Mary M. Gooley Hemophilia Center
Legal name: Mary M Gooley Hemophilia Center Inc
Nonprofit profile at a glance
- EIN
- 160836536
- IRS 990 coverage
- 2017–2024
- Official website data refreshed
- Sep 2026
- Forms available
- Form 990 2024
- Location
- Rochester, NY, US
- Phone
- 585-922-5700
- Rating
- 82
- Verdict
- STRONG
- Rating confidence
- Moderate
Reported finances
- Revenue
- $28,668,468
- Expenses
- $21,549,268
- Assets
- $35,957,224
- Liabilities
- $3,273,273
Source: IRS Form 990. Selected filing: tax year 2024. Amounts in USD.
Leadership & pay
14 people listed
Executive titles in this filing
- THOMAS WILMARTH (PRESIDENT & CEO)
Highest reported compensation
- THOMAS WILMARTH (PRESIDENT & CEO): $228,416 total reported compensation
- GREGORY LIGHTHOUSE CPA (CFO): $195,868 total reported compensation
- ERIC IGLEWSKI LMSW (VP OF CLINICAL SERVICES): $171,526 total reported compensation
Source: IRS Form 990. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.
Overview
Mission
To improve the quality of life for individuals with bleeding disorders through comprehensive care, education, and research.
What it reported doing in 2024
The center has approximately 366 bleeding disorder patients on its active caseload. In 2024, 231 unique patients with hemophilia, von willebrand disease and other rare clotting deficiencies were evaluated and treated. 66 patients with moderate and severe hemophilia attend specialized comprehensive care clinics at least once each year, receiving consultation from an onsite hematologist, nurse coordinator, social worker, physical therapist, orthopedic surgeon and dentist. The center has an on-site specialty pharmacy that provides clotting factor to 52 hemophilia patients via our home infusion program.
Operating model
- Revenue model
- Earned-program. 97% of the money available for current operations came from fees and other program revenue.
- Distribution model
- Direct operator. The filing allocates 100% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.
The verdict
STRONG - A large share of available resources goes toward mission work and the filed numbers largely add up. Fundraising costs are high for each dollar raised and total assets are small relative to annual expenses; liquid coverage is unknown.
Rating breakdown
- Financial Efficiency: 73
- Transparency & Controls: 81
- Accountability: 100
- Sustainability: 73
- Growth: 100
Detailed rating inputs
Financial Efficiency
- Mission deployment rate: 72.8%; rating input score 73
- Program expense ratio: 96.9%; rating input score 97
- Fundraising efficiency: $1.52 raised per $1 spent on fundraising; rating input score 4; 4th percentile among comparable filings
Transparency & Controls
- Consistency checks: 93.8%; rating input score 94; 17th percentile among comparable filings
- Pay-setting controls: 4 of 6 controls in place; rating input score 67
- Compensation committee: Missing
- Independent consultant: Pass
- Other Form 990s reviewed: Pass
- Written employment contract: Pass
- Compensation survey or study: Missing
- Board or committee approval: Pass
- Foreign activity oversight: Limited
- Grant itemization coverage: Limited
- Major donor itemization: Yes; rating input score 100
- Related-party transparency: Limited
Accountability
- Independent voting board: 100%; rating input score 100; 66th percentile among comparable filings
- Governance controls: 9 of 9 controls in place; rating input score 100
- Conflict-of-interest policy: Pass
- Whistleblower policy: Pass
- Document-retention policy: Pass
- CEO compensation review process: Pass
- Other executive compensation review process: Pass
- Form 990 shared with the board: Pass
- Board meeting minutes documented: Pass
- Audit committee oversight: Pass
- Independent financial-statement audit: Pass
Sustainability
- Operating margin: 24.8%; rating input score 85; 85th percentile among comparable filings
- Total-asset coverage ratio: 1.67; rating input score 55; 55th percentile among comparable filings
- Liabilities to assets ratio: 0.09; rating input score 75; 75th percentile among comparable filings
- Officer compensation ratio: 3.4%; rating input score 65; 65th percentile among comparable filings
Growth
- Program expense growth: 6.2% per year; rating input score 100; 51st percentile among comparable filings
- Revenue growth: 9.3% per year; rating input score 100; 71st percentile among comparable filings
- Asset growth: 24.3% per year; rating input score 100; 93rd percentile among comparable filings
Details
- What they do: 11 programs and campaigns described on the official site · 1 operating location identified
- Where the money goes: 72.8% of revenue deployed · 96.9% of spending went to programs
- Governance: 7 of 7 board members independent · 9 of 9 filing controls reported
- Programs: 4 filed program accomplishments · $20.9M in reported program spending
- Leadership: top reported pay $228K · 14 people listed · 4 of 6 pay-setting controls reported
- Highest-paid contractors: 1 contractor listed · $306K reported
- Consistency: 30 of 31 current checks pass · 1 finding to review
- Schedules: 7 filed schedules · includes major donors and executive pay
- Filing history: 8 filing years from 2017 to 2024
- Contacts: How to reach this organization
- Money network: 5 filed money-flow records
- Related organizations: Filed and resolved organization relationships.
- Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
- People: Everyone the filings name, and which of them the filings identify by more than a name.
- Staff and benefit plans: Retirement and health plans the organization files with the Department of Labor, and the people in them.
Key Signals
Signals prioritize questions for review. They are not findings of misconduct.
- High — Financial Efficiency: Fundraising efficiency scored 4/100.
- Review — Sustainability: Total-asset coverage ratio scored 55/100.
- Moderate — Transparency & Controls: Schedule A contributions reconciliation did not reconcile in the filed values.