Myasthenia Gravis Association
Nonprofit profile at a glance
- EIN
- 431699850
- IRS 990 coverage
- 2020–2024
- Forms available
- Form 990 2024
- Location
- Kansas City, MO, USA
- Phone
- 8162564100
- Rating
- 81
- Verdict
- STRONG
- Rating confidence
- Standard
- Sector
- Health Support Services
Reported finances
- Revenue
- $490,783
- Expenses
- $391,561
- Assets
- $675,665
- Liabilities
- $8,235
Source: IRS Form 990. Selected filing: tax year 2024. Amounts in USD.
Leadership & pay
15 people listed
Executive titles in this filing
- Allison Foss (Executive Director)
- Micheal Eagan (President)
- Brodie B Beck (Vice President)
Highest reported compensation
- Allison Foss (Executive Director): $76,577 total reported compensation
Source: IRS Form 990. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.
Overview
Mission
Together, we strive to build a supportive community for those affected by myasthenia gravis by increasing public awareness, providing educational opportunities, and fostering meaningful connections with one another.
What it reported doing in 2024
Client Assistance - One Hundred Fifty (150) clinic sessions provided service to 491 individuals. One hundred seventy-nine (179)new patient packets were distributed, and ninety-five (95) support group meetings were attended by 1,214 individuals.
Operating model
- Revenue model
- Donor-supported. 94% of the money available for current operations came from contributions and gifts.
- Distribution model
- Direct operator. The filing allocates 100% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.
- Includes noncash contributions: Reported contributions include donated property or goods.
The verdict
STRONG - The filed numbers largely add up and a large share of available resources goes toward mission work. Fundraising costs are high for each dollar raised and some filing-based governance responses are negative or unanswered.
Rating breakdown
- Financial Efficiency: 69
- Transparency & Controls: 93
- Accountability: 90
- Sustainability: 59
- Growth: 100
Detailed rating inputs
Financial Efficiency
- Mission deployment rate: 67.4%; rating input score 67
- Program expense ratio: 82%; rating input score 82
- Fundraising efficiency: $11.46 raised per $1 spent on fundraising; rating input score 43; 43rd percentile among comparable filings
Transparency & Controls
- Consistency checks: 92.3%; rating input score 92; 22nd percentile among comparable filings
- Pay-setting controls: Limited
- Foreign activity oversight: Limited
- Grant itemization coverage: Limited
- Major donor itemization: Yes; rating input score 100
- Related-party transparency: Limited
Accountability
- Independent voting board: 100%; rating input score 100; 63rd percentile among comparable filings
- Governance controls: 6 of 8 controls in place; rating input score 75
- Conflict-of-interest policy: Pass
- Whistleblower policy: Pass
- Document-retention policy: Pass
- CEO compensation review process: Pass
- Other executive compensation review process: NotApplicable
- Form 990 shared with the board: Pass
- Board meeting minutes documented: Pass
- Audit committee oversight: Missing
- Independent financial-statement audit: Fail
Sustainability
- Operating margin: 20.2%; rating input score 74; 74th percentile among comparable filings
- Total-asset coverage ratio: 1.73; rating input score 55; 55th percentile among comparable filings
- Liabilities to assets ratio: 0.01; rating input score 44; 44th percentile among comparable filings
- Officer compensation ratio: 19.6%; rating input score 20; 20th percentile among comparable filings
Growth
- Program expense growth: 24.3% per year; rating input score 100; 87th percentile among comparable filings
- Revenue growth: 17.5% per year; rating input score 100; 85th percentile among comparable filings
- Asset growth: 13.9% per year; rating input score 100; 75th percentile among comparable filings
Details
- Where the money goes: 67.4% of revenue deployed · 82% of spending went to programs
- Governance: 14 of 14 board members independent · 6 of 8 filing controls reported
- Programs: 2 filed program accomplishments · $321K in reported program spending
- Leadership: top reported pay $77K · 15 people listed
- Consistency: 27 of 28 current checks pass · 1 finding to review
- Schedules: 5 filed schedules · includes major donors
- Filing history: 4 filing years from 2020 to 2024
- Contacts: How to reach this organization
- Money network: 1 filed money-flow record
- Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
- People: Everyone the filings name, and which of them the filings identify by more than a name.
Key Signals
Signals prioritize questions for review. They are not findings of misconduct.
- Moderate — Financial Efficiency: Fundraising efficiency scored 43/100.
- Review — Accountability: Governance controls: Independent financial-statement audit not reported.
- Moderate — Transparency & Controls: Schedule A contributions reconciliation did not reconcile in the filed values.
- Review — Sustainability: Total-asset coverage ratio scored 55/100.
- High — Sustainability: Officer compensation ratio scored 20/100.
- Moderate — Sustainability: Liabilities to assets ratio scored 44/100.