Neuro-Oncology Support Community

Nonprofit profile at a glance

EIN
994070329
IRS 990-EZ coverage
2025–2025
Forms available
Form 990-EZ 2025, Form 990-N 2024
Location
Rockledge, FL, USA
Phone
3213945594
Rating
57
Verdict
MIXED
Rating confidence
Moderate
Sector
Cancer

Reported finances

Revenue
$92,763
Expenses
$23,631
Assets
$82,586
Liabilities
$5,033

Source: IRS Form 990-EZ. Selected filing: tax year 2025. Amounts in USD.

Leadership & pay

5 people listed

Executive titles in this filing

  • Sherry Thorpe (Secretary and Executive Director)
  • Dianne Waters (Vice-President)
  • Robert Cavaliere (President)

People named in this filing

  • Lorie (Rogan)
  • Shari Dowd (Support Group Chair)
  • Sherry Thorpe (Secretary and Executive Director)

Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.

Source: IRS Form 990-EZ. Selected filing: tax year 2025. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

Primary Mission: Growing and supporting a community for all those who have been impacted by life-altering brain and spine tumors. While many cancer organizations exist none are dedicated exclusively to addressing the unique day to day challenges faced by this cohort of patients caregivers former caregivers and clinicians.

What it reported doing in 2025

Monthly Brain Tumor Night Off Events reduce social isolation and build community awareness. We are establishing a community that supports one another so that no one walks this path alone. Brain and spine tumors can lead to significant declines in neurological function mobility and cognition making even simple tasks overwhelming. The resulting emotional stress and social isolation are profound. These events give patients and caregivers the chance to share experiences find solidarity and reclaim moments of normalcy away from the clinical environment. We have provided shared experiences and meals to over 400 members of the brain and spine tumor community.

Operating model

Revenue model
Donor-supported. 100% of the money available for current operations came from contributions and gifts.
Distribution model
Direct operator. The filing allocates 100% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.

The verdict

MIXED - The filed numbers largely add up and revenue comfortably covers expenses. A relatively small share of available resources goes toward mission work and a relatively small share of total spending goes to programs.

Rating breakdown

  • Financial Efficiency: 27
  • Transparency & Controls: 100
  • Sustainability: 77
  • Growth: NotEnoughData

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 12.7%; rating input score 13
  • Program expense ratio: 50%; rating input score 50

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 51st percentile among comparable filings
  • Major donor itemization: Yes; rating input score 100

Sustainability

  • Operating margin: 74.5%; rating input score 96; 96th percentile among comparable filings
  • Total-asset coverage ratio: 3.49; rating input score 78; 78th percentile among comparable filings
  • Liabilities to assets ratio: 0.06; rating input score 17; 17th percentile among comparable filings
  • Officer compensation ratio: 0%; rating input score 56; 56th percentile among comparable filings

Growth

  • Program expense growth: Limited
  • Revenue growth: Limited
  • Asset growth: Limited

Details

  • Where the money goes: 12.7% of revenue deployed · 50% of spending went to programs
  • Governance: Filed governance answers
  • Accomplishments: 2 filed program accomplishments · $12K in reported program spending
  • Leadership: top reported pay $0 · 5 people listed
  • Consistency: 9 of 9 current checks pass
  • Schedules: 4 filed schedules
  • Contacts: How to reach this organization
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • High — Financial Efficiency: Mission deployment rate scored 13/100.
  • Review — Financial Efficiency: Program expense ratio scored 50/100.
  • High — Sustainability: Liabilities to assets ratio scored 17/100.
  • Review — Sustainability: Officer compensation ratio scored 56/100.