Gould Syndrome Foundation
Nonprofit profile at a glance
- EIN
- 331807591
- IRS 990-EZ coverage
- 2025–2025
- Forms available
- Form 990-EZ 2025, Form 990-N 2024
- Location
- Hanford, CA, USA
- Phone
- 9788072584
- Rating
- 62
- Verdict
- SUPPORTED
- Rating confidence
- Moderate
- Sector
- Birth Defects, Genetic Diseases Research
Reported finances
- Revenue
- $73,472
- Expenses
- $7,591
- Assets
- $66,074
Source: IRS Form 990-EZ. Selected filing: tax year 2025. Amounts in USD.
Leadership & pay
4 people listed
Executive titles in this filing
- Brittney Davison (President)
- Lacey Korstvedt (Vice President)
People named in this filing
- Michelle Theeuwes (Secretary)
- Timothy Roy (Treasurer)
- Brittney Davison (President)
Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.
Source: IRS Form 990-EZ. Selected filing: tax year 2025. Names and roles reflect this filing, not necessarily current officeholders.
Overview
Mission
This corporation is organized exclusively for charitable, educational, or scientific purposes, including for such purposes, the making of distributions to organizations that qualify as exempt organizations under 501(c)(3) of the Internal Revenue Code, or the corresponding section of any future federal tax code. Without limiting the generality of the foregoing, the corporation intends to support causes that assist and support development of research and cure of Gould Syndrome caused by mutations of the COL41 and COL4A2 genes.
What it reported doing in 2025
During the year of 2025, we decided as a foundation to hold the first ever Gould Syndrome International Conference in America. This conference is scheduled to take place in Boston, MA on May 15-17. Once the decision was made to hold the conference in 2026, we understood that a lot of fundraising would be necessary. This is why the majority of the funds we obtained through donations in 2025 were not utilized elsewhere. However, toward the end of 2025 we made a downpayment to reserve hotel rooms for the conference. This was the first step in working toward holding the conference, the first payout of many others which will have to be made in 2026 in relation to the conference. The downpayment for the hotel rooms in order to hold a community/scientific research conference was a great accomplishment.
Operating model
- Revenue model
- Donor-supported. 100% of the money available for current operations came from contributions and gifts.
- Distribution model
- Direct operator. The filing allocates 84% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.
The verdict
SUPPORTED - The filed numbers largely add up and revenue comfortably covers expenses. A relatively small share of available resources goes toward mission work and reported officer compensation is a large share of total spending, which may reflect staffing concentration.
Rating breakdown
- Financial Efficiency: 37
- Transparency & Controls: 100
- Sustainability: 79
- Growth: NotEnoughData
Detailed rating inputs
Financial Efficiency
- Mission deployment rate: 8.7%; rating input score 9
- Program expense ratio: 84%; rating input score 84
Transparency & Controls
- Consistency checks: 100%; rating input score 100; 51st percentile among comparable filings
- Major donor itemization: Yes; rating input score 100
Sustainability
- Operating margin: 89.7%; rating input score 98; 98th percentile among comparable filings
- Total-asset coverage ratio: 8.7; rating input score 90; 90th percentile among comparable filings
- Liabilities to assets ratio: Limited
- Officer compensation ratio: 0%; rating input score 56; 56th percentile among comparable filings
Growth
- Program expense growth: Limited
- Revenue growth: Limited
- Asset growth: Limited
Details
- Where the money goes: 8.7% of revenue deployed · 84% of spending went to programs
- Governance: Filed governance answers
- Accomplishments: 3 filed program accomplishments · $6K in reported program spending
- Leadership: top reported pay $0 · 4 people listed
- Consistency: 7 of 7 current checks pass
- Schedules: 3 filed schedules
- Contacts: How to reach this organization
- Money network: Resolved incoming and outgoing counterparties from filed money flows.
- Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
- People: Everyone the filings name, and which of them the filings identify by more than a name.
Key Signals
Signals prioritize questions for review. They are not findings of misconduct.
- High — Financial Efficiency: Mission deployment rate scored 9/100.
- Review — Sustainability: Officer compensation ratio scored 56/100.