Myasthenia Gravis Foundation of America Inc
Nonprofit profile at a glance
- EIN
- 135672224
- IRS 990 coverage
- 2010–2025
- Forms available
- Form 990 2025, Form 990-N 2013
- Location
- Westborough, MA, USA
- Phone
- 9493073330
- Rating
- 73
- Verdict
- SUPPORTED
- Rating confidence
- Moderate
Reported finances
- Revenue
- $7,559,812
- Expenses
- $7,077,785
- Assets
- $15,271,954
- Liabilities
- $2,190,069
Source: IRS Form 990. Selected filing: tax year 2025. Amounts in USD.
Leadership & pay
28 people listed
Executive titles in this filing
- Samantha Masterson (Chief Executive Officer)
- Michael Antonellis (Vice President, Global Marketing and Communication)
- Danielle Kerkovich (Vice President, Global Research)
Highest reported compensation
- Samantha Masterson (Chief Executive Officer): $336,903 total reported compensation
- Craig Stenger (Chief Operating Officer): $203,969 total reported compensation
- Michael Antonellis (Vice President, Global Marketing and Communication): $178,314 total reported compensation
Source: IRS Form 990. Selected filing: tax year 2025. Names and roles reflect this filing, not necessarily current officeholders.
Overview
Mission
Committed to finding a cure for myasthenia gravis and closely related disorders, improving treatment options, and providing information and support to people with myasthenia gravis through research, education, community programs and advocacy.
What it reported doing in 2025
Information, Education and Support: The Myasthenia Gravis Foundation of America (MGFA) delivers broad support for people living with myasthenia gravis and their caregivers through education, community programs, and direct services. It provides accessible information, referrals, and structured support through a nationwide network of about 43 support groups, its Partners in MG Care program, and other affiliated networks. Its website serves as a central, trusted hub for up-to-date educational content, news, and disease management resources.MGFA organizes a wide range of interactive learning opportunities, including nearly 20 wellness and research webinars and 14 Community Health Fairs across the U.S. and Canada. These events allow patients and caregivers to connect with medical experts, learn about the latest research and treatments, and engage with industry leaders. The organization's annual National Patient Conference is a key gathering for the MG community, featuring research updates, patient experiences, and in-depth educational sessions designed to help individuals better manage their condition.Beyond education, MGFA fosters community engagement and awareness through platforms like Facebook and provides personalized support via its Patient Helpline, where licensed counselors assist individuals navigating the challenges of MG. It also convenes an annual Stakeholder Roundtable that brings together patients, healthcare professionals, and industry representatives to identify and address critical unmet needs. One major outcome of this collaboration is the Myasthenia Gravis Lexicon, a tool designed to improve communication between patients and healthcare providers.In addition to these ongoing efforts, MGFA also develops targeted support initiatives, such as a food insecurity program which was piloted this year that provided assistance to families during the holiday season, reflecting its broader commitment to addressing both medical and quality-of-life challenges faced by the MG community.
Operating model
- Revenue model
- Donor-supported. 84% of the money available for current operations came from contributions and gifts.
- Distribution model
- Direct operator. The filing allocates 85% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.
The verdict
SUPPORTED - A large share of available resources goes toward mission work and the filed numbers largely add up. Fundraising costs are high for each dollar raised and expenses are high relative to revenue.
Rating breakdown
- Financial Efficiency: 72
- Transparency & Controls: 65
- Accountability: 88
- Sustainability: 47
- Growth: 100
Detailed rating inputs
Financial Efficiency
- Mission deployment rate: 74.8%; rating input score 75
- Program expense ratio: 77.8%; rating input score 78
- Fundraising efficiency: $10.64 raised per $1 spent on fundraising; rating input score 38; 38th percentile among comparable filings
Transparency & Controls
- Consistency checks: 100%; rating input score 100; 63rd percentile among comparable filings
- Pay-setting controls: 1 of 6 controls in place; rating input score 17
- Compensation committee: Missing
- Independent consultant: Missing
- Other Form 990s reviewed: Missing
- Written employment contract: Missing
- Compensation survey or study: Missing
- Board or committee approval: Pass
- Foreign activity oversight: 1 of 8 controls in place; rating input score 12
- Claims monitoring procedures: Pass
- Requires narrative reports: Limited
- Conducts field audits: Limited
- May suspend future funding: Limited
- Requires financial reports: Limited
- Conducts site visits: Limited
- Requires grant agreements: Limited
- May require repayment: Limited
- Grant itemization coverage: 100%; rating input score 100; 75th percentile among comparable filings
- Major donor itemization: Yes; rating input score 100
- Related-party transparency: Limited
Accountability
- Independent voting board: 80%; rating input score 80; 16th percentile among comparable filings
- Governance controls: 9 of 9 controls in place; rating input score 100
- Conflict-of-interest policy: Pass
- Whistleblower policy: Pass
- Document-retention policy: Pass
- CEO compensation review process: Pass
- Other executive compensation review process: Pass
- Form 990 shared with the board: Pass
- Board meeting minutes documented: Pass
- Audit committee oversight: Pass
- Independent financial-statement audit: Pass
Sustainability
- Operating margin: 6.4%; rating input score 47; 47th percentile among comparable filings
- Total-asset coverage ratio: 2.16; rating input score 60; 60th percentile among comparable filings
- Liabilities to assets ratio: 0.14; rating input score 42; 42nd percentile among comparable filings
- Officer compensation ratio: 17%; rating input score 19; 19th percentile among comparable filings
Growth
- Program expense growth: 12.4% per year; rating input score 100; 68th percentile among comparable filings
- Revenue growth: 11.4% per year; rating input score 100; 70th percentile among comparable filings
- Asset growth: 6.6% per year; rating input score 100; 42nd percentile among comparable filings
Details
- Where the money goes: 74.8% of revenue deployed · 77.8% of spending went to programs
- Governance: 12 of 15 board members independent · 9 of 9 filing controls reported
- Programs: 3 filed program accomplishments · $5.5M in reported program spending
- Leadership: top reported pay $337K · 28 people listed · 1 of 6 pay-setting controls reported
- Consistency: 39 of 39 current checks pass
- Schedules: 9 filed schedules · includes major donors, foreign activity, grants, and executive pay
- Filing history: 15 filing years from 2010 to 2025
- Contacts: How to reach this organization
- Money network: 10 filed money-flow records
- Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
- People: Everyone the filings name, and which of them the filings identify by more than a name.
- Staff and benefit plans: Retirement and health plans the organization files with the Department of Labor, and the people in them.
Key Signals
Signals prioritize questions for review. They are not findings of misconduct.
- Moderate — Financial Efficiency: Fundraising efficiency scored 38/100.
- Moderate — Sustainability: Operating margin scored 47/100.
- High — Sustainability: Officer compensation ratio scored 19/100.
- Moderate — Sustainability: Liabilities to assets ratio scored 42/100.