Lorenzo's House

What it reported doing in 2025

Lorenzo's house empowers sons, daughters, children and their families affected by younger-onset dementia (those showing symptoms before age 65) through healing in community and advocating for dementia justice.lorenzo's house is the global hub of support for young people and families affected by younger-onset dementia (yod). We are a virtual, non-profit social impact organization serving family members, with a focus on youth - in 50 states and over 37 countries through our 3 pillar programs provided at no cost: match, clubs and summit.in 2025, we empowered 3,800+ family members, made 500+ carer to carer matches, held 220 clubs program sessions, 250+ youth registered for youth summit, all supported by 70+ trained volunteers, 50+ partnerships & collaborations and 450+ generous donors. We are creating a world where families affected by dementia are seen, understood and embraced and educating professionals to build a yod informed society. We heal in community through our 3 pillar programs - match, clubs & summit: match is one-on-one, carer to carer connection with a peer who understands. Match connects peers of a similar profile to exchange techniques, share resources and cure isolation. Our match connects young people (18+) and adults with a peer of a similar profile (geography, family structure, diagnosis stage, ect) - and its impact ranges from a single conversation, a series of text messages, to a lifelong friendship. Clubs are our brave, safe virtual spaces for sons, daughters and children of yod to find community, share resources and bring light. Our youth clubs are organized by age groups - young children (4-7 yo), children (8-12 yo), teens (13-17 yo), and young adults (18+) and held three times monthly. Our adult carepartner spaces - bright brunch for female carepartners and spouses and light lounge for male carepartners and spouses - are held once monthly. Our shine on spaces are for young people (ages 8-35+) whose parent has passed after living with younger-onset dementia and for adult carepartners for whom their partner/spouse has passed after living with younger-onset dementia. Summit is our worldwide, virtual youth-led event, held annually in june, designed to build connection, learn tools and strategies, and advocate for dementia justice. We empower youth with lived experience as dementia advocates and thought leaders. This transformative event is co-designed and co-led by youth leadssons, daughters and children of yod, alongside experts in the field - 'dementiacators' (a term coined by lorenzo's house - 'educators' in the dementia space). Session choices include: dementia justice panel, healthy expressions of grief, empowermentplus, ask the neurologist and more.we advocate for dementia justice through nextgen: nextgen is a global advocacy movement at lorenzo's house. We are a group of like-minded sons, daughters and children of parents with younger-onset dementia, alongside passionate allies, meeting dementia without silence, shame or invisibility. Launched in july 2025, we garnered over 210 members by december 2025. With monthly meetings, nextgen is our global awareness advocacy movement with local action, uniting sons, daughters and children of parents with younger-onset dementia and passionate allies from around the world. Together nextgen raises awareness, ends stigma and informs research.

Financial Efficiency

• Mission deployment rate: 56.6%; rating input score 57
• Program expense ratio: 64%; rating input score 64
• Fundraising efficiency: $3.74 raised per $1 spent on fundraising; rating input score 11; 11th percentile among comparable filings

Transparency & Controls

• Consistency checks: 100%; rating input score 100; 63rd percentile among comparable filings
• Pay-setting controls: 3 of 6 controls in place; rating input score 50
  • Compensation committee: Pass
  • Independent consultant: Missing
  • Other Form 990s reviewed: Missing
  • Written employment contract: Missing
  • Compensation survey or study: Pass
  • Board or committee approval: Pass
• Foreign activity oversight: Limited
• Grant itemization coverage: Limited
• Major donor itemization: Yes; rating input score 100
• Related-party transparency: Limited

Accountability

• Independent voting board: 88.9%; rating input score 89; 25th percentile among comparable filings
• Governance controls: 7 of 9 controls in place; rating input score 78
  • Conflict-of-interest policy: Pass
  • Whistleblower policy: Pass
  • Document-retention policy: Pass
  • CEO compensation review process: Pass
  • Other executive compensation review process: Fail
  • Form 990 shared with the board: Pass
  • Board meeting minutes documented: Pass
  • Audit committee oversight: Fail
  • Independent financial-statement audit: Pass

Sustainability

• Operating margin: 12.2%; rating input score 60; 60th percentile among comparable filings
• Total-asset coverage ratio: 0.61; rating input score 29; 29th percentile among comparable filings
• Liabilities to assets ratio: 0.25; rating input score 22; 22nd percentile among comparable filings
• Officer compensation ratio: 35.9%; rating input score 5; 5th percentile among comparable filings

Growth

• Program expense growth: 12.3% per year; rating input score 100; 65th percentile among comparable filings
• Revenue growth: 28% per year; rating input score 100; 89th percentile among comparable filings
• Asset growth: 51.7% per year; rating input score 100; 95th percentile among comparable filings