North Star Als Inc
Nonprofit profile at a glance
- EIN
- 393005160
- IRS 990-EZ coverage
- 2025–2025
- Forms available
- Form 990-EZ 2025
- Location
- Santa Barbara, CA, USA
- Phone
- 8052324567
- Rating
- 44
- Verdict
- MIXED
- Rating confidence
- Moderate
- Sector
- Nerve, Muscle, Bone Diseases Research
Reported finances
- Revenue
- $121,787
- Expenses
- $34,822
- Assets
- $90,237
- Liabilities
- $0
Source: IRS Form 990-EZ. Selected filing: tax year 2025. Amounts in USD.
Leadership & pay
4 people listed
People named in this filing
- LINDA MATT (VP & TREASURER)
- LORI ANDRE (SECRETARY)
- LORI HELLER (MEMBER)
Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.
Source: IRS Form 990-EZ. Selected filing: tax year 2025. Names and roles reflect this filing, not necessarily current officeholders.
Overview
Mission
North star als is the independent science hub for the als community. North star als is dedicated to connecting people affected by als with every aspect of research.we help als families:-understand how to access and participate in research-advocate for better study designs-share community insights to elevate lived experience throughout the research ecosystem
What it reported doing in 2025
Patient insight integration & research collaboration - facilitation of structured opportunities for individuals affected by als to share lived experiences and perspectives to inform research. Activities include collaborations with academic and industry researchers to ensure that patient insights are incorporated into study design, recruitment strategies, and broader research efforts, in alignment with the organization's charitable and educational mission.
Operating model
- Revenue model
- Donor-supported. 100% of the money available for current operations came from contributions and gifts.
- Distribution model
- No current program activity. The filing reports no program spending for the current year.
The verdict
MIXED - The filed numbers largely add up and revenue comfortably covers expenses. A relatively small share of available resources goes toward mission work and a relatively small share of total spending goes to programs.
Rating breakdown
- Financial Efficiency: 0
- Transparency & Controls: 100
- Sustainability: 87
- Growth: NotEnoughData
Detailed rating inputs
Financial Efficiency
- Mission deployment rate: 0%; rating input score 0
- Program expense ratio: 0%; rating input score 0
Transparency & Controls
- Consistency checks: 100%; rating input score 100; 52nd percentile among comparable filings
- Major donor itemization: Yes; rating input score 100
Sustainability
- Operating margin: 71.4%; rating input score 97; 97th percentile among comparable filings
- Total-asset coverage ratio: 2.59; rating input score 86; 86th percentile among comparable filings
- Liabilities to assets ratio: 0; rating input score 74; 74th percentile among comparable filings
- Officer compensation ratio: 0%; rating input score 63; 63rd percentile among comparable filings
Growth
- Program expense growth: Limited
- Revenue growth: Limited
- Asset growth: Limited
Details
- Where the money goes: 0% of revenue deployed · 0% of spending went to programs
- Governance: Filed governance answers
- Accomplishments: 3 filed program accomplishments
- Leadership: top reported pay $0 · 4 people listed
- Consistency: 8 of 8 current checks pass
- Schedules: 3 filed schedules
- Contacts: How to reach this organization
- Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
- People: Everyone the filings name, and which of them the filings identify by more than a name.
Key Signals
Signals prioritize questions for review. They are not findings of misconduct.
- High — Financial Efficiency: Mission deployment rate scored 0/100.
- High — Financial Efficiency: Program expense ratio scored 0/100.