Mowat-wilson Syndrome Foundation
Nonprofit profile at a glance
- EIN
- 463884135
- IRS 990-EZ coverage
- 2022–2024
- Forms available
- Form 990-EZ 2024, Form 990-N 2015
- Location
- Las Vegas, NV, USA
- Phone
- 7026585391
- Rating
- 92
- Verdict
- STRONG
- Rating confidence
- Moderate
- Sector
- Voluntary Health Associations & Medical Disciplines N.E.C.
Reported finances
- Revenue
- $156,720
- Expenses
- $213,643
- Assets
- $224,125
Source: IRS Form 990-EZ. Selected filing: tax year 2024. Amounts in USD.
Leadership & pay
11 people listed
Executive titles in this filing
- PAUL JACOBI (PRESIDENT)
People named in this filing
- ADAM BATCHELOR (VICE-PRESIDE)
- PAUL JACOBI (PRESIDENT)
- KAREN KEY (TREASURER)
Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.
Source: IRS Form 990-EZ. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.
Overview
Mission
The mission of the mowat-wilson syndrome foundation is to enhance the lives of people affected by mowat-wilson syndrome by providing family support, raising awareness, and supporting research and education.
What it reported doing in 2024
Programs used to enhance the lives of people affected by mowat-wilson syndrome by providing family support, raising awareness, and supporting research and education.
Operating model
- Revenue model
- Donor-supported. 68% of the money available for current operations came from contributions and gifts.
- Distribution model
- Hybrid. The nonprofit split its reported program spending across 73% for direct work, and 27% for grants.
The verdict
STRONG - A large share of available resources goes toward mission work and the filed numbers largely add up. Expenses are high relative to revenue and program spending has declined or grown slowly.
Rating breakdown
- Financial Efficiency: 95
- Transparency & Controls: 100
- Sustainability: 27
- Growth: 60
Detailed rating inputs
Financial Efficiency
- Mission deployment rate: 100%; rating input score 100
- Program expense ratio: 85.8%; rating input score 86
Transparency & Controls
- Consistency checks: 100%; rating input score 100; 52nd percentile among comparable filings
- Major donor itemization: Yes; rating input score 100
Sustainability
- Operating margin: -36.3%; rating input score 3; 3rd percentile among comparable filings
- Total-asset coverage ratio: 1.05; rating input score 61; 61st percentile among comparable filings
- Liabilities to assets ratio: Limited
- Officer compensation ratio: 0%; rating input score 63; 63rd percentile among comparable filings
Growth
- Program expense growth: -2.1% per year; rating input score 0; 24th percentile among comparable filings
- Revenue growth: 2.7% per year; rating input score 100; 35th percentile among comparable filings
- Asset growth: 16.6% per year; rating input score 100; 76th percentile among comparable filings
Details
- Where the money goes: 100% of revenue deployed · 85.8% of spending went to programs
- Governance: Filed governance answers
- Accomplishments: 1 filed program accomplishment · $183K in reported program spending
- Leadership: top reported pay $0 · 11 people listed
- Consistency: 7 of 7 current checks pass
- Schedules: 4 filed schedules
- Filing history: 3 filing years from 2022 to 2024
- Contacts: How to reach this organization
- Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
- People: Everyone the filings name, and which of them the filings identify by more than a name.
Key Signals
Signals prioritize questions for review. They are not findings of misconduct.
- High — Sustainability: Operating margin scored 3/100.
- High — Growth: Program expense growth scored 0/100.