National Multiple Sclerosis Society

Nonprofit profile at a glance

EIN
135661935
IRS 990 coverage
2009–2024
Official website data refreshed
Sep 2026
Forms available
Form 990 2024, Form 990-T 2024
Location
New York, NY, USA
Phone
8553721331
Rating
78
Verdict
SUPPORTED
Rating confidence
Moderate
Sector
Nerve, Muscle and Bone Diseases

Official website

Reported finances

Revenue
$161,966,823
Expenses
$155,704,344
Assets
$189,195,287
Liabilities
$66,611,316

Source: IRS Form 990. Selected filing: tax year 2024. Amounts in USD.

Leadership & pay

48 people listed

Executive titles in this filing

  • TIMOTHY COETZEE (PRESIDENT & CEO (AS OF 07/2024))
  • CYNTHIA ZAGIEBOYLO (FMR. PRESIDENT & CEO(THRU 07/2024))

Highest reported compensation

  • TIMOTHY COETZEE (PRESIDENT & CEO (AS OF 07/2024)): $566,633 total reported compensation
  • CYNTHIA BERTRANDO (CHIEF FINANCIAL OFFICER): $465,893 total reported compensation
  • CYNTHIA ZAGIEBOYLO (FMR. PRESIDENT & CEO(THRU 07/2024)): $419,424 total reported compensation

Source: IRS Form 990. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

We drive the most promising research to stop MS, restore lost function and end this disease forever.

What it reported doing in 2024

Client and community services (see schedule o)client and community services - the society empowers people affected by ms to solve everyday challenges. We believe that when individuals are informed, connected and supported by loved ones, communities, healthcare providers and the society, they experience an improved quality of life, increased confidence, new connections, and take positive actions toward living their best lives. We achieve this by serving as a trusted source of support, offering educational programs, reliable information, and one-on-one guidance through ms navigators. We also foster connections between people impacted by ms, providing emotional support and a sense of community. In fiscal 2025, ms navigators assisted 22,980 individuals in connecting to critical resources such as ms education and information, healthcare, financial, emotional, and personalized case management support. The society delivered over 96 virtual and in-person educational programs, reaching 1,786 attendees. Programs were made available on demand, allowing an additional 268,996 individuals to engage with the content. Topics included symptom management, treatment options, and wellness strategies. Approximately 654 active support group leaders spanned the country, helping provide connections both in-person and within virtual setting for people living with ms and their loved ones. 1,042 individuals were referred by their healthcare provider to the national ms society to receive information and support in managing ms.as a result of these client and community services, 72% of participating individuals feel more confident in addressing challenges of ms, and 78% of individuals made new connections to information, people, and other sources of support.these programs and support directly advance our mission to cure ms while enpowering people affected by ms to live their best lives.

Operating model

Revenue model
Donor-supported. 95% of the money available for current operations came from contributions and gifts.
Distribution model
Hybrid. The nonprofit split its reported program spending across 76% for direct work, and 24% for grants.
  • Includes noncash contributions: Reported contributions include donated property or goods.

The verdict

SUPPORTED - A large share of available resources goes toward mission work and the filed numbers largely add up. The filing reports few safeguards for money sent abroad and fundraising costs are high for each dollar raised.

Rating breakdown

  • Financial Efficiency: 68
  • Transparency & Controls: 81
  • Accountability: 93
  • Sustainability: 49
  • Growth: 100

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 76.7%; rating input score 77
  • Program expense ratio: 70.5%; rating input score 71
  • Fundraising efficiency: $4.3 raised per $1 spent on fundraising; rating input score 17; 17th percentile among comparable filings

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 68th percentile among comparable filings
  • Pay-setting controls: 5 of 6 controls in place; rating input score 83
    • Compensation committee: Pass
    • Independent consultant: Pass
    • Other Form 990s reviewed: Pass
    • Written employment contract: Missing
    • Compensation survey or study: Pass
    • Board or committee approval: Pass
  • Foreign activity oversight: 2 of 8 controls in place; rating input score 25
    • Claims monitoring procedures: Pass
    • Requires narrative reports: Fail
    • Conducts field audits: Fail
    • May suspend future funding: Fail
    • Requires financial reports: Pass
    • Conducts site visits: Fail
    • Requires grant agreements: Fail
    • May require repayment: Fail
  • Grant itemization coverage: 100%; rating input score 100; 77th percentile among comparable filings
  • Major donor itemization: Yes; rating input score 100
  • Related-party transparency: Limited

Accountability

  • Independent voting board: 96.2%; rating input score 96; 50th percentile among comparable filings
  • Governance controls: 8 of 9 controls in place; rating input score 89
    • Conflict-of-interest policy: Pass
    • Whistleblower policy: Pass
    • Document-retention policy: Pass
    • CEO compensation review process: Pass
    • Other executive compensation review process: Fail
    • Form 990 shared with the board: Pass
    • Board meeting minutes documented: Pass
    • Audit committee oversight: Pass
    • Independent financial-statement audit: Pass

Sustainability

  • Operating margin: 3.9%; rating input score 52; 52nd percentile among comparable filings
  • Total-asset coverage ratio: 1.22; rating input score 46; 46th percentile among comparable filings
  • Liabilities to assets ratio: 0.35; rating input score 50; 50th percentile among comparable filings
  • Officer compensation ratio: 2.9%; rating input score 40; 40th percentile among comparable filings

Growth

  • Program expense growth: 1.6% per year; rating input score 100; 13th percentile among comparable filings
  • Revenue growth: 3.9% per year; rating input score 100; 31st percentile among comparable filings
  • Asset growth: 6.9% per year; rating input score 100; 50th percentile among comparable filings

Details

  • What they do: 16 programs and campaigns described on the official site · 1 operating location identified
  • Where the money goes: 76.7% of revenue deployed · 70.5% of spending went to programs
  • Governance: 25 of 26 board members independent · 8 of 9 filing controls reported
  • Programs: 4 filed program accomplishments · $109.8M in reported program spending
  • Leadership: top reported pay $567K · 48 people listed · 5 of 6 pay-setting controls reported
  • Highest-paid contractors: 5 contractors listed · $9.2M reported
  • Consistency: 47 of 47 current checks pass
  • Schedules: 11 filed schedules · includes major donors, foreign activity, grants, and executive pay
  • Filing history: 15 filing years from 2009 to 2024
  • Contacts: How to reach this organization
  • Money network: 107 filed money-flow records
  • Related organizations: 93 filed related-organization links
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.
  • Staff and benefit plans: Retirement and health plans the organization files with the Department of Labor, and the people in them.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • High — Transparency & Controls: Foreign activity oversight: 6 of 8 not reported.
  • High — Financial Efficiency: Fundraising efficiency scored 17/100.
  • Review — Sustainability: Operating margin scored 52/100.
  • Review — Accountability: Governance controls: Other executive compensation review process not reported.
  • Moderate — Sustainability: Total-asset coverage ratio scored 46/100.
  • Moderate — Sustainability: Officer compensation ratio scored 40/100.
  • Review — Sustainability: Liabilities to assets ratio scored 50/100.