Lcc Foundation Inc

Nonprofit profile at a glance

EIN
881908603
IRS 990-EZ coverage
2024–2025
Forms available
Form 990-EZ 2025, Form 990-N 2023
Location
Lake Saint Louis, MO, USA
Phone
6362489930
Rating
63
Verdict
SUPPORTED
Rating confidence
Moderate
Sector
Fund Raising and/or Fund Distribution

Official website

Reported finances

Revenue
$69,060
Expenses
$26,501
Assets
$117,380
Liabilities
$0

Source: IRS Form 990-EZ. Selected filing: tax year 2025. Amounts in USD.

Leadership & pay

3 people listed

Executive titles in this filing

  • Ashley Dike (Founder/Executive Director)

People named in this filing

  • Ashley Dike (Founder/Executive Director)
  • Belinda Staub (Secretary)
  • Danny Dike (Co-Founder)

Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.

Source: IRS Form 990-EZ. Selected filing: tax year 2025. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

To support patients and families affected by Leukoencephalopathy with Brain Calcifications and Cysts (LCC/Labrune Syndrome) through education, advocacy, research collaboration, and community support.

What it reported doing in 2025

Patient and Family Support and Education. The LCC Foundation supported 8 families across multiple countries through educational resources, peer connections, and introductions to LCC clinicians and researchers. Distributed approximately 850 information packets to hospitals. Research Collaboration and Advocacy. The LCC Foundation collaborated with leading clinical and research organizations to advance LCC natural history research, MRI scoring, registry development, biomarker discussions, and patient-centered research priorities. Awareness, Community Outreach and Conference Development. The Foundation expanded LCC awareness through community events, digital resources, social media, family outreach, and The LCC Circle podcast; also advanced planning for its inaugural Global LCC Family and Research Conference.

Operating model

Revenue model
Donor-supported. 99% of the money available for current operations came from contributions and gifts.
Distribution model
Hybrid. The nonprofit split its reported program spending across 59% for direct work, and 41% for grants.

The verdict

SUPPORTED - The filed numbers largely add up and program spending has grown recently. A relatively small share of available resources goes toward mission work and reported officer compensation is a large share of total spending, which may reflect staffing concentration.

Rating breakdown

  • Financial Efficiency: 42
  • Transparency & Controls: 82
  • Sustainability: 82
  • Growth: 100

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 26.3%; rating input score 26
  • Program expense ratio: 68.2%; rating input score 68

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 51st percentile among comparable filings
  • Major donor itemization: Limited

Sustainability

  • Operating margin: 61.6%; rating input score 93; 93rd percentile among comparable filings
  • Total-asset coverage ratio: 4.43; rating input score 82; 82nd percentile among comparable filings
  • Liabilities to assets ratio: 0; rating input score 66; 66th percentile among comparable filings
  • Officer compensation ratio: 0%; rating input score 56; 56th percentile among comparable filings

Growth

  • Program expense growth: 200% per year; rating input score 100; 100th percentile among comparable filings
  • Revenue growth: 30.6% per year; rating input score 100; 93rd percentile among comparable filings
  • Asset growth: 44.3% per year; rating input score 100; 94th percentile among comparable filings

Details

  • Where the money goes: 26.3% of revenue deployed · 68.2% of spending went to programs
  • Governance: Filed governance answers
  • Accomplishments: 1 filed program accomplishment · $18K in reported program spending
  • Leadership: top reported pay $0 · 3 people listed
  • Consistency: 9 of 9 current checks pass
  • Schedules: 2 filed schedules
  • Filing history: 2 filing years from 2024 to 2025
  • Contacts: How to reach this organization
  • Money network: Resolved incoming and outgoing counterparties from filed money flows.
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • High — Financial Efficiency: Mission deployment rate scored 26/100.
  • Review — Sustainability: Officer compensation ratio scored 56/100.