National Organization for Albinism and Hypopigmentation
Nonprofit profile at a glance
- EIN
- 232265173
- IRS 990 coverage
- 2010–2024
- Forms available
- Form 990 2024
- Location
- East Hampstead, NH, USA
- Phone
- 6038872310
- Rating
- 68
- Verdict
- SUPPORTED
- Rating confidence
- Moderate
Reported finances
- Revenue
- $731,189
- Expenses
- $690,433
- Assets
- $637,594
- Liabilities
- $3,400
Source: IRS Form 990. Selected filing: tax year 2024. Amounts in USD.
Leadership & pay
14 people listed
People named in this filing
- BRANDI DARBY THROUGH 6424 (BOARD MEMBER)
- SONJA HARRIS EFF 6424 (BOARD VICE C)
- TOREY ALFORD (TREASURER)
Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.
Source: IRS Form 990. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.
Overview
Mission
Noah's mission is to act as a conduit for accurate and authoritative information about all aspects of living with albinism and to provide a place where people with albinism and their families in the u.s. And canada can find acceptance, support and fellowship.
What it reported doing in 2024
Biennial national grants - annual grants to support programs that promote albinism awareness and education
Operating model
- Revenue model
- Donor-supported. 61% of the money available for current operations came from contributions and gifts.
- Distribution model
- Direct operator. The filing allocates 88% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.
The verdict
SUPPORTED - The filed numbers largely add up and most voting board members are independent. A relatively small share of available resources goes toward mission work and the filing reports few safeguards for money sent abroad.
Rating breakdown
- Financial Efficiency: 52
- Transparency & Controls: 72
- Accountability: 88
- Sustainability: 54
- Growth: 100
Detailed rating inputs
Financial Efficiency
- Mission deployment rate: 58.7%; rating input score 59
- Program expense ratio: 59%; rating input score 59
- Fundraising efficiency: Limited
Transparency & Controls
- Consistency checks: 100%; rating input score 100; 63rd percentile among comparable filings
- Pay-setting controls: Limited
- Foreign activity oversight: 0 of 8 controls in place; rating input score 0
- Claims monitoring procedures: Fail
- Requires narrative reports: Fail
- Conducts field audits: Fail
- May suspend future funding: Fail
- Requires financial reports: Fail
- Conducts site visits: Fail
- Requires grant agreements: Fail
- May require repayment: Fail
- Grant itemization coverage: 100%; rating input score 100; 76th percentile among comparable filings
- Major donor itemization: Limited
- Related-party transparency: Limited
Accountability
- Independent voting board: 100%; rating input score 100; 63rd percentile among comparable filings
- Governance controls: 5 of 7 controls in place; rating input score 71
- Conflict-of-interest policy: Pass
- Whistleblower policy: Pass
- Document-retention policy: Pass
- CEO compensation review process: NotApplicable
- Other executive compensation review process: NotApplicable
- Form 990 shared with the board: Fail
- Board meeting minutes documented: Pass
- Audit committee oversight: Missing
- Independent financial-statement audit: Pass
Sustainability
- Operating margin: 5.6%; rating input score 51; 51st percentile among comparable filings
- Total-asset coverage ratio: 0.92; rating input score 40; 40th percentile among comparable filings
- Liabilities to assets ratio: 0.01; rating input score 73; 73rd percentile among comparable filings
- Officer compensation ratio: 0%; rating input score 81; 81st percentile among comparable filings
Growth
- Program expense growth: 2.9% per year; rating input score 100; 31st percentile among comparable filings
- Revenue growth: 5.1% per year; rating input score 100; 44th percentile among comparable filings
- Asset growth: 5.3% per year; rating input score 100; 40th percentile among comparable filings
Details
- Where the money goes: 58.7% of revenue deployed · 59% of spending went to programs
- Governance: 12 of 12 board members independent · 5 of 7 filing controls reported
- Programs: 4 filed program accomplishments · $407K in reported program spending
- Leadership: top reported pay $0 · 14 people listed
- Consistency: 31 of 31 current checks pass
- Schedules: 6 filed schedules · includes foreign activity and grants
- Filing history: 14 filing years from 2010 to 2024
- Contacts: How to reach this organization
- Money network: 2 filed money-flow records
- Related organizations: 1 filed related-organization link
- Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
- People: Everyone the filings name, and which of them the filings identify by more than a name.
Key Signals
Signals prioritize questions for review. They are not findings of misconduct.
- Review — Financial Efficiency: Mission deployment rate scored 59/100.
- High — Transparency & Controls: Foreign activity oversight: 8 of 8 not reported.
- Review — Financial Efficiency: Program expense ratio scored 59/100.
- Review — Accountability: Governance controls: Form 990 shared with the board not reported.
- Review — Sustainability: Operating margin scored 51/100.
- Moderate — Sustainability: Total-asset coverage ratio scored 40/100.