Kids Shouldn't Have Cancer Foundation in Memory of Jonny Wade

Nonprofit profile at a glance

EIN
811221193
IRS 990 coverage
2018–2019
Forms available
Form 990 2019
Location
Santa Fe, NM, USA
Phone
4172309951
Rating
69
Verdict
SUPPORTED
Rating confidence
Moderate
Sector
Public Foundations

Reported finances

Revenue
$437,596
Expenses
$211,616
Assets
$682,814
Liabilities
$1,398

Source: IRS Form 990. Selected filing: tax year 2019. Amounts in USD.

Leadership & pay

10 people listed

People named in this filing

  • BRIAN BIRKENSTOCK (DIRECTOR)
  • SUSAN FALLON (DIRECTOR)
  • THOMAS FENDYA (DIRECTOR)

Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.

Source: IRS Form 990. Selected filing: tax year 2019. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

For educational, scientific, legislative, lobbying, consistent with the 501(h) election, and charitable design to stimulate, indorse, and promote the funding of additional scientific research for pediatric cancers

What it reported doing in 2019

Impacting the progress of pediatric cancer care with funding assistance for promising research and clinical trials at the patient bedside to quality of life studies and improvements for those patients that are fortunate enough to survive.

Operating model

Revenue model
Mixed. Its operating money came from several sources; no one source provided a clear majority.
Distribution model
Grant intermediary. The nonprofit sent 96% of its reported program spending out as grants.

The verdict

SUPPORTED - The filed numbers largely add up and most voting board members are independent. A relatively small share of available resources goes toward mission work and some filing-based governance responses are negative or unanswered.

Rating breakdown

  • Financial Efficiency: 41
  • Transparency & Controls: 94
  • Accountability: 76
  • Sustainability: 81
  • Growth: 100

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 30.9%; rating input score 31
  • Program expense ratio: 62.4%; rating input score 62
  • Fundraising efficiency: $5.92 raised per $1 spent on fundraising; rating input score 26; 26th percentile among comparable filings

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 63rd percentile among comparable filings
  • Pay-setting controls: Limited
  • Foreign activity oversight: Limited
  • Grant itemization coverage: 100%; rating input score 100; 79th percentile among comparable filings
  • Major donor itemization: Yes; rating input score 100
  • Related-party transparency: Limited

Accountability

  • Independent voting board: 100%; rating input score 100; 63rd percentile among comparable filings
  • Governance controls: 3 of 7 controls in place; rating input score 43
    • Conflict-of-interest policy: Pass
    • Whistleblower policy: Fail
    • Document-retention policy: Fail
    • CEO compensation review process: NotApplicable
    • Other executive compensation review process: NotApplicable
    • Form 990 shared with the board: Pass
    • Board meeting minutes documented: Pass
    • Audit committee oversight: Missing
    • Independent financial-statement audit: Fail

Sustainability

  • Operating margin: 51.6%; rating input score 94; 94th percentile among comparable filings
  • Total-asset coverage ratio: 3.23; rating input score 70; 70th percentile among comparable filings
  • Liabilities to assets ratio: 0; rating input score 63; 63rd percentile among comparable filings
  • Officer compensation ratio: 0%; rating input score 71; 71st percentile among comparable filings

Growth

  • Program expense growth: 187.1% per year; rating input score 100; 100th percentile among comparable filings
  • Revenue growth: 37.4% per year; rating input score 100; 96th percentile among comparable filings
  • Asset growth: 39.6% per year; rating input score 100; 95th percentile among comparable filings

Details

  • Where the money goes: 30.9% of revenue deployed · 62.4% of spending went to programs
  • Governance: 10 of 10 board members independent · 3 of 7 filing controls reported
  • Programs: 1 filed program accomplishment · $132K in reported program spending
  • Leadership: top reported pay $0 · 10 people listed
  • Consistency: 23 of 23 current checks pass
  • Schedules: 5 filed schedules · includes major donors and grants
  • Filing history: 2 filing years from 2018 to 2019
  • Contacts: How to reach this organization
  • Money network: 1 filed money-flow record
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

Grant-readiness screening is separate from the live rating, not a measure of program quality. Review the source records before making a grant decision.

  • Moderate — Financial Efficiency: Mission deployment rate scored 31/100.
  • Moderate — Accountability: Governance controls: 3 of 6 not reported.
  • High — Financial Efficiency: Fundraising efficiency scored 26/100.
  • High — Grant Readiness: Automatic revocation: this organization had its federal tax-exempt status automatically revoked.