Intracranial Hypertension Research Foundation
Nonprofit profile at a glance
- EIN
- 912100291
- IRS 990-EZ coverage
- 2015–2024
- Forms available
- Form 990-EZ 2024
- Location
- Vancouver, WA, USA
- Phone
- 3606934473
- Rating
- 55
- Verdict
- MIXED
- Rating confidence
- Moderate
- Sector
- Public Foundations
Reported finances
- Revenue
- $14,952
- Expenses
- $5,765
- Assets
- $116,335
Source: IRS Form 990-EZ. Selected filing: tax year 2024. Amounts in USD.
Leadership & pay
4 people listed
People named in this filing
- EMANUEL TANNE MD (Chairman)
- AMY LOIS TANNE (Secretary)
- WILLIAM T SHULTS MD (Director)
Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.
Source: IRS Form 990-EZ. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.
Overview
Mission
Fund and conduct research relating to intracranial hypertension disorder; to develop therapies, treatments, and ultimately a cure for people suffering from such disorder; to disseminate such information to the medical community and patients and the general public at large; and to develop all databases and patient registries incident thereto.
What it reported doing in 2024
In march of 2020, because of covid, Oregon health & science university medical center (ohsu) required that all non-essential offices had to be closed. As a result, the intracranial registry, co-sponsored with the casey eye institute, was unable to function, as research coordinators and all volunteers had to work from home. This made it impossible to function and it remains closed since june of that year. Designed exclusively for intracranial hypertension research, it contained the largest number of chronic ih patients worldwide with an enrollment data base of 2,675 patients from over 40 countries and had continued to add 5-7 new patients per month at the time of closure. It also collected extensive medical data and imaging studies on each enrollee, filed on a pac system at the neuro-radiology dept at ohsu, most likely the largest collection in the world of ih patients, numbering approximately 17,500.our last completed study of data on long-term outcomes of bariatric surgery in patients with idiopathic ih, long term outcomes of bariatric surgery in idiopathic intracranial hypertension patients was published in the public access system of the neurologist, june 2022. The print version was published in the neurologist, volume 28, number 2 - march 2023. This is the first study of long-term outcomes, ranging from 4 to 16 post operative, published on ih. The importance of our publication continues to be seen by utilization of its results. From march 2020 to present, 83 different research authors have cited ihrf as key references. Despite closure of the registry, ihrf continues to be notified about 2 times a week of utilization of our original research. In addition, in recognition of our published research, we continue to receive requests to review medical research of others for possible publication.ihrf continues to receive invitations to join medical journal boards, to present information booths at scientific meetings. We receive requests to partner or support medical investigations at various medical institutions worldwide.ihrf continues to provide extensive assistance to patients requesting information on second medical opinions and information on physicians who treat ih, both nationally and internationally. We provide the same service to physicians and researchers. We continue to provide information about ih in general beyond what appears on our website. All our services are always free of any charges.
Operating model
- Revenue model
- Cannot be determined from the filing. The filing does not provide enough consistent revenue detail to tell how this nonprofit funds its work.
- Distribution model
- Direct operator. The filing allocates 100% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.
The verdict
MIXED - The filed numbers largely add up and revenue comfortably covers expenses. A relatively small share of available resources goes toward mission work and a relatively small share of total spending goes to programs.
Rating breakdown
- Financial Efficiency: 36
- Transparency & Controls: 82
- Sustainability: 79
- Growth: 0
Detailed rating inputs
Financial Efficiency
- Mission deployment rate: 22.8%; rating input score 23
- Program expense ratio: 59.2%; rating input score 59
Transparency & Controls
- Consistency checks: 100%; rating input score 100; 52nd percentile among comparable filings
- Major donor itemization: Limited
Sustainability
- Operating margin: 61.4%; rating input score 94; 94th percentile among comparable filings
- Total-asset coverage ratio: 20.18; rating input score 96; 96th percentile among comparable filings
- Liabilities to assets ratio: Limited
- Officer compensation ratio: 0%; rating input score 56; 56th percentile among comparable filings
Growth
- Program expense growth: -21.8% per year; rating input score 0; 17th percentile among comparable filings
- Revenue growth: -12.2% per year; rating input score 0; 21st percentile among comparable filings
- Asset growth: -20.8% per year; rating input score 0; 10th percentile among comparable filings
Details
- Where the money goes: 22.8% of revenue deployed · 59.2% of spending went to programs
- Governance: Filed governance answers
- Accomplishments: 2 filed program accomplishments · $3K in reported program spending
- Leadership: top reported pay $0 · 4 people listed
- Consistency: 6 of 6 current checks pass
- Schedules: 2 filed schedules
- Filing history: 7 filing years from 2015 to 2024
- Contacts: How to reach this organization
- Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
- People: Everyone the filings name, and which of them the filings identify by more than a name.
Key Signals
Signals prioritize questions for review. They are not findings of misconduct.
- High — Financial Efficiency: Mission deployment rate scored 23/100.
- Review — Financial Efficiency: Program expense ratio scored 59/100.
- High — Growth: Program expense growth scored 0/100.
- High — Growth: Revenue growth scored 0/100.
- High — Growth: Asset growth scored 0/100.
- Review — Sustainability: Officer compensation ratio scored 56/100.