Loeys-dietz Syndrome Foundation Inc

Nonprofit profile at a glance

EIN
651306978
IRS 990 coverage
2016–2017
Forms available
Form 990 2017, Form 990-EZ 2015
Location
Baltimore, MD, USA
Phone
4438505874
Rating
71
Verdict
SUPPORTED
Rating confidence
Moderate
Sector
Support N.E.C.

Reported finances

Revenue
$244,111
Expenses
$184,832
Assets
$452,063
Liabilities
$0

Source: IRS Form 990. Selected filing: tax year 2017. Amounts in USD.

Leadership & pay

8 people listed

Executive titles in this filing

  • WESLEY BANGE (PRESIDENT)
  • CAROL NELSON - CHENG (VICE PRESIDENT)

People named in this filing

  • WESLEY BANGE (PRESIDENT)
  • CAROL NELSON - CHENG (VICE PRESIDENT)
  • MARY KASTEN (SECRETARY)

Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.

Source: IRS Form 990. Selected filing: tax year 2017. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

To raise awareness about loeys dietz syndrome. ("lds") (see schedule o for additional information)

What it reported doing in 2017

Fundraising efforts in prior years raised $200,000 for research grant. $120,000 was granted to support loeys-dietz research at johns hopkins.

Operating model

Revenue model
Donor-supported. 100% of the money available for current operations came from contributions and gifts.
Distribution model
Grant intermediary. The nonprofit sent 100% of its reported program spending out as grants.

The verdict

SUPPORTED - The filed numbers largely add up and most voting board members are independent. A relatively small share of available resources goes toward mission work and the required major-donor schedule is missing or incomplete.

Rating breakdown

  • Financial Efficiency: 53
  • Transparency & Controls: 81
  • Accountability: 82
  • Sustainability: 76
  • Growth: 100

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 49.2%; rating input score 49
  • Program expense ratio: 65%; rating input score 65
  • Fundraising efficiency: $9.51 raised per $1 spent on fundraising; rating input score 40; 40th percentile among comparable filings

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 63rd percentile among comparable filings
  • Pay-setting controls: Limited
  • Foreign activity oversight: Limited
  • Grant itemization coverage: 100%; rating input score 100; 79th percentile among comparable filings
  • Major donor itemization: No; rating input score 0
  • Related-party transparency: Limited

Accountability

  • Independent voting board: 100%; rating input score 100; 63rd percentile among comparable filings
  • Governance controls: 4 of 7 controls in place; rating input score 57
    • Conflict-of-interest policy: Pass
    • Whistleblower policy: Fail
    • Document-retention policy: Pass
    • CEO compensation review process: NotApplicable
    • Other executive compensation review process: NotApplicable
    • Form 990 shared with the board: Pass
    • Board meeting minutes documented: Pass
    • Audit committee oversight: Missing
    • Independent financial-statement audit: Fail

Sustainability

  • Operating margin: 24.3%; rating input score 82; 82nd percentile among comparable filings
  • Total-asset coverage ratio: 2.45; rating input score 65; 65th percentile among comparable filings
  • Liabilities to assets ratio: 0; rating input score 85; 85th percentile among comparable filings
  • Officer compensation ratio: 0%; rating input score 72; 72nd percentile among comparable filings

Growth

  • Program expense growth: 5.6% per year; rating input score 100; 62nd percentile among comparable filings
  • Revenue growth: 25.5% per year; rating input score 100; 92nd percentile among comparable filings
  • Asset growth: 25% per year; rating input score 100; 89th percentile among comparable filings

Details

  • Where the money goes: 49.2% of revenue deployed · 65% of spending went to programs
  • Governance: 8 of 8 board members independent · 4 of 7 filing controls reported
  • Programs: 2 filed program accomplishments · $120K in reported program spending
  • Leadership: top reported pay $0 · 8 people listed
  • Consistency: 21 of 21 current checks pass
  • Schedules: 4 filed schedules · includes major donors and grants
  • Filing history: 2 filing years from 2016 to 2017
  • Contacts: How to reach this organization
  • Money network: 1 filed money-flow record
  • Related organizations: 1 filed related-organization link
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • Moderate — Financial Efficiency: Mission deployment rate scored 49/100.
  • High — Transparency & Controls: Major donor itemization scored 0/100.
  • Review — Accountability: Governance controls: 2 of 6 not reported.
  • Moderate — Financial Efficiency: Fundraising efficiency scored 40/100.