International Neuroendocrine Cancer Alliance

Nonprofit profile at a glance

EIN
462961023
IRS 990 coverage
2015–2025
Forms available
Form 990 2025, Form 990-EZ 2021
Location
Newton, MA, USA
Phone
6176306900
Rating
79
Verdict
SUPPORTED
Rating confidence
Moderate
Sector
Health

Reported finances

Revenue
$398,393
Expenses
$362,159
Assets
$381,709
Liabilities
$18,242

Source: IRS Form 990. Selected filing: tax year 2025. Amounts in USD.

Leadership & pay

8 people listed

Executive titles in this filing

  • Stephanie Alband (President)
  • Meredith Cummins (President-Elect)

People named in this filing

  • Stephanie Alband (President)
  • Simona Barbi (Secretary)
  • Lisa Yen (Treasurer)

Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.

Source: IRS Form 990. Selected filing: tax year 2025. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

Organization's mission is to be the global advocate for neuroendocrine cancer patients. Statements of Purpose:1. Serving as the global voice in support of neuroendocrine cancer patients and facilitator of global action;2. Raising awareness about neuroendocrine cancer among members of the healthcare community and the general public;3. Supporting research to develop better treatments and cures for all forms of neuroendocrine cancer;4. Disseminating accurate information about neuroendocrine cancer;5. Helping members of the corporation to better achieve their goals through global collaboration;6. Sharing best practices and experiences with member organizations and other neuroendocrine cancer groups from around the world in order to build their capacity; and7. Mentoring newly established, and guiding those who wish to establish, neuroendocrine cancer patient and patient advocate groups.

What it reported doing in 2025

Meeting - education and awareness

Operating model

Revenue model
Donor-supported. 96% of the money available for current operations came from contributions and gifts.
Distribution model
Direct operator. The filing allocates 100% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.

The verdict

SUPPORTED - A large share of available resources goes toward mission work and the filed numbers largely add up. Some filing-based governance responses are negative or unanswered and expenses are high relative to revenue.

Rating breakdown

  • Financial Efficiency: 76
  • Transparency & Controls: 92
  • Accountability: 70
  • Sustainability: 49
  • Growth: 100

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 83.1%; rating input score 83
  • Program expense ratio: 91%; rating input score 91
  • Fundraising efficiency: Limited

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 64th percentile among comparable filings
  • Pay-setting controls: Limited
  • Foreign activity oversight: Limited
  • Grant itemization coverage: Limited
  • Major donor itemization: Yes; rating input score 100
  • Related-party transparency: Limited

Accountability

  • Independent voting board: 100%; rating input score 100; 64th percentile among comparable filings
  • Governance controls: 2 of 7 controls in place; rating input score 29
    • Conflict-of-interest policy: Fail
    • Whistleblower policy: Fail
    • Document-retention policy: Fail
    • CEO compensation review process: NotApplicable
    • Other executive compensation review process: NotApplicable
    • Form 990 shared with the board: Pass
    • Board meeting minutes documented: Pass
    • Audit committee oversight: Fail
    • Independent financial-statement audit: Fail

Sustainability

  • Operating margin: 9.1%; rating input score 55; 55th percentile among comparable filings
  • Total-asset coverage ratio: 1.05; rating input score 42; 42nd percentile among comparable filings
  • Liabilities to assets ratio: 0.05; rating input score 28; 28th percentile among comparable filings
  • Officer compensation ratio: 0%; rating input score 67; 67th percentile among comparable filings

Growth

  • Program expense growth: 9.4% per year; rating input score 100; 66th percentile among comparable filings
  • Revenue growth: 9.5% per year; rating input score 100; 67th percentile among comparable filings
  • Asset growth: 0.6% per year; rating input score 100; 24th percentile among comparable filings

Details

  • Where the money goes: 83.1% of revenue deployed · 91% of spending went to programs
  • Governance: 8 of 8 board members independent · 2 of 7 filing controls reported
  • Programs: 3 filed program accomplishments · $330K in reported program spending
  • Leadership: top reported pay $0 · 8 people listed
  • Highest-paid contractors: 1 contractor listed · $141K reported
  • Consistency: 17 of 17 current checks pass
  • Schedules: 3 filed schedules · includes major donors
  • Filing history: 6 filing years from 2015 to 2025
  • Contacts: How to reach this organization
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • High — Accountability: Governance controls: 5 of 7 not reported.
  • Review — Sustainability: Operating margin scored 55/100.
  • Moderate — Sustainability: Total-asset coverage ratio scored 42/100.
  • High — Sustainability: Liabilities to assets ratio scored 28/100.