Haley's Heroes Foundation
Nonprofit profile at a glance
- EIN
- 844416912
- IRS 990-EZ coverage
- 2021–2025
- Forms available
- Form 990 2022, Form 990-EZ 2025, Form 990-N 2020
- Location
- Salem, OR, USA
- Phone
- 5035801736
- Rating
- 93
- Verdict
- STRONG
- Rating confidence
- Moderate
- Sector
- Specifically Named Diseases Research
Reported finances
- Revenue
- $20,107
- Expenses
- $100,293
- Assets
- $341,600
- Liabilities
- $0
Source: IRS Form 990-EZ. Selected filing: tax year 2025. Amounts in USD.
Leadership & pay
7 people listed
Executive titles in this filing
- MELISSA POLLMAN (PRESIDENT)
People named in this filing
- ANGELA MAHONEY (COMMITTEE MEMBER)
- TRACIE DAVIS (COMMITTEE MEMBER)
- JOHN HOSLEY (COMMITTEE MEMBER)
Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.
Source: IRS Form 990-EZ. Selected filing: tax year 2025. Names and roles reflect this filing, not necessarily current officeholders.
Overview
Mission
To bring awareness and finding a cure for batten disease. To lead research teams and evaluate the effectiveness of gene therapy at preventing, curing, slowing and reducing symptoms of cln1.
What it reported doing in 2025
In the next 10 years, we will extend our efforts to research and evaluate regenerative therapy for improvement of symptoms for those affected by all variants of batten disease. And in the next 15 years, we will research and evaluate the effectiveness of any and all potential treatments, therapies and cures for all variants of batten disease. Ultimately, all victims of batten disease will receive or benefit from foundation influenced care and developments to have symptom slowing, symptom termination, symptom reversal, cure and/or prevention. We will see 1) fda approval for batten disease therapy clinical trials 2) clinical success for haley and other children 3) scientific advances beyond batten disease.
Operating model
- Revenue model
- Donor-supported. 78% of the money available for current operations came from contributions and gifts.
- Distribution model
- Grant intermediary. The nonprofit sent 100% of its reported program spending out as grants.
The verdict
STRONG - A large share of available resources goes toward mission work and the filed numbers largely add up. Expenses are high relative to revenue and revenue has declined or grown slowly.
Rating breakdown
- Financial Efficiency: 96
- Transparency & Controls: 100
- Sustainability: 38
- Growth: 60
Detailed rating inputs
Financial Efficiency
- Mission deployment rate: 100%; rating input score 100
- Program expense ratio: 87.7%; rating input score 88
Transparency & Controls
- Consistency checks: 100%; rating input score 100; 51st percentile among comparable filings
- Major donor itemization: Yes; rating input score 100
Sustainability
- Operating margin: -398.8%; rating input score 3; 3rd percentile among comparable filings
- Total-asset coverage ratio: 3.41; rating input score 77; 77th percentile among comparable filings
- Liabilities to assets ratio: 0; rating input score 66; 66th percentile among comparable filings
- Officer compensation ratio: 0%; rating input score 56; 56th percentile among comparable filings
Growth
- Program expense growth: 59.7% per year; rating input score 100; 94th percentile among comparable filings
- Revenue growth: -43.1% per year; rating input score 0; 7th percentile among comparable filings
- Asset growth: 16% per year; rating input score 100; 80th percentile among comparable filings
Details
- Where the money goes: 100% of revenue deployed · 87.7% of spending went to programs
- Governance: Filed governance answers
- Accomplishments: 1 filed program accomplishment · $88K in reported program spending
- Leadership: top reported pay $0 · 7 people listed
- Consistency: 9 of 9 current checks pass
- Schedules: 4 filed schedules
- Filing history: 4 filing years from 2021 to 2025
- Contacts: How to reach this organization
- Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
- People: Everyone the filings name, and which of them the filings identify by more than a name.
Key Signals
Signals prioritize questions for review. They are not findings of misconduct.
- High — Sustainability: Operating margin scored 3/100.
- High — Growth: Revenue growth scored 0/100.
- Review — Sustainability: Officer compensation ratio scored 56/100.