International Myeloma Foundation

What it reported doing in 2024

International - the imf grows its network of health care professionals around the world. Key team members organize physician as well as patient meetings in order to provide education about the latest developments in the field of multiple myeloma.support groups - through a global community of volunteer-led support groups, the imf ensures that patients and families have local access to support and education. The imf currently supports over 160 support groups worldwide. The imf provides website creation and hosting for local support groups, and provides a unique opportunity for support group leaders to attend the american society of hematology annual meeting. The imf hosts an annual support group leaders summit to provide training and sharing of best practices for volunteer leaders. Nurse education - the imf nurse leadership board (nlb) is a professional partnership representing nurse experts caring for myeloma patients at leading medical centers. Founded in november 2006, the nlb bolsters nursing education, clinical care experience exchange, and patient knowledge and empowerment in an effort to optimize outcomes for patients with myeloma. The nlb has improved the nursing care and self-care of myeloma patients since its inception.clinical meetings - imf plans and hosts the world's leading myeloma experts at annual clinical meetings around the globe to support collaborative myeloma-related research projects, share data, and avoid duplication of efforts and dilution of valuable resources. Regional coalitions promote excellence in clinical practice, research and education and provide cme-accredited medical education programs. Advocacy - the imf is dedicated to creating a global community that supports the needs of all people affected by myeloma. The imf advocates on behalf of those affected by multiple myeloma to improve access to high-quality diagnostics and treatments, for funding of myeloma-related research, and for an end to insurance coverage disparities for treatment. The imf continues to expand its commitment to empowering patients, families, and friends to advocate on behalf of patient rights.infoline - the imf's toll-free information telephone line provides myeloma treatment and management support from compassionate, highly trained specialists. As new treatment options become available to treat multiple myeloma, infoline coordinators answer questions about myeloma, its treatment, drug side effects, options for possible clinical trials, other health concerns, and where to find local support.website - the imf website is the leading resource for myeloma-related content and the most complete source of answers for newly diagnosed patients to those living with myeloma for many years. The website provides deep information for patients, caregivers, family members, and healthcare professionals. Information is available in multiple languages. Content focuses on the imf's research, education, support and advocacy initiatives. Imf offers the first and only generative ai myeloma-specific chatbot designed to provide general information and support related to multiple myeloma. It is not intended to replace professional medical advice, diagnosis, or treatment from qualified healthcare providers. See imf website for further information.myeloma today - myeloma today is a quarterly educational newsletter and the go-to resource for the myeloma community to learn about the latest advances in myeloma treatment, research and quality of life issues. It is provided free of charge.informational mailings - the infopack is made up of a selection of the imf's publications and is designed to provide newly diagnosed patients and their families with a complete understanding of the disease and care. The info pack contains informative materials free of charge in 19 languages.

Financial Efficiency

• Mission deployment rate: 86.5%; rating input score 87
• Program expense ratio: 85.4%; rating input score 85
• Fundraising efficiency: $12.37 raised per $1 spent on fundraising; rating input score 44; 44th percentile among comparable filings

Transparency & Controls

• Consistency checks: 100%; rating input score 100; 62nd percentile among comparable filings
• Pay-setting controls: 5 of 6 controls in place; rating input score 83
  • Compensation committee: Missing
  • Independent consultant: Pass
  • Other Form 990s reviewed: Pass
  • Written employment contract: Pass
  • Compensation survey or study: Pass
  • Board or committee approval: Pass
• Foreign activity oversight: 2 of 8 controls in place; rating input score 25
  • Claims monitoring procedures: Pass
  • Requires narrative reports: Fail
  • Conducts field audits: Fail
  • May suspend future funding: Fail
  • Requires financial reports: Fail
  • Conducts site visits: Fail
  • Requires grant agreements: Pass
  • May require repayment: Fail
• Grant itemization coverage: 100%; rating input score 100; 72nd percentile among comparable filings
• Major donor itemization: Yes; rating input score 100
• Related-party transparency: Limited

Accountability

• Independent voting board: 100%; rating input score 100; 66th percentile among comparable filings
• Governance controls: 9 of 9 controls in place; rating input score 100
  • Conflict-of-interest policy: Pass
  • Whistleblower policy: Pass
  • Document-retention policy: Pass
  • CEO compensation review process: Pass
  • Other executive compensation review process: Pass
  • Form 990 shared with the board: Pass
  • Board meeting minutes documented: Pass
  • Audit committee oversight: Pass
  • Independent financial-statement audit: Pass

Sustainability

• Operating margin: -1%; rating input score 27; 27th percentile among comparable filings
• Total-asset coverage ratio: 0.99; rating input score 36; 36th percentile among comparable filings
• Liabilities to assets ratio: 0.41; rating input score 36; 36th percentile among comparable filings
• Officer compensation ratio: 23.1%; rating input score 3; 3rd percentile among comparable filings

Growth

• Program expense growth: 3.1% per year; rating input score 100; 27th percentile among comparable filings
• Revenue growth: 4.9% per year; rating input score 100; 43rd percentile among comparable filings
• Asset growth: 7.2% per year; rating input score 100; 50th percentile among comparable filings