Hemophilia Foundation of Southern California
Nonprofit profile at a glance
- EIN
- 951916053
- IRS 990 coverage
- 2010–2024
- Forms available
- Form 990 2024, Form 990-T 2024
- Location
- Pasadena, CA, USA
- Phone
- 6267656656
- Rating
- 80
- Verdict
- STRONG
- Rating confidence
- Moderate
Reported finances
- Revenue
- $1,464,570
- Expenses
- $1,639,921
- Assets
- $1,368,805
- Liabilities
- $28,340
Source: IRS Form 990. Selected filing: tax year 2024. Amounts in USD.
Leadership & pay
11 people listed
Executive titles in this filing
- Rigoberto Garcia (Executive Director)
- Bob Numerof (President)
Highest reported compensation
- Rigoberto Garcia (Executive Director): $140,000 total reported compensation
Source: IRS Form 990. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.
Overview
Mission
HFSCs mission is to improve the quality of life and build community for families and individuals living with hemophilia or other bleeding disorders, by offering a variety of programs and services that educate, advocate and support the needs of this community in Southern California. HFSCs programming includes a medically staffed summer camp, family weekend retreat, advocacy training and programs, a family information day, industry forum to educate members on new products, and a back to school educational symposium to train parents on their educational rights. Some additional newer programs include a teen leadership training program, Hispanic and womens programming, HFSCs Blood Brothers/Dads in Action and a world hemophilia day celebration. HFSC continues to fund a record number of scholarships for higher education and emergency assistance, free medicalert bracelets, and insurance assistance. HFSC strives to make a long-lasting and powerful impact to serve the needs of the bleeding disor
What it reported doing in 2024
Hfsc is proud of its extensive programming designed to fulfill its mission. Throughout the pandemic, hfsc strived and successfully continued its major programs virtually including summer camp, legislative advocacy training, family information day, industry forum, a back to school symposium to train parents on their educational rights and womens retreat. Many programs were offered on special topics such as pain management and covid and vaccinations. Familia de sangre, the only national bleeding disorders conference held in spanish was a huge success. We continue to strive to make a long lasting and powerful impact to serve the bleeding disorders community in socal.
Operating model
- Revenue model
- Other-operating. 70% of the money available for current operations came from other operating revenue.
- Distribution model
- Direct operator. The filing allocates 100% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.
The verdict
STRONG - A large share of available resources goes toward mission work and the filed numbers largely add up. Fundraising costs are high for each dollar raised and expenses are high relative to revenue.
Rating breakdown
- Financial Efficiency: 75
- Transparency & Controls: 86
- Accountability: 90
- Sustainability: 30
- Growth: 100
Detailed rating inputs
Financial Efficiency
- Mission deployment rate: 87.7%; rating input score 88
- Program expense ratio: 76.5%; rating input score 76
- Fundraising efficiency: $0.69 raised per $1 spent on fundraising; rating input score 3; 3rd percentile among comparable filings
Transparency & Controls
- Consistency checks: 93.3%; rating input score 93; 22nd percentile among comparable filings
- Pay-setting controls: Limited
- Foreign activity oversight: Limited
- Grant itemization coverage: Limited
- Major donor itemization: Yes; rating input score 100
- Related-party transparency: Limited
Accountability
- Independent voting board: 100%; rating input score 100; 63rd percentile among comparable filings
- Governance controls: 6 of 8 controls in place; rating input score 75
- Conflict-of-interest policy: Pass
- Whistleblower policy: Pass
- Document-retention policy: Pass
- CEO compensation review process: Pass
- Other executive compensation review process: NotApplicable
- Form 990 shared with the board: Pass
- Board meeting minutes documented: Pass
- Audit committee oversight: Missing
- Independent financial-statement audit: Fail
Sustainability
- Operating margin: -12%; rating input score 15; 15th percentile among comparable filings
- Total-asset coverage ratio: 0.83; rating input score 37; 37th percentile among comparable filings
- Liabilities to assets ratio: 0.02; rating input score 62; 62nd percentile among comparable filings
- Officer compensation ratio: 8.5%; rating input score 42; 42nd percentile among comparable filings
Growth
- Program expense growth: 14.7% per year; rating input score 100; 75th percentile among comparable filings
- Revenue growth: 8.8% per year; rating input score 100; 62nd percentile among comparable filings
- Asset growth: 4.4% per year; rating input score 100; 36th percentile among comparable filings
Details
- Where the money goes: 87.7% of revenue deployed · 76.5% of spending went to programs
- Governance: 14 of 14 board members independent · 6 of 8 filing controls reported
- Programs: 1 filed program accomplishment · $1.3M in reported program spending
- Leadership: top reported pay $140K · 11 people listed
- Consistency: 28 of 29 current checks pass · 1 finding to review
- Schedules: 5 filed schedules · includes major donors
- Filing history: 14 filing years from 2010 to 2024
- Contacts: How to reach this organization
- Money network: 1 filed money-flow record
- Related organizations: Filed and resolved organization relationships.
- Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
- People: Everyone the filings name, and which of them the filings identify by more than a name.
Key Signals
Signals prioritize questions for review. They are not findings of misconduct.
- High — Financial Efficiency: Fundraising efficiency scored 3/100.
- High — Sustainability: Operating margin scored 15/100.
- Review — Accountability: Governance controls: Independent financial-statement audit not reported.
- Moderate — Sustainability: Total-asset coverage ratio scored 37/100.
- Moderate — Transparency & Controls: Schedule A contributions reconciliation did not reconcile in the filed values.
- Moderate — Sustainability: Officer compensation ratio scored 42/100.