Nick Gilbert Neurofibromatosis Research Institute
Nonprofit profile at a glance
- EIN
- 993110088
- IRS 990-EZ coverage
- 2024–2024
- Forms available
- Form 990-EZ 2024
- Location
- Detroit, MI, USA
- Phone
- 3133733977
- Rating
- 45
- Verdict
- MIXED
- Rating confidence
- Moderate
- Sector
- Medical Research N.E.C.
Reported finances
- Revenue
- $150,000
- Expenses
- $1
- Assets
- $149,999
- Liabilities
- $0
Source: IRS Form 990-EZ. Selected filing: tax year 2024. Amounts in USD.
Leadership & pay
5 people listed
Executive titles in this filing
- LAURA GRANNEMANN (PRESIDENT, DIRECTOR)
People named in this filing
- LAURA GRANNEMANN (PRESIDENT, DIRECTOR)
- JEFFREY MORGANROTH (SECRETARY, DIRECTOR)
- MATTHEW RIZIK (TREASURER, DIRECTOR)
Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.
Source: IRS Form 990-EZ. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.
Overview
Mission
The principal purpose of the institute is to actively and continuously engage directly in the conduct of medical research, both on its own and in conjunction with one or more hospitals and universities. The institute has begun its initial efforts in scientific and medical research to accelerate the development of research findings and technologies that will lead to the creation of new medicines, new diagnostics, and other enabling products to treat patients with neurofibromatosis ("nf") and other debilitating neuronal diseases and related conditions. In the current year, the institute has established research partnerships and began construction on its operational space.
Operating model
- Revenue model
- Donor-supported. 100% of the money available for current operations came from contributions and gifts.
- Distribution model
- No current program activity. The filing reports no program spending for the current year.
The verdict
MIXED - The filed numbers largely add up and revenue comfortably covers expenses. A relatively small share of available resources goes toward mission work and a relatively small share of total spending goes to programs.
Rating breakdown
- Financial Efficiency: 0
- Transparency & Controls: 100
- Sustainability: 93
- Growth: NotEnoughData
Detailed rating inputs
Financial Efficiency
- Mission deployment rate: 0%; rating input score 0
- Program expense ratio: 0%; rating input score 0
Transparency & Controls
- Consistency checks: 100%; rating input score 100; 52nd percentile among comparable filings
- Major donor itemization: Yes; rating input score 100
Sustainability
- Operating margin: 100%; rating input score 100; 100th percentile among comparable filings
- Total-asset coverage ratio: 149,999; rating input score 100; 100th percentile among comparable filings
- Liabilities to assets ratio: 0; rating input score 76; 76th percentile among comparable filings
- Officer compensation ratio: 0%; rating input score 63; 63rd percentile among comparable filings
Growth
- Program expense growth: Limited
- Revenue growth: Limited
- Asset growth: Limited
Details
- Where the money goes: 0% of revenue deployed · 0% of spending went to programs
- Governance: Filed governance answers
- Accomplishments: 1 filed program accomplishment
- Leadership: top reported pay $0 · 5 people listed
- Consistency: 8 of 8 current checks pass
- Schedules: 3 filed schedules
- Contacts: How to reach this organization
- Related organizations: Filed and resolved organization relationships.
- Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
- People: Everyone the filings name, and which of them the filings identify by more than a name.
Key Signals
Signals prioritize questions for review. They are not findings of misconduct.
- High — Financial Efficiency: Mission deployment rate scored 0/100.
- High — Financial Efficiency: Program expense ratio scored 0/100.