Jansens Foundation
Nonprofit profile at a glance
- EIN
- 815444211
- IRS 990-EZ coverage
- 2025–2025
- Forms available
- Form 990-EZ 2025, Form 990-N 2024
- Location
- Elkhorn, NE, USA
- Phone
- 4024579886
- Rating
- 78
- Verdict
- SUPPORTED
- Rating confidence
- Moderate
- Sector
- Specifically Named Diseases
Reported finances
- Revenue
- $97,679
- Expenses
- $54,263
- Assets
- $63,780
Source: IRS Form 990-EZ. Selected filing: tax year 2025. Amounts in USD.
Leadership & pay
3 people listed
Executive titles in this filing
- Neena Nizar (President & Project Lead)
People named in this filing
- Penni Romero (Administrative Official & Treasurer)
- Neena Nizar (President & Project Lead)
- Maegan Wallace (Project Lead & Secretary)
Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.
Source: IRS Form 990-EZ. Selected filing: tax year 2025. Names and roles reflect this filing, not necessarily current officeholders.
Overview
Mission
The miission of the Jansens Foundation is to bring awareness and support research in hope fo bringing about a cure to this debilitating skeletal condition. Jansen's Disease is an ultra-rare condition, affecting fewer than 30 patients worldwide, which often results in limited diagnosis and treatment options.
What it reported doing in 2025
Patient awareness: Develop and maintain website with information about the condition for people across the world to access. Patients and medical personnel from across the world (about 40 or more persons) can access contact information to seek out additional information regarding medical diagnosis, testing, and treatment. Maintain the foundations operation to meet the above objectives as well as objectives described below through independent contractors serving as Project Lead (2) and Administrative Official
Operating model
- Revenue model
- Donor-supported. 95% of the money available for current operations came from contributions and gifts.
- Distribution model
- Direct operator. The filing allocates 100% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.
The verdict
SUPPORTED - The filed numbers largely add up and a large share of total spending goes to programs. A relatively small share of available resources goes toward mission work and total assets are small relative to annual expenses; liquid coverage is unknown.
Rating breakdown
- Financial Efficiency: 70
- Transparency & Controls: 100
- Sustainability: 57
- Growth: NotEnoughData
Detailed rating inputs
Financial Efficiency
- Mission deployment rate: 54.4%; rating input score 54
- Program expense ratio: 97.9%; rating input score 98
Transparency & Controls
- Consistency checks: 100%; rating input score 100; 51st percentile among comparable filings
- Major donor itemization: Yes; rating input score 100
Sustainability
- Operating margin: 44.4%; rating input score 88; 88th percentile among comparable filings
- Total-asset coverage ratio: 1.18; rating input score 52; 52nd percentile among comparable filings
- Liabilities to assets ratio: Limited
- Officer compensation ratio: 71.4%; rating input score 1; 1st percentile among comparable filings
Growth
- Program expense growth: Limited
- Revenue growth: Limited
- Asset growth: Limited
Details
- Where the money goes: 54.4% of revenue deployed · 97.9% of spending went to programs
- Governance: Filed governance answers
- Accomplishments: 4 filed program accomplishments · $53K in reported program spending
- Leadership: top reported pay $0 · 3 people listed
- Consistency: 6 of 6 current checks pass
- Schedules: 3 filed schedules
- Contacts: How to reach this organization
- Money network: 3 filed money-flow records
- Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
- People: Everyone the filings name, and which of them the filings identify by more than a name.
Key Signals
Signals prioritize questions for review. They are not findings of misconduct.
- Review — Financial Efficiency: Mission deployment rate scored 54/100.
- Review — Sustainability: Total-asset coverage ratio scored 52/100.
- High — Sustainability: Officer compensation ratio scored 1/100.