating
63
Verdict
SUPPORTED
Rating confidence
Moderate
Sector
Public, Society Benefit N.E.C.

Reported finances

Revenue
$59,343
Expenses
$736
Assets
$67,661

Source: IRS Form 990-EZ. Selected filing: tax year 2025. Amounts in USD.

Leadership & pay

2 people listed

Executive titles in this filing

  • Carissa Carman (President)
  • Andrea McMahon (Vice President)

People named in this filing

  • Carissa Carman (President)
  • Andrea McMahon (Vice President)

Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.

Source: IRS Form 990-EZ. Selected filing: tax year 2025. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

At NUS1 Foundation we are dedicated to making a difference in the lives of individuals affected by ultra rare NUS1 genetic disorders. Our mission is to connect caregivers patients researchers and providers to build a community of hope that furthers treatment options. Through our collaborative efforts we strive to advance medical research and improve the quality of life for those living with these rare conditions.

What it reported doing in 2025

The NUS1 Foundation is a 501c3 nonprofit organization dedicated to supporting individuals and families affected by NUS1 genetic disorders. During the tax year the organizations primary activities consisted of fundraising community outreach and educational efforts to support future research initiatives.The Foundation engaged with patient and scientific communities through its website and virtual events held to receive donations and increase awareness. Funds raised during the year are being held for future research projects and program development.No research funding or grants were disbursed during the tax year. Program service expenses totaled approximately $735 and consisted of operational costs necessary to support these activities including website maintenance and communication tools.

Operating model

Revenue model
Donor-supported. 100% of the money available for current operations came from contributions and gifts.
Distribution model
Direct operator. The filing allocates 100% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.

The verdict

SUPPORTED - The filed numbers largely add up and revenue comfortably covers expenses. A relatively small share of available resources goes toward mission work and reported officer compensation is a large share of total spending, which may reflect staffing concentration.

Rating breakdown

  • Financial Efficiency: 38
  • Transparency & Controls: 100
  • Sustainability: 83
  • Growth: NotEnoughData

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 1.2%; rating input score 1
  • Program expense ratio: 100%; rating input score 100

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 51st percentile among comparable filings
  • Major donor itemization: Yes; rating input score 100

Sustainability

  • Operating margin: 98.8%; rating input score 100; 100th percentile among comparable filings
  • Total-asset coverage ratio: 91.93; rating input score 99; 99th percentile among comparable filings
  • Liabilities to assets ratio: Limited
  • Officer compensation ratio: 0%; rating input score 56; 56th percentile among comparable filings

Growth

  • Program expense growth: Limited
  • Revenue growth: Limited
  • Asset growth: Limited

Details

  • Where the money goes: 1.2% of revenue deployed · 100% of spending went to programs
  • Governance: Filed governance answers
  • Accomplishments: 1 filed program accomplishment · $736 in reported program spending
  • Leadership: top reported pay $0 · 2 people listed
  • Consistency: 7 of 7 current checks pass
  • Schedules: 3 filed schedules
  • Contacts: How to reach this organization
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • High — Financial Efficiency: Mission deployment rate scored 1/100.
  • Review — Sustainability: Officer compensation ratio scored 56/100.