Greater Ohio Bleeding Disorders Foundation

What it reported doing in 2024

The programs and services offered by the organization include: -dads in action: a program designed by hfa for male caregivers of children with bleeding disorders. The program encourages fathers to take an active role in their child's life and provides information, support and mentoring for them. -blood brotherhood: blood brotherhood is a national program designed by hfa for adult men, diagnosed and living with bleeding disorders. It is designed to be a multi-avenue outreach, to provide education and support, promote good health, and establish a sense of community for adult men. -woman's task force: this project provides information and programing for women with bleeding disorders. The primary focus is to provide outreach to aid in earlier diagnosis. We primarily serve the bleeding is orders community in the 24 counties in northeast Ohio, although our dental program and advocacy program serves the entire state. We have many strong relationships in the bleeding disorder community. We are a charter member of the national hemophilia foundation (nhf) and a member organization of the hemophilia foundation of america (hfa). Staff attends conferences through both organizations to keep updated on new treatments, medication, and educational advancements. We are also a member of the Ohio bleeding disorder council (obdc). This statewide group provides information about advocacy within the state and nationally. Nohf participates in Washington days and statehouse days to give our members the chance to meet with state and national officials. -youth golf program: this program is available to children age 10 to 18 to learn the game of golf. The program runs weekly for 8 weeks, at a centrally located course, during the summer to teach new skills and also provide weekly educational programs relating to their bleeding disorders. Siblings are also welcome to attend this program. -swim program: this program provides 8 weeks of swim classes at three indoor pools, including ymca and community pools, in northeast Ohio. The program is open to all ages to learn how to swim or to increase their swimming skills. The program runs from january through march. -various wellness initiatives: we offer various wellness initiatives throughout the year including yoga, run training programs and guided imagery. -steps for living: a program for newly diagnosed families based on the model provided by nhf. It provides educational quarterly meetings and support for parents and other family members during the early coping years through family-to-family support and mentoring. -counseling: up to 500 per family per year for individual or family counseling. -camp scholarships: we send children to hemophilia-geared camps and provide either transportation or mileage reimbursement. -educational scholarships: we provide up to 500 each year for people with bleeding disorders and their caregivers for tuition, tutoring or educational supplies, such as books. -medicalert: we provide emblems and yearly membership to children and adults with bleeding disorders. -emergency financial assistance: eligible families may request 500 per year for assistance if their financial duress is directly related to their bleeding disorder

Financial Efficiency

• Mission deployment rate: 65.8%; rating input score 66
• Program expense ratio: 78.7%; rating input score 79
• Fundraising efficiency: $13.48 raised per $1 spent on fundraising; rating input score 47; 47th percentile among comparable filings

Transparency & Controls

• Consistency checks: 100%; rating input score 100; 63rd percentile among comparable filings
• Pay-setting controls: Limited
• Foreign activity oversight: Limited
• Grant itemization coverage: Limited
• Major donor itemization: Yes; rating input score 100
• Related-party transparency: Limited

Accountability

• Independent voting board: 100%; rating input score 100; 63rd percentile among comparable filings
• Governance controls: 5 of 8 controls in place; rating input score 62
  • Conflict-of-interest policy: Pass
  • Whistleblower policy: Pass
  • Document-retention policy: Fail
  • CEO compensation review process: NotApplicable
  • Other executive compensation review process: Fail
  • Form 990 shared with the board: Pass
  • Board meeting minutes documented: Pass
  • Audit committee oversight: Pass
  • Independent financial-statement audit: Fail

Sustainability

• Operating margin: 17.9%; rating input score 74; 74th percentile among comparable filings
• Total-asset coverage ratio: 1.89; rating input score 63; 63rd percentile among comparable filings
• Liabilities to assets ratio: 0.07; rating input score 47; 47th percentile among comparable filings
• Officer compensation ratio: 10.7%; rating input score 34; 34th percentile among comparable filings

Growth

• Program expense growth: 5.1% per year; rating input score 100; 43rd percentile among comparable filings
• Revenue growth: 6.6% per year; rating input score 100; 52nd percentile among comparable filings
• Asset growth: 12% per year; rating input score 100; 65th percentile among comparable filings