Nextgen Als Inc

Nonprofit profile at a glance

EIN
931519525
IRS 990 coverage
2024–2025
Forms available
Form 990 2025, Form 990-N 2023
Location
Greenville, WI, USA
Phone
9202136866
Rating
66
Verdict
SUPPORTED
Rating confidence
Moderate
Sector
Nerve, Muscle and Bone Diseases

Official website

Reported finances

Revenue
$322,742
Expenses
$102,590
Assets
$386,826
Liabilities
$0

Source: IRS Form 990. Selected filing: tax year 2025. Amounts in USD.

Leadership & pay

10 people listed

Executive titles in this filing

  • Richard Weber (Vice-President)
  • Catherine Kettner (President)
  • Mike Driessen (Successor to the President)
  • Sawyer Kossl (Successor to the Vice President)

People named in this filing

  • Greg (Kettner)
  • Richard Weber (Vice-President)
  • Catherine Kettner (President)

Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.

Source: IRS Form 990. Selected filing: tax year 2025. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

NextGen ALS is entirely committed to raising funds for targeted research toward developing treatments and cures for genetic forms of ALS.

What it reported doing in 2025

Grant given to Columbia University for the benefit of its Vagelos College of Physicians and Surgeons, Department of Neurology Department? s clinical research on the efficacy of nL-CHCHD-001 in motor neuron function in ALS patients, as part of the Silence ALS and ALS Families Projects, currently being conducted by Neil Shneider, M.D., Ph.D.

Operating model

Revenue model
Donor-supported. 100% of the money available for current operations came from contributions and gifts.
Distribution model
Grant intermediary. The nonprofit sent 100% of its reported program spending out as grants.

The verdict

SUPPORTED - The filed numbers largely add up and most voting board members are independent. A relatively small share of available resources goes toward mission work and some filing-based governance responses are negative or unanswered.

Rating breakdown

  • Financial Efficiency: 43
  • Transparency & Controls: 90
  • Accountability: 64
  • Sustainability: 83
  • Growth: 100

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 23.2%; rating input score 23
  • Program expense ratio: 73.1%; rating input score 73
  • Fundraising efficiency: $18.69 raised per $1 spent on fundraising; rating input score 53; 53rd percentile among comparable filings

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 64th percentile among comparable filings
  • Pay-setting controls: Limited
  • Foreign activity oversight: Limited
  • Grant itemization coverage: Limited
  • Major donor itemization: Limited
  • Related-party transparency: Limited

Accountability

  • Independent voting board: 100%; rating input score 100; 64th percentile among comparable filings
  • Governance controls: 1 of 7 controls in place; rating input score 14
    • Conflict-of-interest policy: Fail
    • Whistleblower policy: Fail
    • Document-retention policy: Fail
    • CEO compensation review process: NotApplicable
    • Other executive compensation review process: NotApplicable
    • Form 990 shared with the board: Fail
    • Board meeting minutes documented: Pass
    • Audit committee oversight: Missing
    • Independent financial-statement audit: Fail

Sustainability

  • Operating margin: 68.2%; rating input score 95; 95th percentile among comparable filings
  • Total-asset coverage ratio: 3.77; rating input score 74; 74th percentile among comparable filings
  • Liabilities to assets ratio: 0; rating input score 77; 77th percentile among comparable filings
  • Officer compensation ratio: 0%; rating input score 67; 67th percentile among comparable filings

Growth

  • Program expense growth: 88.5% per year; rating input score 100; 98th percentile among comparable filings
  • Revenue growth: 44.9% per year; rating input score 100; 96th percentile among comparable filings
  • Asset growth: 79.4% per year; rating input score 100; 98th percentile among comparable filings

Details

  • Where the money goes: 23.2% of revenue deployed · 73.1% of spending went to programs
  • Governance: 5 of 5 board members independent · 1 of 7 filing controls reported
  • Programs: 3 filed program accomplishments · $75K in reported program spending
  • Leadership: top reported pay $0 · 10 people listed
  • Consistency: 19 of 19 current checks pass
  • Schedules: 3 filed schedules
  • Filing history: 2 filing years from 2024 to 2025
  • Contacts: How to reach this organization
  • Money network: Resolved incoming and outgoing counterparties from filed money flows.
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • High — Financial Efficiency: Mission deployment rate scored 23/100.
  • High — Accountability: Governance controls: 5 of 6 not reported.
  • Review — Financial Efficiency: Fundraising efficiency scored 53/100.