International Pediatric Stroke Organization Inc

Nonprofit profile at a glance

EIN
833710872
IRS 990 coverage
2019–2024
Forms available
Form 990 2024, Form 990-EZ 2023
Location
San Francisco, CA, USA
Phone
4155027298
Rating
74
Verdict
SUPPORTED
Rating confidence
Moderate
Sector
Heart, Circulatory Research

Reported finances

Revenue
$223,516
Expenses
$211,911
Assets
$214,341
Liabilities
$0

Source: IRS Form 990. Selected filing: tax year 2024. Amounts in USD.

Leadership & pay

13 people listed

Executive titles in this filing

  • DR HEATHER J FULLERTON (PRESIDENT)

People named in this filing

  • MARY KEY BALLASIOTES (BOARD MEMBER)
  • FRANCESCA FEDELI (BOARD MEMBER)
  • DR HEATHER J FULLERTON (PRESIDENT)

Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.

Source: IRS Form 990. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

The international pediatric stroke organization (ipso) is bringing together leading investigators and health professionals from around the globe, and from multiple disciplines, with a common interest in childhood cerebrovascular disease. Experts across related fields will collaborate to advance knowledge on mechanisms of childhood stroke and stroke recovery with an eye towards preventing stroke and improving outcomes. Ipso will disseminate knowledge and best practices to first-line medical providers for the wider benefit of children with stroke worldwide. Throughout, ipso will engage affected families to set priorities and advocate for children at risk for stroke or afflicted by stroke.

What it reported doing in 2024

In 2024, ipso continued to advance its mission of fostering global collaboration, education, and research in pediatric stroke through a range of impactful activities. A major highlight was the international pediatric stroke conference held in toronto, canada, which drew over 300 participants from more than 40 countries, including clinicians, researchers, and patient advocates. The 2.5-day in-person meeting featured plenary sessions, abstract presentations, and multidisciplinary workshops, facilitating the exchange of new knowledge and strengthening the international pediatric stroke community. Throughout 2024, ipso expanded its ongoing virtual programming, including its quarterly challenging case conference series and global education webinars, which continued to engage members across diverse regions and time zones. These programs provided dedicated forums for discussing complex cases, sharing clinical and research innovations, and promoting mentorship across generations of pediatric stroke specialists. Ipso also formalized several new working groups and advisory councils, aligning with its strategic goals to promote specialized collaboration in areas such as genetics, epidemiology, neuroimaging, and neurorecovery. These groups support ipsos broader vision of building sustainable infrastructure for pediatric stroke research and education worldwide. Ipso strengthened its membership platform and outreach initiatives, achieving steady growth in both individual and institutional memberships, enhanced communication tools, and improved accessibility for members in low- and middle-income countries.

Operating model

Revenue model
Earned-program. 63% of the money available for current operations came from fees and other program revenue.
Distribution model
Direct operator. The filing allocates 100% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.

The verdict

SUPPORTED - The filed numbers largely add up and a large share of available resources goes toward mission work. Some filing-based governance responses are negative or unanswered and fundraising costs are high for each dollar raised.

Rating breakdown

  • Financial Efficiency: 61
  • Transparency & Controls: 92
  • Accountability: 70
  • Sustainability: 54
  • Growth: 100

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 65%; rating input score 65
  • Program expense ratio: 68.5%; rating input score 69
  • Fundraising efficiency: $4.25 raised per $1 spent on fundraising; rating input score 19; 19th percentile among comparable filings

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 64th percentile among comparable filings
  • Pay-setting controls: Limited
  • Foreign activity oversight: Limited
  • Grant itemization coverage: Limited
  • Major donor itemization: Yes; rating input score 100
  • Related-party transparency: Limited

Accountability

  • Independent voting board: 100%; rating input score 100; 63rd percentile among comparable filings
  • Governance controls: 2 of 7 controls in place; rating input score 29
    • Conflict-of-interest policy: Pass
    • Whistleblower policy: Fail
    • Document-retention policy: Fail
    • CEO compensation review process: NotApplicable
    • Other executive compensation review process: NotApplicable
    • Form 990 shared with the board: Fail
    • Board meeting minutes documented: Pass
    • Audit committee oversight: Missing
    • Independent financial-statement audit: Fail

Sustainability

  • Operating margin: 5.2%; rating input score 51; 51st percentile among comparable filings
  • Total-asset coverage ratio: 1.01; rating input score 41; 41st percentile among comparable filings
  • Liabilities to assets ratio: 0; rating input score 80; 80th percentile among comparable filings
  • Officer compensation ratio: 0%; rating input score 69; 69th percentile among comparable filings

Growth

  • Program expense growth: 17.8% per year; rating input score 100; 82nd percentile among comparable filings
  • Revenue growth: 0.7% per year; rating input score 100; 27th percentile among comparable filings
  • Asset growth: 14.4% per year; rating input score 100; 76th percentile among comparable filings

Details

  • Where the money goes: 65% of revenue deployed · 68.5% of spending went to programs
  • Governance: 13 of 13 board members independent · 2 of 7 filing controls reported
  • Programs: 1 filed program accomplishment · $145K in reported program spending
  • Leadership: top reported pay $0 · 13 people listed
  • Consistency: 16 of 16 current checks pass
  • Schedules: 3 filed schedules · includes major donors
  • Filing history: 2 filing years from 2019 to 2024
  • Contacts: How to reach this organization
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • High — Accountability: Governance controls: 4 of 6 not reported.
  • High — Financial Efficiency: Fundraising efficiency scored 19/100.
  • Review — Sustainability: Operating margin scored 51/100.
  • Moderate — Sustainability: Total-asset coverage ratio scored 41/100.