Les Turner Amyotrophic Lateral Sclerosis Foundation Ltd
Nonprofit profile at a glance
- EIN
- 362916466
- IRS 990 coverage
- 2015–2024
- Forms available
- Form 990 2024
- Location
- Skokie, IL, USA
- Phone
- 8476793311
- Rating
- 75
- Verdict
- SUPPORTED
- Rating confidence
- Moderate
Reported finances
- Revenue
- $4,524,784
- Expenses
- $3,333,281
- Assets
- $4,414,309
- Liabilities
- $1,731,071
Source: IRS Form 990. Selected filing: tax year 2024. Amounts in USD.
Leadership & pay
23 people listed
Executive titles in this filing
- LAURA FREVELETTI (CHIEF EXECUTIVE OFFICER)
Highest reported compensation
- LAURA FREVELETTI (CHIEF EXECUTIVE OFFICER): $239,077 total reported compensation
- LAUREN WEBB (CHIEF ADVOCACY AND OUTREACH OFFICER): $148,182 total reported compensation
- MARK HEIDEN (DIRECTOR OF COMMUNICATIONS): $132,472 total reported compensation
Source: IRS Form 990. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.
Overview
Mission
To provide the most comprehensive care and support to people living with als and their families in chicagoland, so they can confidently navigate the disease, and advance scientific research for the prevention, treatment and cure of als.
What it reported doing in 2024
The foundation currently makes grants to the les turner als center at northwestern medicine for als research, the lois insolia als clinic and other als educational and scientific activities.in addition, the foundation provides personalized support visits, support groups, access to equipment and other program services to people with als and their families. The foundation offers extensive educational resources to people with als and their families across the country and increases public awareness of the disease through educational programs and initiatives.
Operating model
- Revenue model
- Donor-supported. 96% of the money available for current operations came from contributions and gifts.
- Distribution model
- Hybrid. The nonprofit split its reported program spending across 57% for direct work, and 43% for grants.
The verdict
SUPPORTED - A large share of total spending goes to programs and the filed numbers largely add up. A relatively small share of available resources goes toward mission work and fundraising costs are high for each dollar raised.
Rating breakdown
- Financial Efficiency: 64
- Transparency & Controls: 79
- Accountability: 100
- Sustainability: 57
- Growth: 60
Detailed rating inputs
Financial Efficiency
- Mission deployment rate: 59.4%; rating input score 59
- Program expense ratio: 79.5%; rating input score 80
- Fundraising efficiency: $12.12 raised per $1 spent on fundraising; rating input score 44; 44th percentile among comparable filings
Transparency & Controls
- Consistency checks: 100%; rating input score 100; 63rd percentile among comparable filings
- Pay-setting controls: 2 of 6 controls in place; rating input score 33
- Compensation committee: Missing
- Independent consultant: Missing
- Other Form 990s reviewed: Missing
- Written employment contract: Missing
- Compensation survey or study: Pass
- Board or committee approval: Pass
- Foreign activity oversight: Limited
- Grant itemization coverage: 100%; rating input score 100; 72nd percentile among comparable filings
- Major donor itemization: Yes; rating input score 100
- Related-party transparency: Limited
Accountability
- Independent voting board: 100%; rating input score 100; 63rd percentile among comparable filings
- Governance controls: 9 of 9 controls in place; rating input score 100
- Conflict-of-interest policy: Pass
- Whistleblower policy: Pass
- Document-retention policy: Pass
- CEO compensation review process: Pass
- Other executive compensation review process: Pass
- Form 990 shared with the board: Pass
- Board meeting minutes documented: Pass
- Audit committee oversight: Pass
- Independent financial-statement audit: Pass
Sustainability
- Operating margin: 26.3%; rating input score 82; 82nd percentile among comparable filings
- Total-asset coverage ratio: 1.32; rating input score 47; 47th percentile among comparable filings
- Liabilities to assets ratio: 0.39; rating input score 27; 27th percentile among comparable filings
- Officer compensation ratio: 19.1%; rating input score 13; 13th percentile among comparable filings
Growth
- Program expense growth: -1.9% per year; rating input score 0; 9th percentile among comparable filings
- Revenue growth: 2.6% per year; rating input score 100; 24th percentile among comparable filings
- Asset growth: 5.4% per year; rating input score 100; 37th percentile among comparable filings
Details
- Where the money goes: 59.4% of revenue deployed · 79.5% of spending went to programs
- Governance: 19 of 19 board members independent · 9 of 9 filing controls reported
- Programs: 1 filed program accomplishment · $2.7M in reported program spending
- Leadership: top reported pay $239K · 23 people listed · 2 of 6 pay-setting controls reported
- Consistency: 34 of 34 current checks pass
- Schedules: 7 filed schedules · includes major donors, grants, and executive pay
- Filing history: 10 filing years from 2015 to 2024
- Contacts: How to reach this organization
- Money network: 8 filed money-flow records
- Related organizations: 4 filed related-organization links
- Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
- People: Everyone the filings name, and which of them the filings identify by more than a name.
- Staff and benefit plans: Retirement and health plans the organization files with the Department of Labor, and the people in them.
Key Signals
Signals prioritize questions for review. They are not findings of misconduct.
- Review — Financial Efficiency: Mission deployment rate scored 59/100.
- Moderate — Financial Efficiency: Fundraising efficiency scored 44/100.
- High — Growth: Program expense growth scored 0/100.
- Moderate — Sustainability: Total-asset coverage ratio scored 47/100.
- High — Sustainability: Officer compensation ratio scored 13/100.
- High — Sustainability: Liabilities to assets ratio scored 27/100.