North East Als Consortium Inc

Nonprofit profile at a glance

EIN
562547779
IRS 990 coverage
2011–2024
Forms available
Form 990 2024, Form 990-EZ 2010
Location
Boston, MA, USA
Phone
6178584277
Rating
65
Verdict
SUPPORTED
Rating confidence
Moderate
Sector
Specifically Named Diseases Research

Official website

Reported finances

Revenue
$2,066,070
Expenses
$554,594
Assets
$3,081,868
Liabilities
$251,554

Source: IRS Form 990. Selected filing: tax year 2024. Amounts in USD.

Leadership & pay

12 people listed

People named in this filing

  • ROBERT H BROWNMD DPHIL (SAB, CHAIR)
  • GALE KITTLE (CLINICAL EVALUATOR MEMBER)
  • JEFFREY ROTHSTEINMDPHD (SAB, CHAIR)

Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.

Source: IRS Form 990. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

The mission of north east als consortium (neals) is to translate scientific advances into clincical research and new treatments for people with amyotrophic lateral sclerosis (als) and motor neuron disease (mnd) as rapidly as possible.

What it reported doing in 2024

The annual neals meeting serves as an opportunity for neals researchers to liaise with leading als and mnd scientists, government sponsors, academic partners, and pharmaceutical companies in order to discuss potential treatments, to review current research activities, and to share scientific updates. The neals science advisory board is responsible for advising the neals executive committee and neals members about the scientific basis of neals research activities. In addition, neals has built an extensive als sample repository and maintained several trial databases. In the spirit of collaboration, we make resources such as these widely available to investigators conducting research in als.

Operating model

Revenue model
Mixed. Its operating money came from several sources; no one source provided a clear majority.
Distribution model
Direct operator. The filing allocates 100% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.
  • Includes noncash contributions: Reported contributions include donated property or goods.

The verdict

SUPPORTED - The filed numbers largely add up and most voting board members are independent. A relatively small share of available resources goes toward mission work and a relatively small share of total spending goes to programs.

Rating breakdown

  • Financial Efficiency: 35
  • Transparency & Controls: 83
  • Accountability: 82
  • Sustainability: 89
  • Growth: 100

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 14.4%; rating input score 14
  • Program expense ratio: 53.8%; rating input score 54
  • Fundraising efficiency: $87.85 raised per $1 spent on fundraising; rating input score 85; 85th percentile among comparable filings

Transparency & Controls

  • Consistency checks: 92.3%; rating input score 92; 10th percentile among comparable filings
  • Pay-setting controls: Limited
  • Foreign activity oversight: Limited
  • Grant itemization coverage: Limited
  • Major donor itemization: Limited
  • Related-party transparency: Limited

Accountability

  • Independent voting board: 100%; rating input score 100; 63rd percentile among comparable filings
  • Governance controls: 4 of 7 controls in place; rating input score 57
    • Conflict-of-interest policy: Fail
    • Whistleblower policy: Fail
    • Document-retention policy: Fail
    • CEO compensation review process: NotApplicable
    • Other executive compensation review process: NotApplicable
    • Form 990 shared with the board: Pass
    • Board meeting minutes documented: Pass
    • Audit committee oversight: Pass
    • Independent financial-statement audit: Pass

Sustainability

  • Operating margin: 73.2%; rating input score 97; 97th percentile among comparable filings
  • Total-asset coverage ratio: 5.56; rating input score 85; 85th percentile among comparable filings
  • Liabilities to assets ratio: 0.08; rating input score 62; 62nd percentile among comparable filings
  • Officer compensation ratio: 0%; rating input score 91; 91st percentile among comparable filings

Growth

  • Program expense growth: 7.3% per year; rating input score 100; 52nd percentile among comparable filings
  • Revenue growth: 15.3% per year; rating input score 100; 82nd percentile among comparable filings
  • Asset growth: 20.5% per year; rating input score 100; 84th percentile among comparable filings

Details

  • Where the money goes: 14.4% of revenue deployed · 53.8% of spending went to programs
  • Governance: 11 of 11 board members independent · 4 of 7 filing controls reported
  • Programs: 1 filed program accomplishment · $298K in reported program spending
  • Leadership: top reported pay $0 · 12 people listed
  • Consistency: 22 of 23 current checks pass · 1 finding to review
  • Schedules: 4 filed schedules
  • Filing history: 13 filing years from 2011 to 2024
  • Contacts: How to reach this organization
  • Money network: Resolved incoming and outgoing counterparties from filed money flows.
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • High — Financial Efficiency: Mission deployment rate scored 14/100.
  • Review — Financial Efficiency: Program expense ratio scored 54/100.
  • Review — Accountability: Governance controls: 3 of 7 not reported.
  • Moderate — Transparency & Controls: Schedule A contributions reconciliation did not reconcile in the filed values.