Hunter's Hope Foundation Inc
Nonprofit profile at a glance
- EIN
- 161552315
- IRS 990 coverage
- 2012–2025
- Forms available
- Form 990 2025
- Location
- Orchard Park, NY, USA
- Phone
- 7166671200
- Rating
- 88
- Verdict
- STRONG
- Rating confidence
- Moderate
Reported finances
- Revenue
- $862,288
- Expenses
- $1,119,458
- Assets
- $2,039,518
- Liabilities
- $271,413
Source: IRS Form 990. Selected filing: tax year 2025. Amounts in USD.
Leadership & pay
10 people listed
Executive titles in this filing
- JIM KELLY (PRESIDENT)
Highest reported compensation
- JACQUE WAGGONER (C.E.O.): $100,000 total reported compensation
Source: IRS Form 990. Selected filing: tax year 2025. Names and roles reflect this filing, not necessarily current officeholders.
Overview
Mission
Hunter's hope foundation was established to address the acute need for information and research with respect to krabbe disease and related leukodystrophies. In addition, we strive to support and encourage those afflicted and their families as they struggle to endure, adjust, and cope with the demands of the fatal illnesses. Accordingly our mission is four fold:- to broaden public awareness of krabbe disease and other leukodystrophies thus increasing the probability of early detection and treatment.- to gather and provide current, functional information, and service linkages to families of children with leukodystrophies.- to fund research efforts that will identify new treatments, therapies, and ultimately, a cure for krabbe disease and other leukodystrophies.- to establish an alliance of hope that will nourish, affirm, and confront the urgent need for medical, financial, and emotional support of family members and those afflicted with leukodystrophies.
What it reported doing in 2025
Family assistance - the foundation undertakes to gather and provide current, functional information, and service linkages to families of children with leukodystrophies.the foundation strives to establish an alliance of hope that will nourish, affirm, and confront the urgent need for medical, and financial support of family members and those afflicted with leukodystrophies.
Operating model
- Revenue model
- Donor-supported. 78% of the money available for current operations came from contributions and gifts.
- Distribution model
- Hybrid. The nonprofit split its reported program spending across 67% for direct work, and 33% for grants.
- Includes noncash contributions: Reported contributions include donated property or goods.
The verdict
STRONG - A large share of available resources goes toward mission work and the filed numbers largely add up. Fundraising costs are high for each dollar raised and expenses are high relative to revenue.
Rating breakdown
- Financial Efficiency: 91
- Transparency & Controls: 89
- Accountability: 95
- Sustainability: 28
- Growth: 100
Detailed rating inputs
Financial Efficiency
- Mission deployment rate: 100%; rating input score 100
- Program expense ratio: 89.8%; rating input score 90
- Fundraising efficiency: $15.58 raised per $1 spent on fundraising; rating input score 48; 48th percentile among comparable filings
Transparency & Controls
- Consistency checks: 92.9%; rating input score 93; 22nd percentile among comparable filings
- Pay-setting controls: Limited
- Foreign activity oversight: Limited
- Grant itemization coverage: 98.1%; rating input score 98; 50th percentile among comparable filings
- Major donor itemization: Yes; rating input score 100
- Related-party transparency: Limited
Accountability
- Independent voting board: 100%; rating input score 100; 64th percentile among comparable filings
- Governance controls: 7 of 8 controls in place; rating input score 88
- Conflict-of-interest policy: Pass
- Whistleblower policy: Pass
- Document-retention policy: Pass
- CEO compensation review process: NotApplicable
- Other executive compensation review process: Pass
- Form 990 shared with the board: Pass
- Board meeting minutes documented: Pass
- Audit committee oversight: Fail
- Independent financial-statement audit: Pass
Sustainability
- Operating margin: -29.8%; rating input score 4; 4th percentile among comparable filings
- Total-asset coverage ratio: 1.82; rating input score 62; 62nd percentile among comparable filings
- Liabilities to assets ratio: 0.13; rating input score 31; 31st percentile among comparable filings
- Officer compensation ratio: 8.9%; rating input score 40; 40th percentile among comparable filings
Growth
- Program expense growth: 1.9% per year; rating input score 100; 22nd percentile among comparable filings
- Revenue growth: 1.7% per year; rating input score 100; 18th percentile among comparable filings
- Asset growth: 6.5% per year; rating input score 100; 42nd percentile among comparable filings
Details
- Where the money goes: 100% of revenue deployed · 89.8% of spending went to programs
- Governance: 9 of 9 board members independent · 7 of 8 filing controls reported
- Programs: 3 filed program accomplishments · $1M in reported program spending
- Leadership: top reported pay $100K · 10 people listed
- Consistency: 29 of 30 current checks pass · 1 finding to review
- Schedules: 6 filed schedules · includes major donors and grants
- Filing history: 14 filing years from 2012 to 2025
- Contacts: How to reach this organization
- Money network: 13 filed money-flow records
- Related organizations: 12 filed related-organization links
- Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
- People: Everyone the filings name, and which of them the filings identify by more than a name.
Key Signals
Signals prioritize questions for review. They are not findings of misconduct.
- Moderate — Financial Efficiency: Fundraising efficiency scored 48/100.
- High — Sustainability: Operating margin scored 4/100.
- Review — Accountability: Governance controls: Audit committee oversight not reported.
- Review — Transparency & Controls: Domestic grant itemization did not reconcile in the filed values.
- Moderate — Sustainability: Liabilities to assets ratio scored 31/100.
- Moderate — Sustainability: Officer compensation ratio scored 40/100.