Neurofibromatosis Clinics Assn Inc

Nonprofit profile at a glance

EIN
251763156
IRS 990-EZ coverage
2019–2025
Forms available
Form 990-EZ 2025
Location
Pittsburgh, PA, USA
Phone
4122423624
Rating
76
Verdict
SUPPORTED
Rating confidence
Moderate
Sector
Health - General and Rehabilitative N.E.C.

Reported finances

Revenue
$62,269
Expenses
$35,476
Assets
$216,394

Source: IRS Form 990-EZ. Selected filing: tax year 2025. Amounts in USD.

Leadership & pay

9 people listed

Executive titles in this filing

  • WANDA WYBORSKI (PRESIDENT)

People named in this filing

  • WANDA WYBORSKI (PRESIDENT)
  • JEFFREY KRAMER (VICE PRESIDE)
  • JOYCE TREW (TREASURER)

Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.

Source: IRS Form 990-EZ. Selected filing: tax year 2025. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

Enhancing the lives of the nfca community via social services, tutoring scholarships, post secondary school scholarships, support groups and promoting public awareness.

What it reported doing in 2025

Nfca sponsored various programs and activities for the benefit of neurofibromatosis patients such as an octoberfest dinner, a laser tag funfest game day and the sending of individuals to camp.

Operating model

Revenue model
Other-operating. 79% of the money available for current operations came from other operating revenue.
Distribution model
Grant intermediary. The nonprofit sent 78% of its reported program spending out as grants.

The verdict

SUPPORTED - A large share of available resources goes toward mission work and the filed numbers largely add up. Program spending has declined or grown slowly and reported officer compensation is a large share of total spending, which may reflect staffing concentration.

Rating breakdown

  • Financial Efficiency: 74
  • Transparency & Controls: 82
  • Sustainability: 73
  • Growth: 60

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 60.2%; rating input score 60
  • Program expense ratio: 95.8%; rating input score 96

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 51st percentile among comparable filings
  • Major donor itemization: Limited

Sustainability

  • Operating margin: 43%; rating input score 87; 87th percentile among comparable filings
  • Total-asset coverage ratio: 6.1; rating input score 86; 86th percentile among comparable filings
  • Liabilities to assets ratio: Limited
  • Officer compensation ratio: 0%; rating input score 56; 56th percentile among comparable filings

Growth

  • Program expense growth: -15.2% per year; rating input score 0; 23rd percentile among comparable filings
  • Revenue growth: 7% per year; rating input score 100; 75th percentile among comparable filings
  • Asset growth: 17.6% per year; rating input score 100; 82nd percentile among comparable filings

Details

  • Where the money goes: 60.2% of revenue deployed · 95.8% of spending went to programs
  • Governance: Filed governance answers
  • Accomplishments: 3 filed program accomplishments · $34K in reported program spending
  • Leadership: top reported pay $0 · 9 people listed
  • Consistency: 7 of 7 current checks pass
  • Schedules: 3 filed schedules
  • Filing history: 7 filing years from 2019 to 2025
  • Contacts: How to reach this organization
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • High — Growth: Program expense growth scored 0/100.
  • Review — Sustainability: Officer compensation ratio scored 56/100.