New Jersey Center for Tourette Syndrome and Associated Disorders
Nonprofit profile at a glance
- EIN
- 261388409
- IRS 990 coverage
- 2012–2024
- Forms available
- Form 990 2024
- Location
- Somerville, NJ, USA
- Phone
- 9085757350
- Rating
- 68
- Verdict
- SUPPORTED
- Rating confidence
- Moderate
- Sector
- Public Health Program (Includes General Health and Wellness Promotion Services)
Reported finances
- Revenue
- $1,368,611
- Expenses
- $1,193,429
- Assets
- $1,702,074
- Liabilities
- $215,772
Source: IRS Form 990. Selected filing: tax year 2024. Amounts in USD.
Leadership & pay
12 people listed
Highest reported compensation
- SANTINA REICHENBACH (ASST EXEC DI): $128,610 total reported compensation
- HILARY KRUCHOWY (EXECUTIVE DI): $114,750 total reported compensation
Source: IRS Form 990. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.
Overview
Mission
Mission statement to ensure children and adults with tourette syndrome are empowered and accepted through education, advocacy and research. Vision statement a community in which those with ts and associated disorders are understood and empowered. The vision statement makes a commitment to the future where ts will no longer be misunderstood and unrecognized as a condition that currently affects one million people in the united states. Values f - forward thinking - innovative approach to managing all areas of the business. A - accepting - creating a community where people with ts are accepted. I - inspiring - empowering those with ts to self-advocate. T - transformative - changing the lives of those affected by the disorder. H - holistic - looking behind the ts and seeing the whole person.
What it reported doing in 2024
The New Jersey center for tourette syndrome (njcts) is the state's only organization exclusively dedicated to serving individuals with tourette syndrome (ts), a neurological disorder characterized by involuntary movements and vocal tics. The cdc estimates that 1 in 50 school-aged children lives with ts or a persistent tic disorder. Njcts's mission is to empower individuals with ts and associated disorders while fostering a culture of acceptance and understanding. We fulfill this mission through a comprehensive suite of programs, including camp fantastic, the tim howard leadership academy, physician referrals, school in-service trainings, medical grand rounds, teen programs, the rutgers ts clinic, and monthly webinars, ensuring meaningful support across all stages of life.
Operating model
- Revenue model
- Grant-funded. 62% of the money available for current operations came from government grants.
- Distribution model
- Direct operator. The filing allocates 88% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.
- Includes noncash contributions: Reported contributions include donated property or goods.
The verdict
SUPPORTED - The filed numbers largely add up and a large share of available resources goes toward mission work. A relatively small share of voting board members are independent and fundraising costs are high for each dollar raised.
Rating breakdown
- Financial Efficiency: 60
- Transparency & Controls: 94
- Accountability: 42
- Sustainability: 53
- Growth: 100
Detailed rating inputs
Financial Efficiency
- Mission deployment rate: 62.5%; rating input score 62
- Program expense ratio: 69.2%; rating input score 69
- Fundraising efficiency: $6.16 raised per $1 spent on fundraising; rating input score 23; 23rd percentile among comparable filings
Transparency & Controls
- Consistency checks: 100%; rating input score 100; 63rd percentile among comparable filings
- Pay-setting controls: Limited
- Foreign activity oversight: Limited
- Grant itemization coverage: 100%; rating input score 100; 76th percentile among comparable filings
- Major donor itemization: Yes; rating input score 100
- Related-party transparency: Limited
Accountability
- Independent voting board: 0%; rating input score 0; 5th percentile among comparable filings
- Governance controls: 8 of 8 controls in place; rating input score 100
- Conflict-of-interest policy: Pass
- Whistleblower policy: Pass
- Document-retention policy: Pass
- CEO compensation review process: Pass
- Other executive compensation review process: NotApplicable
- Form 990 shared with the board: Pass
- Board meeting minutes documented: Pass
- Audit committee oversight: Pass
- Independent financial-statement audit: Pass
Sustainability
- Operating margin: 12.8%; rating input score 66; 66th percentile among comparable filings
- Total-asset coverage ratio: 1.43; rating input score 54; 54th percentile among comparable filings
- Liabilities to assets ratio: 0.13; rating input score 39; 39th percentile among comparable filings
- Officer compensation ratio: 20.4%; rating input score 14; 14th percentile among comparable filings
Growth
- Program expense growth: 5.6% per year; rating input score 100; 45th percentile among comparable filings
- Revenue growth: 5.7% per year; rating input score 100; 48th percentile among comparable filings
- Asset growth: 2.6% per year; rating input score 100; 28th percentile among comparable filings
Details
- Where the money goes: 62.5% of revenue deployed · 69.2% of spending went to programs
- Governance: 0 of 10 board members independent · 8 of 8 filing controls reported
- Programs: 1 filed program accomplishment · $826K in reported program spending
- Leadership: top reported pay $129K · 12 people listed
- Consistency: 29 of 29 current checks pass
- Schedules: 6 filed schedules · includes major donors and grants
- Filing history: 13 filing years from 2012 to 2024
- Contacts: How to reach this organization
- Money network: 5 filed money-flow records
- Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
- People: Everyone the filings name, and which of them the filings identify by more than a name.
- Staff and benefit plans: Retirement and health plans the organization files with the Department of Labor, and the people in them.
Key Signals
Signals prioritize questions for review. They are not findings of misconduct.
- High — Accountability: Independent voting board scored 0/100.
- High — Financial Efficiency: Fundraising efficiency scored 23/100.
- Review — Sustainability: Total-asset coverage ratio scored 54/100.
- High — Sustainability: Officer compensation ratio scored 14/100.
- Moderate — Sustainability: Liabilities to assets ratio scored 39/100.