Health Through Fitness in Orphan Diseases

Nonprofit profile at a glance

EIN
900649448
IRS 990 coverage
2012–2017
Forms available
Form 990 2017
Location
Philadelphia, PA, USA
Phone
2154358273
Rating confidence
Limited
Sector
Specifically Named Diseases

Official website

Reported finances

Revenue
$0
Expenses
$21,134
Assets
$31,933
Liabilities
$6,166

Source: IRS Form 990. Selected filing: tax year 2017. Amounts in USD.

Leadership & pay

5 people listed

Executive titles in this filing

  • JAMES M WILSON MD PHD (PRESIDENT)

People named in this filing

  • JAMES M WILSON MD PHD (PRESIDENT)
  • JASON GREEN (DIRECTOR)
  • DANIEL WEINER (DIRECTOR)

Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.

Source: IRS Form 990. Selected filing: tax year 2017. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

Currently, the primary focus of htfod is the orphan disease cystic fibrosis (cf) which is a lethal genetic disease that causes excess mucus accumulation in the lungs causing chronic infections and in the pancreas causing malabsorption. There is no cure for cf although good clinical care can extend life into the 30s and 40s. The goal of htfod is to encourage physical fitness through cycling in those living with cf, which has been shown to improve their health. The primary strategy used to accomplish this goal is to establish a very large network of cyclists from across the country to further the mission of htfod for the disease cf. This network of cyclists has been established under the program of team cf.

What it reported doing in 2017

The primary strategy used to accomplish the above goal is to establish a very large network of cyclists from across the country to further the mission of htfod for the disease cf. We have established this network of cyclists under the program name of rare disease cycling.

Operating model

Revenue model
No positive adjusted resources. The filing reports no positive adjusted operating resources.
Distribution model
Direct operator. The filing allocates 100% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.

The verdict

- The available evidence is not sufficient to produce an overall rating for this filing. This is not a warning sign.

Rating breakdown

  • Financial Efficiency: 71
  • Transparency & Controls: 90
  • Accountability: 76
  • Sustainability: 19
  • Growth: 0

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: Limited
  • Program expense ratio: 95.1%; rating input score 95
  • Fundraising efficiency: Limited

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 62nd percentile among comparable filings
  • Pay-setting controls: Limited
  • Foreign activity oversight: Limited
  • Grant itemization coverage: Limited
  • Major donor itemization: Limited
  • Related-party transparency: Limited

Accountability

  • Independent voting board: 100%; rating input score 100; 64th percentile among comparable filings
  • Governance controls: 3 of 7 controls in place; rating input score 43
    • Conflict-of-interest policy: Pass
    • Whistleblower policy: Fail
    • Document-retention policy: Fail
    • CEO compensation review process: NotApplicable
    • Other executive compensation review process: NotApplicable
    • Form 990 shared with the board: Pass
    • Board meeting minutes documented: Pass
    • Audit committee oversight: Missing
    • Independent financial-statement audit: Fail

Sustainability

  • Operating margin: Limited
  • Total-asset coverage ratio: 1.51; rating input score 32; 32nd percentile among comparable filings
  • Liabilities to assets ratio: 0.19; rating input score 17; 17th percentile among comparable filings
  • Officer compensation ratio: 0%; rating input score 61; 61st percentile among comparable filings

Growth

  • Program expense growth: -35.2% per year; rating input score 0; 15th percentile among comparable filings
  • Revenue growth: -33.2% per year; rating input score 0; 15th percentile among comparable filings
  • Asset growth: -12.2% per year; rating input score 0; 16th percentile among comparable filings

Details

  • Where the money goes: 95.1% of spending went to programs
  • Governance: 1 of 1 board members independent · 3 of 7 filing controls reported
  • Programs: 1 filed program accomplishment · $20K in reported program spending
  • Leadership: top reported pay $0 · 5 people listed
  • Consistency: 16 of 16 current checks pass
  • Schedules: 3 filed schedules
  • Filing history: 6 filing years from 2012 to 2017
  • Contacts: How to reach this organization
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

Grant-readiness screening is separate from the live rating, not a measure of program quality. Review the source records before making a grant decision.

  • Moderate — Accountability: Governance controls: 3 of 6 not reported.
  • High — Growth: Program expense growth scored 0/100.
  • High — Growth: Revenue growth scored 0/100.
  • Moderate — Sustainability: Total-asset coverage ratio scored 32/100.
  • High — Growth: Asset growth scored 0/100.
  • High — Sustainability: Liabilities to assets ratio scored 17/100.
  • High — Grant Readiness: Automatic revocation: this organization had its federal tax-exempt status automatically revoked.