Nmdp Foundation

What it reported doing in 2024

Patient assistance: the nmdp foundation provides financial assistance to patients throughout each stage of the transplant process. Funded by philanthropy, in fy25, more than $7 million was provided to over 3,000 patients from 148 transplant centers. In fy25, the proportion of grant recipients who identified as non-hispanic white ranged from 0%-67% depending on the grant type. For the sickle cell fertility preservation grant, which helps pay for fertility preservation and storage pre-transplant for sickle cell disease, all recipients identified as either black / african american or hispanic. For the john and caryn camiolog survivorship grant, 67% of recipients identified as non-hispanic white.the sickle cell fertility preservation grant helps pay for fertility preservation and storage fees for patients with sickle cell disease preparing for transplant. This grant is paid to the fertility preservation clinic or patient when insurance does not cover this cost. In fy25, this grant was distributed to 27 patients with an average award amount of $6,695. Nmdp also provides funding to help with the many uncovered out-of-pocket expenses for patients before and after transplant. The tsa grant provides direct financial assistance to qualified families both pre- and post-transplant. Tsa helps with expenses such as transportation, temporary relocation, copays and insurance premiums. For this grant, 63% of recipients identified as non-hispanic white. In fy25, 3,621 tsa awards were granted to 2,727 patients pre- and post-transplant with the average award being $1,290. The award amount is determined based on a federal poverty level sliding scale. Patients can receive both pre- and post-transplant awards if they meet eligibility. The camiolo survivorship grant (cam) provides direct financial assistance to eligible patients, who are at least three months post-transplant and who are actively receiving treatment for chronic graft-versus-host disease. Cam helps with uncovered costs of treatment and prescriptions. In fy25, 180 patients were helped through the cam grant with each patient awarded $750.the chell travel grant provides direct financial assistance to eligible patients who needed assistance with travel costs to participate in clinical trials that treat blood cancers or blood disorders. For this grant, 54% of recipients identified as non-hispanic white. In fy25, 157 patients received the chell travel grant with the average award amount being $1,598.two crisis grants help patients experiencing a significant crisis event impacting access to transplant or post-transplant care. The ira and diana riklis crisis grant provides up to $10,000 in direct financial assistance to qualified patients post-transplant and the make me stronger crisis grant provides up to $15,000 pre-transplant. In fy25, 61 patients were helped through these crisis grants with the average award amount being $8,858. A team of bmt social workers and navigators defines the eligibility criteria which is used to ensure fair and consistent distribution of this grant. In fy25, 47% of grant recipients identified as non-hispanic white.

Financial Efficiency

• Mission deployment rate: 76.3%; rating input score 76
• Program expense ratio: 80.1%; rating input score 80
• Fundraising efficiency: $10.86 raised per $1 spent on fundraising; rating input score 41; 41st percentile among comparable filings

Transparency & Controls

• Consistency checks: 94.1%; rating input score 94; 20th percentile among comparable filings
• Pay-setting controls: 4 of 6 controls in place; rating input score 67
  • Compensation committee: Pass
  • Independent consultant: Pass
  • Other Form 990s reviewed: Missing
  • Written employment contract: Missing
  • Compensation survey or study: Pass
  • Board or committee approval: Pass
• Foreign activity oversight: Limited
• Grant itemization coverage: 50%; rating input score 50; 11th percentile among comparable filings
• Major donor itemization: Yes; rating input score 100
• Related-party transparency: Limited

Accountability

• Independent voting board: 94.4%; rating input score 94; 28th percentile among comparable filings
• Governance controls: 9 of 9 controls in place; rating input score 100
  • Conflict-of-interest policy: Pass
  • Whistleblower policy: Pass
  • Document-retention policy: Pass
  • CEO compensation review process: Pass
  • Other executive compensation review process: Pass
  • Form 990 shared with the board: Pass
  • Board meeting minutes documented: Pass
  • Audit committee oversight: Pass
  • Independent financial-statement audit: Pass

Sustainability

• Operating margin: 6.8%; rating input score 59; 59th percentile among comparable filings
• Total-asset coverage ratio: 1.04; rating input score 37; 37th percentile among comparable filings
• Liabilities to assets ratio: 0.14; rating input score 67; 67th percentile among comparable filings
• Officer compensation ratio: 10.1%; rating input score 20; 20th percentile among comparable filings

Growth

• Program expense growth: 5.5% per year; rating input score 100; 45th percentile among comparable filings
• Revenue growth: 4.2% per year; rating input score 100; 36th percentile among comparable filings
• Asset growth: -0.8% per year; rating input score 0; 8th percentile among comparable filings