Hope for Javier Inc
Nonprofit profile at a glance
- EIN
- 262346544
- IRS 990-EZ coverage
- 2019–2025
- Forms available
- Form 990 2018, Form 990-EZ 2025
- Location
- East Setauket, NY, USA
- Phone
- 6319469006
- Rating
- 46
- Verdict
- MIXED
- Rating confidence
- Moderate
- Sector
- Fund Raising and/or Fund Distribution
Reported finances
- Revenue
- $10,603
- Expenses
- $716
- Assets
- $265,893
- Liabilities
- $0
Source: IRS Form 990-EZ. Selected filing: tax year 2025. Amounts in USD.
Leadership & pay
4 people listed
Executive titles in this filing
- RICARDO ROMERO (VICE PRESIDENT)
- JENNIFER PORTNOY (PRESIDENT)
People named in this filing
- RICARDO ROMERO (VICE PRESIDENT)
- DAVID MERZIN (SECRETARY)
- JENNIFER PORTNOY (PRESIDENT)
Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.
Source: IRS Form 990-EZ. Selected filing: tax year 2025. Names and roles reflect this filing, not necessarily current officeholders.
Overview
Mission
Hope for javier's mission is to create hope where none (yet) exists. Because duchenne muscular dystrophy is considered an orphan disease, one that pharmaceutical companies consider least profitable and therefore not worthy of their attention, it is up to private individuals to fund much of the research. Through fundraising and raising awareness, hope for javier is changing the outcome for boys diagnosed with this devastating disease in two ways: by funding translational research that focuses on moving science from the lab into human clinical trials and by funding initiatives that make improvements to the standard of care, the quality of life, and the general outlook for all those diagnosed.
What it reported doing in 2025
Raised funding for translational research that focuses on moving science from the lab into human clinical trials and for initiatives that make improvements to the standard of care, the quality of life and the general outlook for all those diagnosed. Funding delivered to stony brook children's hospital in december 2023.
Operating model
- Revenue model
- Donor-supported. 100% of the money available for current operations came from contributions and gifts.
- Distribution model
- No current program activity. The filing reports no program spending for the current year.
The verdict
MIXED - The filed numbers largely add up and revenue comfortably covers expenses. A relatively small share of available resources goes toward mission work and a relatively small share of total spending goes to programs.
Rating breakdown
- Financial Efficiency: 0
- Transparency & Controls: 100
- Sustainability: 90
- Growth: 20
Detailed rating inputs
Financial Efficiency
- Mission deployment rate: 0%; rating input score 0
- Program expense ratio: 0%; rating input score 0
Transparency & Controls
- Consistency checks: 100%; rating input score 100; 51st percentile among comparable filings
- Major donor itemization: Yes; rating input score 100
Sustainability
- Operating margin: 93.2%; rating input score 99; 99th percentile among comparable filings
- Total-asset coverage ratio: 371.36; rating input score 100; 100th percentile among comparable filings
- Liabilities to assets ratio: 0; rating input score 66; 66th percentile among comparable filings
- Officer compensation ratio: 0%; rating input score 56; 56th percentile among comparable filings
Growth
- Program expense growth: -4.1% per year; rating input score 0; 37th percentile among comparable filings
- Revenue growth: -5.4% per year; rating input score 0; 33rd percentile among comparable filings
- Asset growth: 2.5% per year; rating input score 100; 48th percentile among comparable filings
Details
- Where the money goes: 0% of revenue deployed · 0% of spending went to programs
- Governance: Filed governance answers
- Accomplishments: 1 filed program accomplishment
- Leadership: top reported pay $0 · 4 people listed
- Consistency: 8 of 8 current checks pass
- Schedules: 3 filed schedules
- Filing history: 7 filing years from 2019 to 2025
- Contacts: How to reach this organization
- Money network: 1 filed money-flow record
- Related organizations: 1 filed related-organization link
- Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
- People: Everyone the filings name, and which of them the filings identify by more than a name.
Key Signals
Signals prioritize questions for review. They are not findings of misconduct.
- High — Financial Efficiency: Mission deployment rate scored 0/100.
- High — Financial Efficiency: Program expense ratio scored 0/100.
- High — Growth: Program expense growth scored 0/100.
- High — Growth: Revenue growth scored 0/100.
- Review — Sustainability: Officer compensation ratio scored 56/100.