Kdm5c Kares Foundation Inc

Nonprofit profile at a glance

EIN
881810749
IRS 990-EZ coverage
2022–2025
Forms available
Form 990-EZ 2025
Location
Metamora, IL, USA
Phone
3096439387
Rating
49
Verdict
MIXED
Rating confidence
Moderate
Sector
Community Foundations

Reported finances

Revenue
$134,420
Expenses
$91,352
Assets
$244,923
Liabilities
$43,497

Source: IRS Form 990-EZ. Selected filing: tax year 2025. Amounts in USD.

Leadership & pay

9 people listed

People named in this filing

  • Amy Robl (Board Chair)
  • Lara Erekson (Board Vice Chair)
  • Amanda Lowry (Treasurer)

Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.

Source: IRS Form 990-EZ. Selected filing: tax year 2025. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

Our mission is to improve the lives of those affected by KDM5C-related disorders through advocacy, research, education, & support for affected individuals and families.

What it reported doing in 2025

Kares Foundation awarded $60,000 in research grants during 2025 to two academic institutions. One of the grants for $20,000 was awarded to Dr. Weksberg's lab at the Hospital for Sick Children in Toronto, Canada to continue the DNA methylation biomarker study to better define variants of uncertain significance in KDM5C. Also, during 2025, $40,000 was awarded to Dr. Biggar's lab at Carleton University in Ottawa, Canada to carry out a study to examine the biochemical and functional properties of missense variants in KDM5C.

Operating model

Revenue model
Donor-supported. 74% of the money available for current operations came from contributions and gifts.
Distribution model
Cannot be determined from the filing. The filing does not provide enough consistent spending detail to tell whether the nonprofit works directly or through others.

The verdict

MIXED - The filed numbers largely add up and program spending has grown recently. A relatively small share of available resources goes toward mission work and a relatively small share of total spending goes to programs.

Rating breakdown

  • Financial Efficiency: 0
  • Transparency & Controls: 100
  • Sustainability: 74
  • Growth: 100

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 0%; rating input score 0
  • Program expense ratio: 0%; rating input score 0

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 52nd percentile among comparable filings
  • Major donor itemization: Yes; rating input score 100

Sustainability

  • Operating margin: 32%; rating input score 83; 83rd percentile among comparable filings
  • Total-asset coverage ratio: 2.68; rating input score 86; 86th percentile among comparable filings
  • Liabilities to assets ratio: 0.18; rating input score 16; 16th percentile among comparable filings
  • Officer compensation ratio: 0%; rating input score 63; 63rd percentile among comparable filings

Growth

  • Program expense growth: 36.9% per year; rating input score 100; 86th percentile among comparable filings
  • Revenue growth: 22.8% per year; rating input score 100; 85th percentile among comparable filings
  • Asset growth: 39.8% per year; rating input score 100; 90th percentile among comparable filings

Details

  • Where the money goes: 0% of revenue deployed · 0% of spending went to programs
  • Governance: Filed governance answers
  • Accomplishments: 1 filed program accomplishment
  • Leadership: top reported pay $0 · 9 people listed
  • Consistency: 8 of 9 current checks pass · 1 finding to review
  • Schedules: 4 filed schedules
  • Filing history: 4 filing years from 2022 to 2025
  • Contacts: How to reach this organization
  • Money network: Resolved incoming and outgoing counterparties from filed money flows.
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • High — Financial Efficiency: Mission deployment rate scored 0/100.
  • High — Financial Efficiency: Program expense ratio scored 0/100.
  • Moderate — Transparency & Controls: Part III transfer expenses within program total did not reconcile in the filed values.
  • High — Sustainability: Liabilities to assets ratio scored 16/100.