National Alliance of Sickle Cell Centers

Nonprofit profile at a glance

EIN
854331176
IRS 990 coverage
2021–2024
Forms available
Form 990 2024
Location
Washington, DC, USA
Phone
2057613785
Rating
74
Verdict
SUPPORTED
Rating confidence
Moderate

Official website

Reported finances

Revenue
$527,453
Expenses
$391,349
Assets
$391,143
Liabilities
$0

Source: IRS Form 990. Selected filing: tax year 2024. Amounts in USD.

Leadership & pay

8 people listed

Executive titles in this filing

  • Julie Kanter Washko (President)
  • Sophie Lanzkron (Vice President)

Highest reported compensation

  • Mohan Madisetti SSPS (Consultant): $59,040 total reported compensation
  • Patricia Brown (Secretary): $32,125 total reported compensation
  • Laura Sandler (Research Admin): $24,853 total reported compensation

Source: IRS Form 990. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

Our mission is to support sickle cell disease centers in delivering high-quality comprehensive care by setting standards, promoting their adoption, identifying opportunities and resources to strengthen those centers, and advocating for access to comprehensive care to improve health outcomes, quality of life, and survival.

What it reported doing in 2024

The organizations successfully received initial funding for startup from industry companies and grant and contract funding to initiate retrospective studies to assess outcomes from new medications and therapies used in people with SCD. All current funds are encumbered minus operating expenses.

Operating model

Revenue model
Donor-supported. 100% of the money available for current operations came from contributions and gifts.
Distribution model
Grant intermediary. The nonprofit sent 65% of its reported program spending out as grants.

The verdict

SUPPORTED - A large share of available resources goes toward mission work and the filed numbers largely add up. Some filing-based governance responses are negative or unanswered and revenue has declined or grown slowly.

Rating breakdown

  • Financial Efficiency: 69
  • Transparency & Controls: 90
  • Accountability: 69
  • Sustainability: 62
  • Growth: 40

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 68.9%; rating input score 69
  • Program expense ratio: 92.6%; rating input score 93
  • Fundraising efficiency: Limited

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 63rd percentile among comparable filings
  • Pay-setting controls: Limited
  • Foreign activity oversight: Limited
  • Grant itemization coverage: Limited
  • Major donor itemization: Limited
  • Related-party transparency: Limited

Accountability

  • Independent voting board: 100%; rating input score 100; 63rd percentile among comparable filings
  • Governance controls: 2 of 8 controls in place; rating input score 25
    • Conflict-of-interest policy: Fail
    • Whistleblower policy: Fail
    • Document-retention policy: Fail
    • CEO compensation review process: NotApplicable
    • Other executive compensation review process: Fail
    • Form 990 shared with the board: Pass
    • Board meeting minutes documented: Pass
    • Audit committee oversight: Fail
    • Independent financial-statement audit: Fail

Sustainability

  • Operating margin: 25.8%; rating input score 81; 81st percentile among comparable filings
  • Total-asset coverage ratio: 1; rating input score 43; 43rd percentile among comparable filings
  • Liabilities to assets ratio: 0; rating input score 91; 91st percentile among comparable filings
  • Officer compensation ratio: 32.7%; rating input score 6; 6th percentile among comparable filings

Growth

  • Program expense growth: 31.3% per year; rating input score 100; 91st percentile among comparable filings
  • Revenue growth: -4.3% per year; rating input score 0; 6th percentile among comparable filings
  • Asset growth: -26.7% per year; rating input score 0; 1st percentile among comparable filings

Details

  • Where the money goes: 68.9% of revenue deployed · 92.6% of spending went to programs
  • Governance: 11 of 11 board members independent · 2 of 8 filing controls reported
  • Programs: 1 filed program accomplishment · $363K in reported program spending
  • Leadership: top reported pay $59K · 8 people listed
  • Consistency: 16 of 16 current checks pass
  • Schedules: 2 filed schedules
  • Filing history: 4 filing years from 2021 to 2024
  • Contacts: How to reach this organization
  • Money network: 4 filed money-flow records
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • High — Accountability: Governance controls: 6 of 8 not reported.
  • High — Growth: Revenue growth scored 0/100.
  • High — Growth: Asset growth scored 0/100.
  • Moderate — Sustainability: Total-asset coverage ratio scored 43/100.
  • High — Sustainability: Officer compensation ratio scored 6/100.