Hypoparathyroidism Association Inc

Nonprofit profile at a glance

EIN
820505424
IRS 990 coverage
2010–2025
Forms available
Form 990 2025, Form 990-EZ 2022, Form 990-N 2009
Location
Frisco, TX, USA
Phone
5598177170
Rating
67
Verdict
SUPPORTED
Rating confidence
Moderate
Sector
Specifically Named Diseases

Official website

Reported finances

Revenue
$700,642
Expenses
$642,607
Assets
$316,974
Liabilities
$28,705

Source: IRS Form 990. Selected filing: tax year 2025. Amounts in USD.

Leadership & pay

4 people listed

Executive titles in this filing

  • Patty Keating (Executive Director)
  • Bob Sanders (President)

Highest reported compensation

  • Patty Keating (Executive Director): $118,377 total reported compensation
  • Michele Rayes (Associate Director): $70,866 total reported compensation

Source: IRS Form 990. Selected filing: tax year 2025. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

We work to improve the lives of people impacted by hypoPARAthyroidism through education. support, research and advocacy. We strive to be a reliable, dedicated, accessible, inclusive, empowering resource while being compassionate and professional

What it reported doing in 2025

During the year, Hypopara Association significantly expanded its patient support, advocacy, research, and global outreach initiatives. The organization launched a new Genetic Testing Program focused on bringing cascade genetic testing directly to patients and their families. The first three cohorts served families in rural communities, where access to specialized healthcare providers and genetic testing resources is often limited. The Association also hosted its annual patient conference, which achieved record attendance and expanded patient support efforts through the introduction of a scholarship program. Scholarships were awarded to 12 patients and caregivers to improve access to educational and support opportunities. In addition, the organization established a new Legacy Award honoring the memory and values of founder James Sanders, recognizing three individuals who exemplified his commitment to compassion, advocacy, and community leadership. Hypopara Association increased its international presence by attending its first European Endocrine Society meeting in Copenhagen, strengthening global partnerships and awareness efforts. The organization also officially established a Canadian chapter and worked collaboratively with Canadian regulatory stakeholders to advance a hypoparathyroidism treatment through the initial stages of the approval process in Canada. To further advance research and patient advocacy, the Association conducted a survey of 347 patients, representing the largest patient survey in the hypoparathyroidism community to date. The organization engaged a scientific writer to analyze the findings and support preparation for publication, contributing valuable patient-centered data to the broader medical and scientific community.

Operating model

Revenue model
Donor-supported. 100% of the money available for current operations came from contributions and gifts.
Distribution model
Direct operator. The filing allocates 96% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.

The verdict

SUPPORTED - A large share of available resources goes toward mission work and most voting board members are independent. The filing reports few safeguards for money sent abroad and the filing does not identify recipients for some grant dollars.

Rating breakdown

  • Financial Efficiency: 72
  • Transparency & Controls: 58
  • Accountability: 69
  • Sustainability: 37
  • Growth: 100

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 77.5%; rating input score 78
  • Program expense ratio: 84.5%; rating input score 85
  • Fundraising efficiency: Limited

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 63rd percentile among comparable filings
  • Pay-setting controls: Limited
  • Foreign activity oversight: Scored; rating input score 0
  • Grant itemization coverage: 0%; rating input score 0; 15th percentile among comparable filings
  • Major donor itemization: Yes; rating input score 100
  • Related-party transparency: Limited

Accountability

  • Independent voting board: 100%; rating input score 100; 64th percentile among comparable filings
  • Governance controls: 2 of 8 controls in place; rating input score 25
    • Conflict-of-interest policy: Fail
    • Whistleblower policy: Fail
    • Document-retention policy: Fail
    • CEO compensation review process: Fail
    • Other executive compensation review process: NotApplicable
    • Form 990 shared with the board: Pass
    • Board meeting minutes documented: Pass
    • Audit committee oversight: Missing
    • Independent financial-statement audit: Fail

Sustainability

  • Operating margin: 8.3%; rating input score 52; 52nd percentile among comparable filings
  • Total-asset coverage ratio: 0.49; rating input score 24; 24th percentile among comparable filings
  • Liabilities to assets ratio: 0.09; rating input score 36; 36th percentile among comparable filings
  • Officer compensation ratio: 29.4%; rating input score 8; 8th percentile among comparable filings

Growth

  • Program expense growth: 13.1% per year; rating input score 100; 67th percentile among comparable filings
  • Revenue growth: 12.2% per year; rating input score 100; 68th percentile among comparable filings
  • Asset growth: 14.8% per year; rating input score 100; 69th percentile among comparable filings

Details

  • Where the money goes: 77.5% of revenue deployed · 84.5% of spending went to programs
  • Governance: 5 of 5 board members independent · 2 of 8 filing controls reported
  • Programs: 1 filed program accomplishment · $543K in reported program spending
  • Leadership: top reported pay $118K · 4 people listed
  • Consistency: 22 of 22 current checks pass
  • Schedules: 4 filed schedules · includes major donors and foreign activity
  • Filing history: 11 filing years from 2010 to 2025
  • Contacts: How to reach this organization
  • Money network: 2 filed money-flow records
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • High — Transparency & Controls: Foreign activity oversight scored 0/100.
  • High — Transparency & Controls: Grant itemization coverage scored 0/100.
  • High — Accountability: Governance controls: 5 of 7 not reported.
  • Review — Sustainability: Operating margin scored 52/100.
  • High — Sustainability: Total-asset coverage ratio scored 24/100.
  • High — Sustainability: Officer compensation ratio scored 8/100.
  • Moderate — Sustainability: Liabilities to assets ratio scored 36/100.