National Tbi Traumatic Brain Injury Registry Coalition

Nonprofit profile at a glance

EIN
872947772
IRS 990 coverage
2022–2025
Forms available
Form 990 2025
Location
Washington, DC, USA
Phone
2025771370
Rating confidence
Limited

Official website

Reported finances

Revenue
$0
Expenses
$9,513
Assets
$0
Liabilities
$0

Source: IRS Form 990. Selected filing: tax year 2025. Amounts in USD.

Leadership & pay

3 people listed

Executive titles in this filing

  • JULIE P PAWELCZYK (EXECUTIVE DIRECTOR)

People named in this filing

  • GAVIN ATWOOD (CHAIRMAN)
  • JULIE P PAWELCZYK (EXECUTIVE DIRECTOR)
  • TOM FAGLEY (TREASURER)

Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.

Source: IRS Form 990. Selected filing: tax year 2025. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

The national tbi registry coalition (ntrc) is a collaborative alliance of nonprofit and corporate organizations dedicated to working with the federal government to create a national registry for individuals living with a traumatic brain injury (tbi). This coalition seeks to join industry partners, nonprofit organizations, and other advocacy groups to amplify collective voices around a common goal to improve reporting and equalizing access to services and therapies for individuals living with a brain injury.

What it reported doing in 2025

Lobbying for prevention opportunities, as well as to provide easily accessible information for individuals and families to address traumatic brain injuries (tbi), including where to seek care, opportunities for clinical trials, and advances in scientific research. Additionally, the ntrc supports a national tbi registry to share information about services and therapies to address co-morbidities commonly experienced by individuals with tbi. As leaders in the tbi community, ntrc member organizations are working together to promote public awareness about tbi, and the impact they have on individuals and families.

Operating model

Revenue model
No positive adjusted resources. The filing reports no positive adjusted operating resources.
Distribution model
No current program activity. The filing reports no program spending for the current year.

The verdict

- The available evidence is not sufficient to produce an overall rating for this filing. This is not a warning sign.

Rating breakdown

  • Financial Efficiency: 0
  • Transparency & Controls: 90
  • Accountability: 88
  • Sustainability: 8
  • Growth: 0

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: Limited
  • Program expense ratio: 0%; rating input score 0
  • Fundraising efficiency: Limited

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 63rd percentile among comparable filings
  • Pay-setting controls: Limited
  • Foreign activity oversight: Limited
  • Grant itemization coverage: Limited
  • Major donor itemization: Limited
  • Related-party transparency: Limited

Accountability

  • Independent voting board: 100%; rating input score 100; 64th percentile among comparable filings
  • Governance controls: 5 of 7 controls in place; rating input score 71
    • Conflict-of-interest policy: Pass
    • Whistleblower policy: Pass
    • Document-retention policy: Pass
    • CEO compensation review process: NotApplicable
    • Other executive compensation review process: NotApplicable
    • Form 990 shared with the board: Pass
    • Board meeting minutes documented: Pass
    • Audit committee oversight: Missing
    • Independent financial-statement audit: Fail

Sustainability

  • Operating margin: Limited
  • Total-asset coverage ratio: 0; rating input score 3; 3rd percentile among comparable filings
  • Liabilities to assets ratio: Limited
  • Officer compensation ratio: 0%; rating input score 58; 58th percentile among comparable filings

Growth

  • Program expense growth: -85.7% per year; rating input score 0; 3rd percentile among comparable filings
  • Revenue growth: -85.7% per year; rating input score 0; 5th percentile among comparable filings
  • Asset growth: -70.3% per year; rating input score 0; 2nd percentile among comparable filings

Details

  • Where the money goes: 0% of spending went to programs
  • Governance: 2 of 2 board members independent · 5 of 7 filing controls reported
  • Programs: 1 filed program accomplishment
  • Leadership: top reported pay $0 · 3 people listed
  • Consistency: 13 of 13 current checks pass
  • Schedules: 3 filed schedules
  • Filing history: 3 filing years from 2022 to 2025
  • Contacts: How to reach this organization
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • High — Financial Efficiency: Program expense ratio scored 0/100.
  • High — Sustainability: Total-asset coverage ratio scored 3/100.
  • High — Growth: Program expense growth scored 0/100.
  • High — Growth: Revenue growth scored 0/100.
  • Review — Accountability: Governance controls: Independent financial-statement audit not reported.
  • High — Growth: Asset growth scored 0/100.
  • Review — Sustainability: Officer compensation ratio scored 58/100.