Kawasaki Disease Foundation Inc

Nonprofit profile at a glance

EIN
043536123
IRS 990-EZ coverage
2009–2024
Forms available
Form 990-EZ 2024
Location
Boston, MA, USA
Phone
6173601499
Rating
66
Verdict
SUPPORTED
Rating confidence
Moderate
Sector
Specifically Named Diseases Research

Official website

Reported finances

Revenue
$39,387
Expenses
$34,481
Assets
$425,055
Liabilities
$0

Source: IRS Form 990-EZ. Selected filing: tax year 2024. Amounts in USD.

Leadership & pay

12 people listed

Executive titles in this filing

  • VANESSA GUTIERREZ (PRESIDENT)
  • KATE DAVILA (VICE PRESIDENT)

People named in this filing

  • VANESSA GUTIERREZ (PRESIDENT)
  • KATE DAVILA (VICE PRESIDENT)
  • CATHERINE FRANK (SECRETARY)

Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.

Source: IRS Form 990-EZ. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

The kawasaki disease foundation strives to be at the forefront of kawasaki disease issues by uniting the personal insight of families with the expertise of medical professionals. Kdf's mission is based on three basic principles: raising awareness among the medical community, childcare providers, and the general public is critical to early diagnosis and treatment; facilitating support among families is essential to helping families cope with this uncommon illness and the potentially devastating effects of heart damage; increasing funding for research is necessary to advance diagnostic guidelines, enhance the existing treatment, improve short-term and long-term follow-up care, and find a cause.

What it reported doing in 2024

The annual kawasaki disease patient and parent symposium is an educational conference planned by kd medical experts for families and patients of kawasaki disease. The event aims to address issues that are most relevant to newly diagnosed patients and past patients of kd. Some of the latest research in kawasaki disease is discussed as well as management of the most common complications, including treatment options and long term care for kawasaki disease. Speakers discuss issues related to current and past research studies, provide updates on the development of a diagnostic test, discuss the transition from pediatric to adult care, and address parent and patient questions during the q&a session.

Operating model

Revenue model
Mixed. Its operating money came from several sources; no one source provided a clear majority.
Distribution model
Direct operator. The filing allocates 100% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.

The verdict

SUPPORTED - The filed numbers largely add up and revenue comfortably covers expenses. A relatively small share of available resources goes toward mission work and a relatively small share of total spending goes to programs.

Rating breakdown

  • Financial Efficiency: 42
  • Transparency & Controls: 100
  • Sustainability: 73
  • Growth: 20

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 45.9%; rating input score 46
  • Program expense ratio: 35.3%; rating input score 35

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 52nd percentile among comparable filings
  • Major donor itemization: Yes; rating input score 100

Sustainability

  • Operating margin: 12.5%; rating input score 65; 65th percentile among comparable filings
  • Total-asset coverage ratio: 12.33; rating input score 93; 93rd percentile among comparable filings
  • Liabilities to assets ratio: 0; rating input score 68; 68th percentile among comparable filings
  • Officer compensation ratio: 0%; rating input score 56; 56th percentile among comparable filings

Growth

  • Program expense growth: -3.3% per year; rating input score 0; 39th percentile among comparable filings
  • Revenue growth: -7.6% per year; rating input score 0; 28th percentile among comparable filings
  • Asset growth: 4.4% per year; rating input score 100; 56th percentile among comparable filings

Details

  • Where the money goes: 45.9% of revenue deployed · 35.3% of spending went to programs
  • Governance: Filed governance answers
  • Accomplishments: 2 filed program accomplishments · $12K in reported program spending
  • Leadership: top reported pay $0 · 12 people listed
  • Consistency: 8 of 8 current checks pass
  • Schedules: 3 filed schedules
  • Filing history: 12 filing years from 2009 to 2024
  • Contacts: How to reach this organization
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • Moderate — Financial Efficiency: Mission deployment rate scored 46/100.
  • Moderate — Financial Efficiency: Program expense ratio scored 35/100.
  • High — Growth: Program expense growth scored 0/100.
  • High — Growth: Revenue growth scored 0/100.
  • Review — Sustainability: Officer compensation ratio scored 56/100.