Cure Sanfilippo Foundation
Legal name: Jonahs Just Begun Foundation to Cure Sanfillipo Inc
Nonprofit profile at a glance
- EIN
- 272957730
- IRS 990-EZ coverage
- 2014–2015
- Official website data refreshed
- Sep 2026
- Forms available
- Form 990 2013, Form 990-EZ 2015
- Location
- Brooklyn, NY, USA
- Phone
- 3478310246
- Rating
- 29
- Verdict
- REVIEW
- Rating confidence
- Moderate
- Sector
- Epilepsy
Reported finances
- Revenue
- $164,161
- Expenses
- $149,657
- Assets
- $64,197
- Liabilities
- $202
Source: IRS Form 990-EZ. Selected filing: tax year 2015. Amounts in USD.
Leadership & pay
10 people listed
Executive titles in this filing
- JEREMY WEISHAAR (President)
People named in this filing
- JILL WOOD (CFO)
- JEREMY WEISHAAR (President)
- NANCY BURKE (Director)
Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.
Source: IRS Form 990-EZ. Selected filing: tax year 2015. Names and roles reflect this filing, not necessarily current officeholders.
Overview
Mission
Cure Sanfilippo Foundation’s mission is to accelerate scientific development and access to a cure or therapeutic options for all affected by Sanfilippo Syndrome, to drive advocacy to improve care and outcomes, and to empower families with information, guidance, and support to navigate the journey.
What it reported doing in 2015
To raise awareness for sanfillipo and to fund finding a cure
Operating model
- Revenue model
- Cannot be determined from the filing. The filing does not provide enough consistent revenue detail to tell how this nonprofit funds its work.
- Distribution model
- Cannot be determined from the filing. The filing does not provide enough consistent spending detail to tell whether the nonprofit works directly or through others.
The verdict
REVIEW - The filed numbers largely add up. A relatively small share of available resources goes toward mission work and a relatively small share of total spending goes to programs.
Rating breakdown
- Financial Efficiency: 1
- Transparency & Controls: 65
- Sustainability: 54
- Growth: 0
Detailed rating inputs
Financial Efficiency
- Mission deployment rate: 0.9%; rating input score 1
- Program expense ratio: 1%; rating input score 1
Transparency & Controls
- Consistency checks: 80%; rating input score 80; 0th percentile among comparable filings
- Major donor itemization: Limited
Sustainability
- Operating margin: 8.8%; rating input score 60; 60th percentile among comparable filings
- Total-asset coverage ratio: 0.43; rating input score 37; 37th percentile among comparable filings
- Liabilities to assets ratio: 0; rating input score 64; 64th percentile among comparable filings
- Officer compensation ratio: 0%; rating input score 65; 65th percentile among comparable filings
Growth
- Program expense growth: -177.7% per year; rating input score 0; 1st percentile among comparable filings
- Revenue growth: -34.7% per year; rating input score 0; 1st percentile among comparable filings
- Asset growth: -30.1% per year; rating input score 0; 6th percentile among comparable filings
Details
- What they do: 3 programs and campaigns described on the official site · 1 operating location identified
- Where the money goes: 0.9% of revenue deployed · 1% of spending went to programs
- Governance: Filed governance answers
- Accomplishments: 1 filed program accomplishment · $1K in reported program spending
- Leadership: top reported pay $0 · 10 people listed
- Consistency: 7 of 8 current checks pass · 1 finding to review
- Schedules: 3 filed schedules
- Filing history: 2 filing years from 2014 to 2015
- Contacts: How to reach this organization
- Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
- People: Everyone the filings name, and which of them the filings identify by more than a name.
Key Signals
Signals prioritize questions for review. They are not findings of misconduct.
Grant-readiness screening is separate from the live rating, not a measure of program quality. Review the source records before making a grant decision.
- High — Financial Efficiency: Mission deployment rate scored 1/100.
- High — Financial Efficiency: Program expense ratio scored 1/100.
- Moderate — Transparency & Controls: Part III transfer expenses within program total did not reconcile in the filed values.
- High — Growth: Program expense growth scored 0/100.
- High — Growth: Revenue growth scored 0/100.
- High — Growth: Asset growth scored 0/100.
- Moderate — Sustainability: Total-asset coverage ratio scored 37/100.
- High — Grant Readiness: Automatic revocation: this organization had its federal tax-exempt status automatically revoked.