Global Lyme Alliance Inc

Nonprofit profile at a glance

EIN
061559393
IRS 990 coverage
2012–2024
Forms available
Form 990 2024
Location
Greenwich, CT, USA
Phone
2039691333
Rating
80
Verdict
STRONG
Rating confidence
Moderate
Sector
Health Support Services

Reported finances

Revenue
$2,379,133
Expenses
$2,973,058
Assets
$3,256,252
Liabilities
$670,101

Source: IRS Form 990. Selected filing: tax year 2024. Amounts in USD.

Leadership & pay

33 people listed

Executive titles in this filing

  • LAURA MACNEILL (CEO (UNTIL 10/2024))

Highest reported compensation

  • LAURA MACNEILL (CEO (UNTIL 10/2024)): $200,969 total reported compensation
  • TIMOTHY SELLATI (CSO (UNTIL 08/2024)): $163,610 total reported compensation
  • STEVEN PECOCK (DIRECTOR OF DEVELOPMENT): $160,500 total reported compensation

Source: IRS Form 990. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

Global lyme alliance is the leading nonprofit dedicated to conquering lyme and other tick-borne diseases. Our mission: cure lyme and other tick-borne diseases through innovative research, awareness, and empowering the patient voice.

What it reported doing in 2024

Global lyme alliance (gla) has a strong track record of program service accomplishments in three major areas, measured by expenses: research advancements: gla invests in research, driving significant progress in lyme and tick-borne disease studies. Their contributions include groundbreaking work in diagnostics, treatment, and understanding of lyme bacteria. Notable achievements comprise characterizing chronic lyme disease, genome sequencing of borrelia burgdorferi strains, uncovering antibiotic resistance mechanisms, and documenting immune dysfunction in patients. Recent discoveries include the role of cell wall-deficient forms (l-forms) in chronic infections, potentially aiding early lyme disease cure.patient support: gla is committed to aiding patients, caregivers, and loved ones affected by these diseases. They offer various support programs, such as access to specialists, financial assistance information, clinical trial opportunities, emotional support mentorship, and educational materials. Their holistic approach addresses patients and families' challenges comprehensively.knowledge and awareness: gla's research and educational initiatives have played a pivotal role in enhancing understanding and awareness of lyme and tick-borne diseases. Their funding of studies connecting lyme disease to psychiatric disorders has broadened awareness of the diseases' impact on patients' well-being. Moreover, gla's dedication to sharing educational resources and clinical trial information empowers the community to make informed health decisions.

Operating model

Revenue model
Donor-supported. 94% of the money available for current operations came from contributions and gifts.
Distribution model
Hybrid. The nonprofit split its reported program spending across 55% for direct work, and 45% for grants.
  • Includes noncash contributions: Reported contributions include donated property or goods.

The verdict

STRONG - A large share of available resources goes toward mission work and the filed numbers largely add up. The filing reports few safeguards for money sent abroad and fundraising costs are high for each dollar raised.

Rating breakdown

  • Financial Efficiency: 78
  • Transparency & Controls: 75
  • Accountability: 100
  • Sustainability: 20
  • Growth: 100

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 92.7%; rating input score 93
  • Program expense ratio: 74%; rating input score 74
  • Fundraising efficiency: $5.29 raised per $1 spent on fundraising; rating input score 18; 18th percentile among comparable filings

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 63rd percentile among comparable filings
  • Pay-setting controls: 4 of 6 controls in place; rating input score 67
    • Compensation committee: Pass
    • Independent consultant: Pass
    • Other Form 990s reviewed: Missing
    • Written employment contract: Missing
    • Compensation survey or study: Pass
    • Board or committee approval: Pass
  • Foreign activity oversight: 1 of 8 controls in place; rating input score 12
    • Claims monitoring procedures: Pass
    • Requires narrative reports: Fail
    • Conducts field audits: Fail
    • May suspend future funding: Fail
    • Requires financial reports: Fail
    • Conducts site visits: Fail
    • Requires grant agreements: Fail
    • May require repayment: Fail
  • Grant itemization coverage: 100%; rating input score 100; 72nd percentile among comparable filings
  • Major donor itemization: Yes; rating input score 100
  • Related-party transparency: Limited

Accountability

  • Independent voting board: 100%; rating input score 100; 63rd percentile among comparable filings
  • Governance controls: 8 of 8 controls in place; rating input score 100
    • Conflict-of-interest policy: Pass
    • Whistleblower policy: Pass
    • Document-retention policy: Pass
    • CEO compensation review process: Pass
    • Other executive compensation review process: NotApplicable
    • Form 990 shared with the board: Pass
    • Board meeting minutes documented: Pass
    • Audit committee oversight: Pass
    • Independent financial-statement audit: Pass

Sustainability

  • Operating margin: -25%; rating input score 5; 5th percentile among comparable filings
  • Total-asset coverage ratio: 1.1; rating input score 40; 40th percentile among comparable filings
  • Liabilities to assets ratio: 0.21; rating input score 43; 43rd percentile among comparable filings
  • Officer compensation ratio: 24.9%; rating input score 8; 8th percentile among comparable filings

Growth

  • Program expense growth: 5% per year; rating input score 100; 40th percentile among comparable filings
  • Revenue growth: 4.2% per year; rating input score 100; 35th percentile among comparable filings
  • Asset growth: 5.6% per year; rating input score 100; 38th percentile among comparable filings

Details

  • Where the money goes: 92.7% of revenue deployed · 74% of spending went to programs
  • Governance: 23 of 23 board members independent · 8 of 8 filing controls reported
  • Programs: 2 filed program accomplishments · $2.2M in reported program spending
  • Leadership: top reported pay $201K · 33 people listed · 4 of 6 pay-setting controls reported
  • Consistency: 36 of 36 current checks pass
  • Schedules: 9 filed schedules · includes major donors, foreign activity, grants, and executive pay
  • Filing history: 12 filing years from 2012 to 2024
  • Contacts: How to reach this organization
  • Money network: 10 filed money-flow records
  • Related organizations: 5 filed related-organization links
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • High — Transparency & Controls: Foreign activity oversight: 7 of 8 not reported.
  • High — Financial Efficiency: Fundraising efficiency scored 18/100.
  • High — Sustainability: Operating margin scored 5/100.
  • Moderate — Sustainability: Total-asset coverage ratio scored 40/100.
  • High — Sustainability: Officer compensation ratio scored 8/100.
  • Moderate — Sustainability: Liabilities to assets ratio scored 43/100.