Life Raft Group Inc

Nonprofit profile at a glance

EIN
820547746
IRS 990 coverage
2010–2024
Forms available
Form 990 2024
Location
Wayne, NJ, USA
Phone
9738379092
Rating
76
Verdict
SUPPORTED
Rating confidence
Moderate
Sector
Digestive Diseases, Disorders

Official website

Reported finances

Revenue
$2,179,789
Expenses
$1,770,153
Assets
$3,761,480
Liabilities
$301,915

Source: IRS Form 990. Selected filing: tax year 2024. Amounts in USD.

Leadership & pay

15 people listed

Executive titles in this filing

  • GARY GLASSER (PRESIDENT)
  • LAURA OCCHIUZZI (DEPUTY EXECUTIVE DIRECTOR)
  • SARA ROTHSCHILD (EXECUTIVE DIRECTOR)

Highest reported compensation

  • SARA ROTHSCHILD (EXECUTIVE DIRECTOR): $155,246 total reported compensation
  • LAURA OCCHIUZZI (DEPUTY EXECUTIVE DIRECTOR): $138,936 total reported compensation
  • ROBIN ELIA (CONTROLLER): $77,776 total reported compensation

Source: IRS Form 990. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

Enhancing survival and quality of life for people living with gist and other rare cancers through patient-powered research, education, empowerment and global advocacy efforts.

What it reported doing in 2024

Information, education, advocacy, outreach & engagement: the lrg provides support, intervention, education and advocacy to gist patients, their families, and caregivers. Local support is available to the gist community through a network of lrg mentors and volunteers. Our education programs are offered worldwide. Our gist days of learning andour biennial life fest event gather experts from across the globe to bring the most up to date information on gist research, emerging therapies and updates on the world of gist. Our outreach and engagement efforts also include patient support groups, focus groups, monthly webcasts, our website, access to our clinical trials database and our worldwide gist specialist database. Expert patient training is offered to all members.

Operating model

Revenue model
Donor-supported. 93% of the money available for current operations came from contributions and gifts.
Distribution model
Direct operator. The filing allocates 98% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.

The verdict

SUPPORTED - A large share of available resources goes toward mission work and the filed numbers largely add up. Program spending has declined or grown slowly and revenue has declined or grown slowly.

Rating breakdown

  • Financial Efficiency: 81
  • Transparency & Controls: 75
  • Accountability: 91
  • Sustainability: 63
  • Growth: 0

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 76.7%; rating input score 77
  • Program expense ratio: 92.1%; rating input score 92
  • Fundraising efficiency: $29.94 raised per $1 spent on fundraising; rating input score 69; 69th percentile among comparable filings

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 63rd percentile among comparable filings
  • Pay-setting controls: 1 of 6 controls in place; rating input score 17
    • Compensation committee: Missing
    • Independent consultant: Missing
    • Other Form 990s reviewed: Missing
    • Written employment contract: Missing
    • Compensation survey or study: Missing
    • Board or committee approval: Pass
  • Foreign activity oversight: Limited
  • Grant itemization coverage: 100%; rating input score 100; 72nd percentile among comparable filings
  • Major donor itemization: Yes; rating input score 100
  • Related-party transparency: Limited

Accountability

  • Independent voting board: 100%; rating input score 100; 63rd percentile among comparable filings
  • Governance controls: 7 of 9 controls in place; rating input score 78
    • Conflict-of-interest policy: Pass
    • Whistleblower policy: Pass
    • Document-retention policy: Pass
    • CEO compensation review process: Pass
    • Other executive compensation review process: Fail
    • Form 990 shared with the board: Fail
    • Board meeting minutes documented: Pass
    • Audit committee oversight: Pass
    • Independent financial-statement audit: Pass

Sustainability

  • Operating margin: 18.8%; rating input score 75; 75th percentile among comparable filings
  • Total-asset coverage ratio: 2.12; rating input score 64; 64th percentile among comparable filings
  • Liabilities to assets ratio: 0.08; rating input score 63; 63rd percentile among comparable filings
  • Officer compensation ratio: 21%; rating input score 11; 11th percentile among comparable filings

Growth

  • Program expense growth: -3.1% per year; rating input score 0; 7th percentile among comparable filings
  • Revenue growth: -2.8% per year; rating input score 0; 5th percentile among comparable filings
  • Asset growth: -3.5% per year; rating input score 0; 5th percentile among comparable filings

Details

  • Where the money goes: 76.7% of revenue deployed · 92.1% of spending went to programs
  • Governance: 12 of 12 board members independent · 7 of 9 filing controls reported
  • Programs: 2 filed program accomplishments · $1.6M in reported program spending
  • Leadership: top reported pay $155K · 15 people listed · 1 of 6 pay-setting controls reported
  • Consistency: 35 of 35 current checks pass
  • Schedules: 7 filed schedules · includes major donors, grants, and executive pay
  • Filing history: 14 filing years from 2010 to 2024
  • Contacts: How to reach this organization
  • Money network: 4 filed money-flow records
  • Related organizations: 1 filed related-organization link
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.
  • Staff and benefit plans: Retirement and health plans the organization files with the Department of Labor, and the people in them.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • High — Growth: Program expense growth scored 0/100.
  • High — Growth: Revenue growth scored 0/100.
  • Review — Accountability: Governance controls: 2 of 9 not reported.
  • High — Growth: Asset growth scored 0/100.
  • High — Sustainability: Officer compensation ratio scored 11/100.